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Old 08-18-2006, 07:09 PM   #2
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Carina,

I can't help you with allergic reaction to Herceptin. Just wanted to let you know that I started Herceptin on a 3 week schedule and after the first treatment went to every week. After my first 3 week infusion I had a severe headache for about a week and extreme pain in my bones. I am getting Herceptin only. I have been on weekly Herceptin and the bone pain is increasingly getting worse. I have only had this pain since starting Herceptin. Oncologist said it's not a side effect and sent me for a PET/CT scan which I had today. Will get the results next Thursday when I see her. If my scan comes back clean then I can only believe that it is the Herceptin causing the bone pain. If that is the case, I may think about stopping Herceptin since the pain is so severe that pain medication does nothing for it.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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