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aurey · 08-22-2006, 06:44 AM

I've had herceptin since last October, first weekly with taxotere chemo then this year three weekly. My onc will not have it that herceptin has side effects he says they are left over from taxotere. But diarrhea is definitely from herceptin, not bad but in middle of cycle get very sore from it. Hair growth slow to almost stop 2 1/2 inches only since January. Aching bones and joints, and a perpetually wet nose. Laughter or tears means a tap has turned on in my head and water runs, consequently wf my nose does dry a bit at night or under very dry conditions sort of crystals form in my nose and block it making nose very sore.
But as from 11th this month my heart is not performing well EF has gone down not certain to what but below 45% so herceptin was stopped by registrar, I have another heart echocardiogram on 4th September and booked to see onc 15th September in the meantime I'm in limbo, Herceptin I believe is the only drug that can keep the cancer away for me so the side effects have to be put up with but not having the herceptin is so very scary all is up in the air all over again.

08-22-2006, 06:44 AM	#18
aurey Member Join Date: Jan 2006 Location: Kent in England Posts: 12	herceptin side effects but fear when stopped I've had herceptin since last October, first weekly with taxotere chemo then this year three weekly. My onc will not have it that herceptin has side effects he says they are left over from taxotere. But diarrhea is definitely from herceptin, not bad but in middle of cycle get very sore from it. Hair growth slow to almost stop 2 1/2 inches only since January. Aching bones and joints, and a perpetually wet nose. Laughter or tears means a tap has turned on in my head and water runs, consequently wf my nose does dry a bit at night or under very dry conditions sort of crystals form in my nose and block it making nose very sore. But as from 11th this month my heart is not performing well EF has gone down not certain to what but below 45% so herceptin was stopped by registrar, I have another heart echocardiogram on 4th September and booked to see onc 15th September in the meantime I'm in limbo, Herceptin I believe is the only drug that can keep the cancer away for me so the side effects have to be put up with but not having the herceptin is so very scary all is up in the air all over again.