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Search: Posts Made By: VDC
Forum: General Cancer News 01-07-2021, 04:50 PM
Replies: 1
Views: 2,073
Posted By VDC
Re: Mayo Clinic to test vaccine for providing lifelong immunity against precancerous

I took part in the trial for DCIS. Finished the vaccine series in October 2020. I also had the chance to view the earlier phase 1 trial for women with more advanced disease. In that trial of the...
Forum: her2group 09-06-2020, 09:01 PM
Replies: 5
Views: 2,211
Posted By VDC
Re: Just accepted into clinical trial

Yes an MRI runs about $5000. A bit on the pricey side! I'm headed back to the PI of the study tomorrow and plan to ask about an MRI, but I will have to get my insurance to approve which is always a...
Forum: her2group 09-04-2020, 12:16 AM
Replies: 18
Views: 8,987
Posted By VDC
Re: Medical Marajuna Girls

Since the original author asked about medical cannabis, I"ll respond to that. BE VERY CAREFUL with cannabis. THC at levels above about 25 mg a day, suppresses the immune system. This can allow...
Forum: her2group 09-03-2020, 11:51 PM
Replies: 5
Views: 2,211
Posted By VDC
Just accepted into clinical trial

It has been 3.5 years since I last visited this support group. I was "fortunate" (or so we thought) and the cancer was gone. Then in July a recurrence....yeah..... hard to handle. I know I should...
Forum: her2group 06-15-2018, 01:03 AM
Replies: 32
Views: 15,805
Posted By VDC
Re: HER-2 Positive & Triple Negative = Cannabis Intervention

p.s. very very very little is absorbed with rectal use. It is literally "flushing $$$ down the toilet" There have been some studies where the blood level of cannabis was monitored after oral...
Forum: her2group 06-15-2018, 12:56 AM
Replies: 32
Views: 15,805
Posted By VDC
Smile Re: HER-2 Positive & Triple Negative = Cannabis Intervention

Let me clarify a bit on cannabis. I have been working with a researcher who is very well versed on cannabis. Here is what we know.


For HER2+ disease, there is an 80% likelihood that tumors...
Forum: her2group 06-15-2018, 12:27 AM
Replies: 3
Views: 5,321
Posted By VDC
Cannabis anyone?

I have hesitated to log in and post this....because frankly it goes against everything I have believed for years and years! But? Here is my experience and I can't explain it. I had HER2+ hormone...
Forum: her2group 03-24-2018, 11:36 AM
Replies: 5
Views: 4,544
Posted By VDC
Re: vit-D puzzle?

Great idea! ...but my calcium has stayed steady at about 9.5 or so. No changes there! I'm wondering if the brand of vit d I am taking isn't well absorbed. I did change brands about 6-9 months...
Forum: her2group 03-23-2018, 10:45 PM
Replies: 5
Views: 4,544
Posted By VDC
vit-D puzzle?

What are the current thoughts on Vit-D? I just requested a plethera of labs and some have already been processed (just had blood drawn today) What surprises me is my vit-D is low again at 19.3...
Forum: her2group 11-25-2016, 11:42 AM
Replies: 13
Views: 6,198
Posted By VDC
Re: DCIS & her2+?

Herceptin isn't an option for DCIS. I tried, I begged, I sought a second opinion. Because DCIS is not considered invasive it is NOT given for DCIS.....even when desired by the patient. Believe me,...
Forum: her2group 11-16-2016, 09:20 PM
Replies: 72
Views: 30,393
Posted By VDC
Re: I think I'm in trouble!

I have hesitated to post this because I know that my "bumps" and decisions don't in any way compare to what many of you have and are facing.

However, I changed my mind yesterday because I...
Forum: her2group 11-15-2016, 11:48 AM
Replies: 13
Views: 6,198
Posted By VDC
Re: DCIS & her2+?

The thing is, DCIS is NOT considered invasive. That means it lacks the ability to spread beyond the ducts or lobules. However, 25% of DCIS (and particularly high grade including HER2+) is found to...
Forum: her2group 11-14-2016, 10:24 PM
Replies: 72
Views: 30,393
Posted By VDC
Re: I think I'm in trouble!

