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Search: Posts Made By: Joannie
Forum: Herceptin / Tykerb 03-07-2008, 04:49 PM
Replies: 31
Views: 4,549
Posted By Joannie
SheryG: I have been on the TEACH Trial since...

SheryG:
I have been on the TEACH Trial since May of 2007. The diarrhea was pretty constant in the beginning, but never so bad that I had to take any meds to stop it. It was on and off over a 3...
Forum: Herceptin / Tykerb 02-29-2008, 06:24 AM
Replies: 31
Views: 4,549
Posted By Joannie
SherryG: I too was nervous taking Tykerb. The...

SherryG:
I too was nervous taking Tykerb. The unknown of what the drug can do is sometimes overwhelming. Since I never received Herceptin, I really was greatful to get the opportunity to try...
Forum: Herceptin / Tykerb 06-02-2007, 01:52 PM
Replies: 31
Views: 4,549
Posted By Joannie
Well, I have completed 15 days so far of the...

Well, I have completed 15 days so far of the Tykerb pill. I believe that I have received the "real" thing. I had terrible stomach cramps on day 2 and 3 and by day 4 I had mouth sores, which...
Forum: Herceptin / Tykerb 05-17-2007, 12:36 PM
Replies: 31
Views: 4,549
Posted By Joannie
I received the pills today. I will be taking 6...

I received the pills today. I will be taking 6 pills a day for one year. I was instructed to take them 1 hour before/after a meal, at the same time each day. Does anyone have any suggestions for a...
Forum: Herceptin / Tykerb 05-16-2007, 09:26 AM
Replies: 31
Views: 4,549
Posted By Joannie
Accepted into the Trial

I just received a call from the clinic who is doing the TEACH Trial. All my tests came back good and I'm going tomorrow to get the pills to begin the trial. God willing, it will be the "real"...
Forum: Herceptin / Tykerb 05-10-2007, 01:41 PM
Replies: 31
Views: 4,549
Posted By Joannie
I spent the day going through all the testing to...

I spent the day going through all the testing to see if I qualify for the Tykerb TEACH Trial. I am keeping my fingers crossed! They took about 6-7 viles of blood, EKG and and echo. Also a urine...
Forum: Herceptin / Tykerb 05-02-2007, 06:12 PM
Replies: 31
Views: 4,549
Posted By Joannie
TEACH Trial

I had my appt. today with the clincial trial doctor for the TEACH Trial. He was very informative, but I have to say from all the reading I've done on this website, there wasn't much I didn't know...
Forum: Herceptin / Tykerb 04-25-2007, 11:53 AM
Replies: 31
Views: 4,549
Posted By Joannie
Barbara: I checked into a trial out in CA,...

Barbara:

I checked into a trial out in CA, specifically for ladies who never received Herceptin. I believe the criteria was you had to have been diagnosed in the year 2004 and later. I was...
Forum: Herceptin / Tykerb 04-24-2007, 04:15 PM
Replies: 31
Views: 4,549
Posted By Joannie
Thanks Joe for taking that extra step. ...

Thanks Joe for taking that extra step. Ironically, I left yet another message yesteday with the number that I've been calling for quite some time. I received a call from them first thing this a.m. ...
Forum: Herceptin / Tykerb 04-23-2007, 06:37 AM
Replies: 31
Views: 4,549
Posted By Joannie
Alaska Angel: Those were the actual numbers...

Alaska Angel:

Those were the actual numbers that I called. I just pulled the number from the top of my head! I have called several times and got a return phone call once. They left a message to...
Forum: Herceptin / Tykerb 04-22-2007, 03:54 PM
Replies: 31
Views: 4,549
Posted By Joannie
Tykerb - TEACH TRIAL

Good Evening All:
I'm one of the gals that never received Herceptin, due to it being approved after my chemo treatment was completed. I was diagnosed in 2003. I've been looking into the TEACH...
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