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I am tired of waiting! I am nobody...
I have TRIED everything under the sun to get my oncologist to see me. She keeps putting me off. I DON'T have time for this. Now that they KNOW they can't do radiation on me...I NEED to be on either femara, tamoxifen, SOMETHING! Its going on almost three months since my LAST chemo while they play games. Since I can't have rads its even more important I get on some ant-ihomonal meds asap. But CAN'T get into my onc asap.
I made this known to this head onc lady I deal with...she did agree with me and went and spoke to my oncologist for me. But she got fooled...my onco doc told her too that she just did NOT have time for me right now...she is busy and is taking time off to see family. (So just SCREW ME!) The head lady that talked to my onc for me said she did agree to see me EARLY Wednesday but she ONLY has a "few" minutes. (They took blood "fsh" from me Monday while at my herceptin infusion. They had the gull to tell me it will take WEEK for my onc to get that blood test back anyway. (NO WAY) So for me to WAIT till next wednesday is no big deal. (Another week IS a big deal to me!) Time just KEEPS going on while they drag their feet and ignore me. (They want my cancer to come back!)
I have QUESTIONS for her NOW that I CAN'T have radiation. I am SCARED. She HAS TO KNOW THAT. This head lady looked surprised that my onc told her she wouldn't have time to discuss much with me. (Its always that way!) Now this HEAD lady sees what I mean!
How is this even LEGAL when they constantly DELAY my care? Won't spend any time with me to discuss whats going on, or answer my questions. They always have excuses to put me off. Its always WAIT till next week...or I don't have time now.
Someone PLEASE help me. I won't stand a chance if I can't find a way to get them to deal with me. Please don't say go some where else...I can't. I would do anything to do that...I don't have the money too. I am STUCK in THIS GROUP. But there has to be LAWS...I do have rights don't I?
They really don't give a darn about me. I have tried everything at this point. Plus I just had an ECHO...I called about a couple things on the report that concerned me. The nurse asked my oncologist about it for me...and the onc told her to tell me that she ONLY cares about the EF number...and mine is fine and if I want any other information she can send me to a cardiogist. (Gee, thanks.) More doctor appts. I just wanted to KNOW IF she even looked at m ECHO before I did herceptin this last Monday...and I found out she HAD NOT! She just keeps letting me know she has NO TIME. Thats all I hear.
What can I do...please someone...help me.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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