| Bonnie;
 I had my Serum her2 test done at Quest Diagnostics.  Results apparently take about one week as results are faxed to my onc....a bit longer for me as they are mailed to me.  I also get tumor markers taken and so far so good.  I think being ER/PR+ we need more than the serum test as our tumors are fed by hormones as well.  I am now looking for tests to see if the arimidex is working.....these drugs are like herceptin and apparently don't work for everyone.  Yes, we do need knowledge.  I hope the results come in so we perhaps will see some patterns.
 
 Best regards,
 
 Cathy
 
				__________________Cathy
 
 Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
 Diagnosed Jan. 2005 tumor in supraclavicular node
 Stage 3c, Grade 3, ER/PR+, Her2++
 4 AC, 4 Taxol, Radiation, Arimidex, Actonel
 Herceptin for 9 months until Muga dropped and heart enlarged
 Restarting herceptin weekly after 4 months off
 Stopped herceptin after four weekly treatments....score dropped to 41
 Finished 6 years Arimidex
 May 2015 diagnosed with ovarian cancer
 Stage 1C
 started 6 treatments of carboplatin/taxol
 Genetic testing show BRCA1 VUS
 Nice! My hair came back really curly. Hope it lasts lol.  Well it didn't but I liked it so I'm now a perm lady
 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
 April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
 Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
 To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
 Genetic testing of ovarian tumour and this new lung met will take months.
 To see geneticist to be retested for BRCA this week....still BRCA VUS
 CA125 has declined from 359 to 12 as of Aug.23/18
 
 
 
 |