HER2 Support Group Forums - View Single Post

tammymarie1971 · 08-25-2006, 11:33 AM

Joy!!!! It is so good to hear from you!! We all have scanxiety, they just bring out the fear of the unknown in us, from the sounds of it you still have several options should you need them. I am on navelbine right now and my tumor markers from Aug 3 were 100 and yesterday they came down to 73! Have you been on navelbine before? It is fairly easy to tolerate NO HAIR LOSS!!!!! some have thinning, but that is so much better than complete loss. Lots of ladies around here have been on navelbine and had great repsonses. THERE IS STILL HOPE!!!! but we for sure all have the days where we have to dig pretty deep to feel any hopefulness!
I had liver mets dx'd in Mar'04 and a liver resection on Aug 23'04 and as of this June the liver is still clean!!! Although there has been some progression of bone mets

I have four children who are young as well 12, 11, 8 &4 so I know that it can be exhausting to be "UP" for the kids, but they do keep us going don't they? Joy, you will just have to do whatever keeps you around and buy more time until they come out with the next great drug. That's what most of us are doing and some days it is too much, but there is always HOPE!!
Take care Joy, do something you really enjoy today ok?
Tammy

08-25-2006, 11:33 AM	#4
tammymarie1971 Senior Member Join Date: Sep 2005 Location: British Columbia, Canada Posts: 198	Joy!!!! It is so good to hear from you!! We all have scanxiety, they just bring out the fear of the unknown in us, from the sounds of it you still have several options should you need them. I am on navelbine right now and my tumor markers from Aug 3 were 100 and yesterday they came down to 73! Have you been on navelbine before? It is fairly easy to tolerate NO HAIR LOSS!!!!! some have thinning, but that is so much better than complete loss. Lots of ladies around here have been on navelbine and had great repsonses. THERE IS STILL HOPE!!!! but we for sure all have the days where we have to dig pretty deep to feel any hopefulness! I had liver mets dx'd in Mar'04 and a liver resection on Aug 23'04 and as of this June the liver is still clean!!! Although there has been some progression of bone mets I have four children who are young as well 12, 11, 8 &4 so I know that it can be exhausting to be "UP" for the kids, but they do keep us going don't they? Joy, you will just have to do whatever keeps you around and buy more time until they come out with the next great drug. That's what most of us are doing and some days it is too much, but there is always HOPE!! Take care Joy, do something you really enjoy today ok? Tammy __________________ Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured? Recur: May'05 spine & Hip. New onc treatment in Mexico Feb'06-Mar-06 back to Mexico June/July '06 Currently on herceptin/Zometa/Femara-recently added navelbine Switched to arimidex Nov'06 ovaries removed June '07 ca15-3 in May'06 was 102 ca15-3 summer of '07 holding steady at 23! ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36 Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin. No signifcant changes. Feb'09 Started Xeloda with herceptin..no more hormonals Feb'09-June'09 tumor markers coming down again from 155 to 84 May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.