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Old 08-25-2006, 08:14 PM   #15
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Please don't feel that you have to "shut up." Everyone on this board is dealing with cancer and the fears that go along with this disease. If I remember correctly you started the thread about what support systems people had. I think that was a great post and it amazes me everytime I read how much support women feel they derive from this board. Keep in mind that we all get frustrated at times which is perfectly natural. I sincerely hope that you can get your oncologist to listen to you. I think the idea of taping your visits is worth a try. I know that when I go to my oncologist I always have my questions written out and absolutely will not leave until I have answers. My oncologist sometimes seems to be in a big hurry and that's when I pull my paper with my questions out. I know it's a big expense to go out of network but maybe the time has come for you to try someone else. I'm keeping you in my thoughts and prayers. Hope that you will soon get the answers that you need.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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