View Single Post
Old 08-26-2006, 08:48 AM   #12
Joy
Senior Member
 
Joy's Avatar
 
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
Wow

THANK YOU SO MUCH EVERYONE for your beautiful thoughts and great words of encouragement. You have all helped me to remember that I have plenty of options. My specialist had great advice and reminded me that I don't have life threatening disease and I don't need to panic. Neither of my oncs feel that I am at a place of needing Tykerb yet, which is good cause i like to keep 'aces up my sleeves' and that is one.

My specialist said to stay on the Megace and watch the markers closely because 5 weeks is just not enough time. After Megace he has had success with haletestin (spelling is wrong), DES and Faslodex; in that sequence. He said the liver enzyme elevation was liver irritation, rather than cancer and was not concerned.

So I will see what my local onc has to say about the CT results when I see her on Monday. She definitely is more reactionary and I'm pretty sure will want to do chemo. I'm hoping the CT says what I think is says and there isn't anything really crazy.

About diet, I have eaten organic food for many years and my natural food preferences, since I was a kid, are toward vegetables and grains. I don't eat much meat, I eat a ginormous salad with olive oil at least once a day. I eat almonds, walnuts, pecans. I do eat cheeses and fruits. Over the years I have lost my interest in sweets, so i do well with that.

I have also done supplementation for years. During taxol/carbo I was in such a fatigued funk that I slacked a lot. But now that I feel like myself again I'm back on track with the following:

RM-10 mushroom complex
Green Drinks
Evening Primrose oil
Flax, Borage, Cold Water Fish Oils
Calcium Complex
Jarrow Cox 2 inhibitor combination (inc. oils, reservetrol, curcumin, ginger, greent tea, devil's claw, quercetin)
Quercetin
Curcumin
Milk Thistle/artichoke
Pro-biotics
Zinc
Selenium
Triphala
Garlic

I also see an acupuncturist and drink nasty herbs that i boil up. She customizes based on my markers or side effects, etc. I'm sure that I'm forgetting something.

Nutrition is something I've been interested in long before cancer and I love the information that is shared here on the subject. So any thoughts from folks are great.

This site is the best and you all are wonderful. Thank you!
__________________
with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
Joy is offline   Reply With Quote