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Search: Posts Made By: MAB1943
Forum: her2group 01-18-2008, 09:08 AM
Replies: 11
Views: 1,516
Posted By MAB1943
God bless the people on this site. It has been...

God bless the people on this site. It has been so difficult being on the herceptin, not because of the side effects but because no one can
give me answers, because no one knows, unless like me...
Forum: Herceptin / Tykerb 01-18-2008, 09:01 AM
Replies: 689
Views: 290,239
Posted By MAB1943
Dear Debbie, I wish I had this thread when I...

Dear Debbie, I wish I had this thread when I went to my onc a few weeks ago.
Her nurses assistant told me none of the same side effects I have been experiencing were from the herceptin.???? Now...
Forum: her2group 01-16-2008, 04:46 PM
Replies: 11
Views: 1,516
Posted By MAB1943
thank you, I started chemo dec 15 2006, once...

thank you, I started chemo dec 15 2006, once every weeks for 4 treatments. when I started the herceptin it was w/taxol and I began that in Marach of 07, it was once a week for 12 weeks then it was...
Forum: Herceptin / Tykerb 01-16-2008, 03:08 PM
Replies: 689
Views: 290,239
Posted By MAB1943
Harrie/kathy I am MAB. I was told by one dr....

Harrie/kathy I am MAB. I was told by one dr. that paget's is a invasive cancer of the nipple, with crusty red skin and discharge, but I didn't have any of that, but when th ey did the biop of the...
Forum: Herceptin / Tykerb 01-16-2008, 03:01 PM
Replies: 689
Views: 290,239
Posted By MAB1943
I think it would be a good idea to have the...

I think it would be a good idea to have the biopsy. No sense in taking any chances.
Let the biopsy determine if it is f rom the radiation or herceptin. Which I don't believe it is, but the strange...
Forum: Herceptin / Tykerb 01-16-2008, 02:57 PM
Replies: 689
Views: 290,239
Posted By MAB1943
Thumbs up Hi Johanna, well that about says it all. you...

Hi Johanna,
well that about says it all. you hit about every side effect I have.
I wish you good luck and better health ahead in 2008.
Glad your lung spots are unchanged. So i guess it was worth...
Forum: her2group 01-04-2008, 12:02 PM
Replies: 11
Views: 1,516
Posted By MAB1943
Herceptin Time Period

Anyone out there on herceptin less than 12 months?
Need to know ASAP.
Thanks,
Mary
Forum: Herceptin / Tykerb 12-17-2007, 12:05 PM
Replies: 689
Views: 290,239
Posted By MAB1943
Did Anyone Have Paget's ? Is It The Same As Ibc?

Did Anyone Have Paget's ? Is It The Same As Ibc?
Forum: Herceptin / Tykerb 12-13-2007, 11:22 AM
Replies: 36
Views: 15,094
Posted By MAB1943
Anne, I find there is no excuse for a doctor to...

Anne, I find there is no excuse for a doctor to treat you like that because her or she is in a bad mood. They can be in a bad mood at home not while they are practicing. It is very unprofessional...
Forum: Herceptin / Tykerb 12-08-2007, 09:20 PM
Replies: 36
Views: 15,094
Posted By MAB1943
I must add that I feel that I like the port more...

I must add that I feel that I like the port more than IV's I just hate IV's in the arm
and yes the only people versed in using the ports are chemo nurses etc. anything close to my neck sets up an...
Forum: Herceptin / Tykerb 12-08-2007, 09:14 PM
Replies: 36
Views: 15,094
Posted By MAB1943
hi Anne RM I have a port too and it was put in...

hi Anne RM I have a port too and it was put in Dec 06, I have had numerous trips to the outpatient dept to have it checked. Althought there is no flow problem yet, I do have discomfort at times. I...
Forum: her2group 11-02-2007, 02:39 PM
Replies: 12
Views: 1,505
Posted By MAB1943
yes I have nose bleeds constantly. I know what...

yes I have nose bleeds constantly. I know what you mean, my nose is always running and that causes me NOT to know that it is bleeding until I put the tissue up to my nose and then nose bleed. I...
Forum: Herceptin / Tykerb 10-31-2007, 08:44 PM
Replies: 25
Views: 20,314
Posted By MAB1943
I too have the nose running constantly and I have...