I dont' think I've posted since July....mostly because I have been "processing" In July I signed the 24 page informed consent for the clinical trial in immunotherapy at the MD Anderson Cancer...
Forum: her2group 11-14-2016, 10:12 PM
Replies: 13
Views: 6,198
Posted By VDC
Re: DCIS & her2+?

DCIS is usually NOT treated with chemo or herceptin. It is usually treated with surgery followed by radiation. Mine was ER-, PR- and HER2 + at 3+. I begged for herceptin to try to reduce the...
Forum: her2group 08-05-2016, 07:55 PM
Replies: 51
Views: 13,952
Posted By VDC
Re: Resveratrol--interpret this article?

This is by FAR the best article I have EVER found on supplements and cancer. The file at the bottom (mmm3) is outstanding!

http://www.sciencedirect.com/science/article/pii/S1044579X15000887

I...
Forum: her2group 07-26-2016, 12:10 AM
Replies: 72
Views: 30,393
Posted By VDC
Re: I think I'm in trouble!

I've had some glitches with my insurance refusing to call MD Anderson 'in network' and of course MD Anderson wouldn't accept me even as a trial participant without "in network" status. This fighting...
Forum: her2group 07-13-2016, 08:29 AM
Replies: 72
Views: 30,393
Posted By VDC
Re: I think I'm in trouble!

Thanks Becky! Yes, they warned me about the hives and perhaps feeling like I had the flu for 4-6 hours.

I find it particularly interesting that my white blood count is below normal......even...
Forum: her2group 07-12-2016, 09:40 PM
Replies: 72
Views: 30,393
Posted By VDC
Re: I think I'm in trouble!

Signed my life away yesterday! 24 pages of informed consent, but I am now officially enrolled in this immunotherapy clinical trial! Now if my insurance and MD Anderson could just get on the same...
Forum: her2group 07-07-2016, 09:26 PM
Replies: 10
Views: 4,417
Posted By VDC
Re: vitamin D anyone?

I actually have high serum calcium (just above the normal range) ....not quite sure that THAT means! I'm betting there is some connection though.
Forum: her2group 07-04-2016, 11:13 AM
Replies: 72
Views: 30,393
Posted By VDC
Re: I think I'm in trouble!

Carol Ann, Thanks....actually I found it funny. I am NOT an alarmist and I just stood there stunned for a few minutes until I figure out exactly what had happened. Then I found it rather humorous! ...
Forum: her2group 07-04-2016, 10:59 AM
Replies: 10
Views: 4,417
Posted By VDC
Re: vitamin D anyone?

Thanks Becky! My PCP was concerned because my VITAMIN D.HYDROXY was 59.8 and she thought that was too high. She prefers 20-40, but of course she is just a PCP and not an oncologist. It made me...
Forum: her2group 07-03-2016, 11:21 PM
Replies: 72
Views: 30,393
Posted By VDC
Re: I think I'm in trouble!

Ah, the biopsy that keeps on giving..... ;-)
Friday I had the surprise of my life! 10 days post MRI guided biopsy I was examining my poor breast in the mirror trying to determine just how large...
Forum: her2group 07-03-2016, 11:11 PM
Replies: 10
Views: 4,417
Posted By VDC
vitamin D anyone?

I'm curious, does anyone know the "best" level for Vit D hydroxy etc for women with breast cancer? ...and does anyone know the research articles that talk about the link between vit D and breast...
Forum: her2group 06-30-2016, 08:13 PM
Replies: 51
Views: 13,952
Posted By VDC
Re: Resveratrol--interpret this article?

Yes, that is the stuff! Here is the link to the phase 1 study.

http://www.bzl101.com/Bionovo_Breast_Cancer_Research_Treatment.pdf

I have been unable to find the phase 1B study or any...
Forum: her2group 06-29-2016, 09:24 PM
Replies: 51
Views: 13,952
Posted By VDC
Re: Resveratrol--interpret this article?

Ever heard of this?
Scutellaria barbata



Been looking at research and ran across this little herb. There were phase 1 and 1B studies done in human metastatic breast cancer with some limited...
Showing results 1 to 25 of 118

 
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