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Forum: her2group 09-02-2013, 02:40 PM
Replies: 21
Views: 6,091
Posted By Del
Re: Has anyone been on TDM-1 for more than 2 years?

I've been on T-DM1 for 3 years now on the Emilia trial. Great to hear Kathy that you've been on it for 4 years! I'm the longest running patient at my hospital, so it's great to hear others have been...
Forum: her2group 02-26-2013, 09:41 AM
Replies: 30
Views: 5,399
Posted By Del
Re: Kadcyla/TDM1 CELEBRATION @ Genentech:)

I'm also very excited about the approval...now waiting for Health Canada. And good to know I wasn't the only one that didn't like the new name! But thanks for the explanation Chrisy, that does help...
Forum: her2group 12-28-2012, 06:52 AM
Replies: 9
Views: 2,148
Posted By Del
Re: I think I found the culprit to my anxiety

Hi Tammy,
This sounds like a very high dose of Zopiclone! I am also prescribed Zopiclone at 7.5mg, but I am only to take a HALF a pill when needed. Two pills at a time seems very high! And recently...
Forum: her2group 06-01-2012, 08:44 PM
Replies: 23
Views: 4,455
Posted By Del
Re: TDM-1 in the news

And the results of the EMILIA trial are being presented at the ASCO conference Sun afternoon. Exciting times! Now hopefully the ball keeps rolling!!
Forum: her2group 05-03-2012, 08:56 AM
Replies: 46
Views: 4,095
Posted By Del
Re: Finally! Shrinkage!

Congratulations! Wonderful news! As I look at your signature it appears that I am following closely in your treatment/response times. You have probably outlined this before, but can you remind me...
Forum: her2group 04-08-2011, 07:02 PM
Replies: 5
Views: 1,557
Posted By Del
Re: Anyone with liver cancer, please reply

Hi Adriana,
I am also on T-DM1, and my liver enzymes both rose like crazy (both AST and ALT). They were so high that I had to be reduced to a lower dose after my first treatment, and they were...
Forum: her2group 10-16-2010, 07:07 PM
Replies: 91
Views: 10,041
Posted By Del
Re: Liver Enzyme ?

Hi Pink,
My enzymes were around 70 (I don't know which one) about a month ago, and I had just had the flu 2 weeks before, so I'm betting on the cold/flu. Now my latest measurement has them at 200...
Forum: her2group 07-18-2010, 06:46 PM
Replies: 8
Views: 3,374
Posted By Del
Re: Recovery after Oophorectomy

Yes, I did have a biopsy, and they found that it is now highly ER+, 70-80%. My primary cancer in my breast was only <10%, and the mets in my liver were ER-. So things definitely can change!! It is...
Forum: her2group 07-18-2010, 01:19 PM
Replies: 8
Views: 3,374
Posted By Del
Recovery after Oophorectomy

I'm scheduled for an oophorectomy this week, and I was wondering what I can expect in terms of recovery. How long before I'm up to chasing after my kids again?

I'm also entering a T-DM1 trial in...
Forum: her2group 08-31-2009, 07:42 PM
Replies: 25
Views: 3,640
Posted By Del
Re: Roll Call Long Time Herceptin Users

I've been on Herceptin for just over 2 years, since May 2007, which isn't very long compared to some warriors. No problems with my heart, only side effect seems to be occasional fevers after...
Forum: her2group 06-10-2009, 06:46 PM
Replies: 26
Views: 2,386
Posted By Del
Courtney, that is such wonderful news!! I had...

Courtney, that is such wonderful news!! I had been wondering how things were going for you...So exciting to hear that they're almost gone!! Thank you God!
Forum: her2group 04-07-2009, 07:27 PM
Replies: 36
Views: 4,396
Posted By Del
Oh Courtney, my heart aches for you. What...

Oh Courtney, my heart aches for you. What frustrating news. I will be praying that God would show you the steps you should take now to ZAP these buggers!! I also hate cancer so much (as, of course,...
Forum: her2group 01-18-2009, 02:58 PM
Replies: 20
Views: 6,210
Posted By Del
Just after diagnosis almost 2 years ago, I asked...

Just after diagnosis almost 2 years ago, I asked my oncologist if it was okay to take regular saunas (since I was on chemo, and didn't want it to flush it out of my system too quickly, etc.). She was...
Forum: her2group 12-19-2008, 01:48 PM
Replies: 11
Views: 1,998
Posted By Del
Stage IV and reconstruction

I was wondering if anyone who is stage IV has had reconstruction, and if you think it's worth it? I was diagnosed in April, 2007, with 7 mets in my liver. After chemo and Herceptin my liver now shows...
Forum: her2group 12-03-2008, 01:15 PM
Replies: 9
Views: 1,916
Posted By Del
Thank you so much for posting the link to...

Thank you so much for posting the link to youtube!! I was finally able to watch the movie yesterday (I live in Canada). What a miracle it was that Herceptin came to be!
Forum: her2group 07-18-2008, 12:58 PM
Replies: 2
Views: 1,695
Posted By Del
Anyone heard of Pazopanib?

I've been lurking on this website for about a year. I have learned so much (much more than from my oncologist!), and appreciate this site very much! The collective experiences and wisdom on this site...
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