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I was on Temodar in May with radiation. For me, the side effects were nausea and vomiting. Because I had limited side effects with prior chemo, I was just put on a mild anti-nausea medication. Once I switched to Kytril, it was fine. However, if I didn't each every 2-3 hours, I got sick. My initial MRI showed 11 lesions. 3 weeks after radiation and Temodar, some were gone, some were smaller and the remainder were stable. According to the doctor, this is considered excellent news because even the ones that are stable could be scar tissue.
I am almost back to "normal" in terms of physical activity, but I do take daily naps.
Best of everything,
Susan
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