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Old 08-22-2006, 04:42 AM   #9
IRENE FROM TAMPA
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Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
Smile Sorry Sandy

that you are STILL waiting...

I certainly know what that is like. But it does sound like you are getting very close now. If you have signed the consent forms, had your echo, CT scan and they are formerly enrolling, it should be soon like they say. One they get the drug they will give you a quick look over and hand you the drug and away you go. Do you know the dosage for the Xeloda?

I was told 3300 mg daily was the starting protecol. I have 3 days left of my first cycle of the Xeloda now. Thursday is my last day for first cylcle and we leave on Friday for our trip. I have blood drawn on Wed. and see the onc on Thursday for results. Normally its drawn after 3 weeks but since we were scheduled to leave on our trip, we have to do at the 2 week period. We are all trying to work as best we can with the time frame of the trip. It will work out. I think they may have to reduce my dosage though of the Xeloda since I am getting mouth/throat sores and a bit of upset stomach. Great way to travel huh, but got to do what I got to do. Hopefully a lesser dose will work out for me. I took Xeloda a few years back and had to reduce then also. If I wasn't traveling it would not be so worrisome.

I will check in before I leave to see if you have heard anything new if not have a great time camping. It will do your mind and soul a lot of good.

Good luck Sandy
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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