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Forum: Herceptin / Tykerb 10-10-2007, 06:43 AM
Replies: 10
Views: 3,197
Posted By Lala
Esther Wishing you the best in your scans and...

Esther
Wishing you the best in your scans and hoping it shows a clean liver.
I hope you tolerate the Herceptin and Tykerb combo; it certainly is interesting combo. Once again you are paving the...
Forum: Herceptin / Tykerb 10-10-2007, 06:36 AM
Replies: 4
Views: 2,201
Posted By Lala
There are no crystal balls that can accurately...

There are no crystal balls that can accurately predict the future. So why bother reading statistics I say. The bottom line is we are all very different and Tykerb is still breaking ground in...
Forum: Herceptin / Tykerb 10-10-2007, 06:28 AM
Replies: 10
Views: 3,130
Posted By Lala
Brony Have you considered a Second opinion in...

Brony
Have you considered a Second opinion in the USA, some hospitals offer this to international patients.

Here is a link to Memorial Sloan Kettering Cancer Center located in New York.
They...
Forum: Herceptin / Tykerb 10-10-2007, 06:18 AM
Replies: 3
Views: 1,657
Posted By Lala
Hello Sally, I had to take a break after my...

Hello Sally,
I had to take a break after my first round of Xeloda Tykerb.
I have had both doses lowered. I take my Xeloda 1 week on 1 week off now; this has helped with keeping my energy up. I...
Forum: Herceptin / Tykerb 09-19-2007, 01:04 PM
Replies: 5
Views: 2,079
Posted By Lala
Sandy I have been on Tykerb Xeloda since March...

Sandy
I have been on Tykerb Xeloda since March 07, I have not had any infections to date. Last year on a different chemotherapy I did have infections of the land down under kind. I think in general...
Forum: her2group 09-13-2007, 05:17 AM
Replies: 5
Views: 1,616
Posted By Lala
In answer to your question; In my experience I...

In answer to your question; In my experience I would say yes brain mets appeared even though other parts of my disease had improved. Even though my cat scans of the abdomen showed marked improvement...
Forum: her2group 09-13-2007, 05:01 AM
Replies: 29
Views: 2,866
Posted By Lala
Wishing you the best results.

Wishing you the best results.
Forum: her2group 09-13-2007, 04:56 AM
Replies: 4
Views: 1,413
Posted By Lala
Joe I applaud you for being the first website...

Joe
I applaud you for being the first website I have seen post a link for caregivers and men against breast cancer. I feel our caregivers do not get enough support and recognition for all they do...
Forum: her2group 09-13-2007, 04:39 AM
Replies: 7
Views: 1,391
Posted By Lala
Christine Its great to see you are doing well....

Christine
Its great to see you are doing well. I am thinking of you and wishing you the best results on your upcoming surgery and brain MRI.

Hug to you
Forum: her2group 09-13-2007, 04:33 AM
Replies: 4
Views: 1,318
Posted By Lala
Marlys I had issues with the chemotherapy drug...

Marlys
I had issues with the chemotherapy drug Carboplatin effecting my sense of smell and taste. I was over sensitized to many common odors. I would feel uncomfortable and sometimes feel like I had...
Forum: Herceptin / Tykerb 09-13-2007, 04:15 AM
Replies: 1
Views: 1,488
Posted By Lala
Esther I am glad you had a wonderful time....

Esther
I am glad you had a wonderful time. Living in Florida I have learned all to well with every chemotherapy treatment to use sun screen. I am glad you brought this up as many take warm holidays...
Forum: her2group 09-07-2007, 11:43 AM
Replies: 5
Views: 1,703
Posted By Lala
My sister had a hysterectomy and I gave her this...

My sister had a hysterectomy and I gave her this website to help her research. I too joined so I could learn more. Here is the website http://www.hystersisters.com/

Best of luck to you.
Forum: her2group 09-07-2007, 11:38 AM
Replies: 15
Views: 2,024
Posted By Lala
Congratulations to you! Celebrate and Dance...

Congratulations to you! Celebrate and Dance Sister Dance!
Forum: Herceptin / Tykerb 09-07-2007, 11:18 AM
Replies: 12
Views: 2,375
Posted By Lala
Laurie I sent you a private message.

Laurie
I sent you a private message.
Forum: Herceptin / Tykerb 09-06-2007, 11:21 PM
Replies: 12
Views: 2,375
Posted By Lala
Laurie Congratulations on 5 years!!! Welcome...

Laurie
Congratulations on 5 years!!!
Welcome to the midnite hour lol... Tykerb awakes me.. I suggest you post it on the main Her2 board area..More people look over there. By the way, a friend of...
Forum: her2group 09-06-2007, 10:59 PM
Replies: 23
Views: 2,796
Posted By Lala
Irene Sending you hugs and wishes of new...

Irene
Sending you hugs and wishes of new treatment success.
Avastin is a good one, I took it w herceptin for 6 months and it worked on my liver as well as my primary tumor.
Best of Luck to you!
Forum: her2group 09-06-2007, 10:51 PM
Replies: 6
Views: 1,373
Posted By Lala
Sherry There is another MD Anderson in Florida...

Sherry
There is another MD Anderson in Florida as well. Not as large but is still MDA here is weblink http://www.orlandoregional.org/mdanderson/index.aspx

also there is MD Anderson Physicians...
Forum: Herceptin / Tykerb 09-06-2007, 10:43 PM
Replies: 17
Views: 3,434
Posted By Lala
Kat Good Luck on your scans ! Thinking of...

Kat
Good Luck on your scans !
Thinking of you sending good thoughts.
Forum: Herceptin / Tykerb 09-06-2007, 10:40 PM
Replies: 12
Views: 2,375
Posted By Lala
Dorinda Thank you for the kind words. I often...

Dorinda
Thank you for the kind words. I often go to MDA, it's been a Blessing to me for sure. It would be great to meet some Cyber sisters there. Next time I head in that direction I will let you...
Forum: Herceptin / Tykerb 09-06-2007, 10:32 PM
Replies: 17
Views: 3,434
Posted By Lala
Michelle Congratulations on your scans. That...

Michelle
Congratulations on your scans. That is Great news.
I have dropped my doses of both drugs due to other side effects not heart related. I am on Tykerb @ 1000mg and Xeloda @ 2500mg. I know...
Forum: her2group 09-05-2007, 09:23 AM
Replies: 11
Views: 1,721
Posted By Lala
It all depends on how often you are in your...

It all depends on how often you are in your oncologists office and what treatments you are on.

My oncologist uses both the cea and ca 27-29 tumor markers.
The thought is both are needed to...
Forum: her2group 09-05-2007, 09:15 AM
Replies: 21
Views: 2,657
Posted By Lala
Congratulations To You! Dance Sister Dance!

Congratulations To You!
Dance Sister Dance!
Forum: her2group 09-05-2007, 09:10 AM
Replies: 9
Views: 1,695
Posted By Lala
I am so sorry you are in pain. There is truly...

I am so sorry you are in pain. There is truly nothing worse, I hope this stops soon.

I have heard taking Glucosamine works for joint pain and is used by many that take the hormone treatments.
Forum: her2group 09-05-2007, 09:03 AM
Replies: 21
Views: 2,973
Posted By Lala
♪ Happy Birthday Andi ♪ Celebrate the year...

♪ Happy Birthday Andi ♪

Celebrate the year and best wishes on your anniversary.
Forum: her2group 09-05-2007, 08:59 AM
Replies: 11
Views: 1,691
Posted By Lala
Congratulations on the Post Liver Resection ALL...

Congratulations on the Post Liver Resection ALL CLEAR!
That is wonderful news!
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