I too have the nose running constantly and I have constant sinus infections.
I also have foot spasms.
No swelling of legs or feet, but I would look into that if I were you. If you didn't have it...
Forum: Herceptin / Tykerb 10-19-2007, 05:05 PM
Replies: 689
Views: 290,239
Posted By MAB1943
@3 wk intervals for 90 min infusions. here are...

@3 wk intervals for 90 min infusions.
here are my side effects
muga down to 53% in Sept. they want me to cont w/herceptin thru March 08
runny nose/sinus swelling/nose bleeds.
terrible knee joint...
Forum: Herceptin / Tykerb 10-19-2007, 05:00 PM
Replies: 689
Views: 290,239
Posted By MAB1943
was put on herceptin w/taxol and finished taxol...

was put on herceptin w/taxol and finished taxol in June started herceptin @ 3wk
Forum: Herceptin / Tykerb 10-14-2007, 07:59 AM
Replies: 8
Views: 2,369
Posted By MAB1943
explaining herceptin to people

This may seem strange but I don't seem to be able to explain my herceptin therapy to people who ask me what it is. Can anyone out there
tell me what they say to people, I seem to studder and...
Forum: Herceptin / Tykerb 10-14-2007, 07:53 AM
Replies: 25
Views: 20,314
Posted By MAB1943
hi I am on herceptin alone @ 3 wk intervals/now...

hi I am on herceptin alone @ 3 wk intervals/now until March been on it since june
what side effects are you having. ? No one I know is on herceptin alone.

Don't know if problems I am having are...
Forum: Herceptin / Tykerb 10-14-2007, 07:47 AM
Replies: 19
Views: 8,132
Posted By MAB1943
anyone out there on just herceptin infusions @3...

anyone out there on just herceptin infusions @3 wk intervals? I am experiencing joint,muscle severe pain in my arthritic knees. Both, of them swell up and I have a really hard time walking. Also I...
Forum: Herceptin / Tykerb 09-27-2007, 03:34 PM
Replies: 689
Views: 290,239
Posted By MAB1943
Anyone out there on herceptin that has neuropathy...

Anyone out there on herceptin that has neuropathy of the feet and fingers from chemo?
Forum: Herceptin / Tykerb 09-27-2007, 03:32 PM
Replies: 46
Views: 6,440
Posted By MAB1943
VANESSA, don't worry about the weight gain. You...

VANESSA, don't worry about the weight gain. You are going t hrough so much right now and the steroids are horrific. Treat yourself good and indulge yourself. If possible exercise even if it is only...
Forum: Herceptin / Tykerb 09-25-2007, 06:36 PM
Replies: 46
Views: 6,440
Posted By MAB1943
Sounds like we really have a lot in common in our...

Sounds like we really have a lot in common in our thinking. Never thought I'd feel that at my age I would be eliminating those I felt were so close to me, but looks like when I made up my mind to...
Forum: Herceptin / Tykerb 09-25-2007, 06:10 PM
Replies: 46
Views: 6,440
Posted By MAB1943
thank you so much for the wise words. it really...

thank you so much for the wise words. it really does help to know there are others who do understand.
good luck and God Bless you as you battle this malady.
Mary
Forum: Herceptin / Tykerb 09-20-2007, 02:58 PM
Replies: 46
Views: 6,440
Posted By MAB1943
to all in this support group. Thank you all for...

to all in this support group. Thank you all for the important info, I searched so long to find a site that could relate and be informative about herceptin, and Thank God I found it. I just want to...
Forum: Herceptin / Tykerb 09-20-2007, 10:39 AM
Replies: 19
Views: 8,132
Posted By MAB1943
it is my opinion that the MUGA should have been...

it is my opinion that the MUGA should have been done before you started the herceptin and then at 3 or 6 month intervals, depending on how long you will be on it. I have been on taxol/herceptin for...
Forum: Herceptin / Tykerb 09-20-2007, 10:35 AM
Replies: 689
Views: 290,239
Posted By MAB1943
I am on 3 week infusions of herceptin, I have the...

I am on 3 week infusions of herceptin, I have the following side effects
Ears clogged, memory, bones ache, tired, insomnia or restless sleeping,and very slight nausea.
Showing results 1 to 25 of 32

 
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