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Search took 0.01 seconds. Search: Posts Made By: SunDiego
Forum: her2group 01-19-2012, 09:18 AM
Replies: 41
Views: 21,031
Posted By SunDiego
Thumbs up Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

It's been a while since I've last posted an update... but not for any other reason than life has returned to a level of normalcy.

My wife's last 13 months of scans, including a PET/CT, bone scan...
Forum: her2group 04-01-2011, 10:40 AM
Replies: 13
Views: 3,524
Posted By SunDiego
Re: Cea increase??

"I will be fine."
Forum: her2group 02-09-2011, 12:08 PM
Replies: 41
Views: 21,031
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Hi everyone, sorry for no recent updates, but returned to the office today after being out for the last few days doing updated scans... GREAT NEWS!
First PET/CT Aug 5
SUV 10.8
Size 3.7 x 3.2...
Forum: her2group 11-30-2010, 04:05 PM
Replies: 41
Views: 21,031
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

No radiation current in the plans. Thinking we may want to avoid Xeloda/Tykerb since it seems the only recruiting TDM-1 trial excludes those who have previously used Xel/Tyk. Would be a shame to...
Forum: her2group 11-30-2010, 11:37 AM
Replies: 41
Views: 21,031
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Just a quick update on my wife's tumor marker improvements (CA 15-3)

1003 as of 8/3/2010 (first reading pre-first chemo)
527 as of 8/30
334 as of 9/15
102 as of 10/11
47.9 as of 10/29
25.3...
Forum: her2group 11-04-2010, 11:26 AM
Replies: 8
Views: 1,872
Posted By SunDiego
Re: Constant all over body pain (m)...

Didn't see it listed anywhere, so perhaps talk with your Onc about whether a biophosphonate (Zometa) might be good for you. I'd also demand a bone scan to check for mets. Even another PET/CT. It...
Forum: her2group 11-04-2010, 11:15 AM
Replies: 41
Views: 21,031
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Just a quick update...
CA 15-3
1003 as of 8/3 (first reading)
527 as of 8/30
334 as of 9/15
102 as of 10/11
47.9 as of 10/2
It's amazing to see this tumor marker go from over 1000 to under...
Forum: her2group 10-29-2010, 01:40 PM
Replies: 18
Views: 2,413
Posted By SunDiego
Re: I could really use some input

Be sure to get the PET/CT if you haven't already done it. CT alone isn't sufficient. You need a PET to see if there is any metabolic activity. Wouldn't hurt to also get a bone scan and brain MRI just...
Forum: her2group 10-29-2010, 10:17 AM
Replies: 18
Views: 2,413
Posted By SunDiego
Re: I could really use some input

DeenaH, I wish I could tell you that a score of 0 on the CTC means NED, however I do not believe this to be true. My wife has had two CTC tests done, both of which have come back at 0, however she...
Forum: her2group 10-28-2010, 01:48 PM
Replies: 18
Views: 2,413
Posted By SunDiego
Re: I could really use some input

My wife had the good fortune of being seen by Dr. Slamon this week. For those interested in seeing him, he does not take new oncology patients, but is willing to see patients for consultative...
Forum: her2group 10-20-2010, 03:16 PM
Replies: 10
Views: 2,322
Posted By SunDiego
Re: HER2 Serum Test

Thanks for sharing.
Forum: her2group 10-15-2010, 12:50 PM
Replies: 10
Views: 2,322
Posted By SunDiego
Re: HER2 Serum Test

wanted to bring this topic up again for discussion. My wife (Stage IV, single liver met), had this test done 10/11 and the result came back with 5.9 (which seems to fall at the very low end of...
Forum: her2group 10-14-2010, 12:37 PM
Replies: 3
Views: 1,677
Posted By SunDiego
Re: keep on trying...different regimens even beyond third line for Stage IV have effe

Prolonging First-Line Chemotherapy Improves Outcomes for Patients With Metastatic Breast Cancer, Meta-Analysis Shows


http://www.sciencedaily.com/releases/2010/10/101012101845.htm
Forum: her2group 10-14-2010, 12:33 PM
Replies: 41
Views: 21,031
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Wife just completed 4th of 6 TCH treatment. Ran tumor marker tests on the day of treatment and it dropped nearly 70% in the last month.

CA 15-3
1003 as of 8/3 (first reading)
527 as of 8/30...
Forum: her2group 09-16-2010, 11:18 AM
Replies: 7
Views: 7,711
Posted By SunDiego
Re: Best imaging method for dx mets?

MRI with contrast and PET/CT as Rich said.
Forum: her2group 09-16-2010, 11:09 AM
Replies: 9
Views: 1,749
Posted By SunDiego
Re: Circulating Cell Recurrance test

Wife had initial dx at Stage IV with a single liver met. Did the CTC before first chemo treatment last month and score was a 0. Unsure how to interpret that given the metastasis.
Forum: her2group 09-16-2010, 11:03 AM
Replies: 41
Views: 21,031
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Just wanted to give a quick update. My wife did a follow up PET/CT yesterday. First TCH was done on Aug 9, a second on Aug 30, and third will be on Monday. The numbers related to the isolated liver...
Forum: her2group 09-01-2010, 12:27 PM
Replies: 41
Views: 21,031
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Wife's second TCH was Monday... Tumor Marker CA 15-3 was redone and dropped from 1003 to ~550 (still seems awefully high, but Onc was thrilled). Full healthy thick head of hair still (those on TCH,...
Forum: her2group 08-27-2010, 10:37 AM
Replies: 32
Views: 3,804
Posted By SunDiego
Re: Genentech receives FDA Refuse to File Letter for T-DM1

This makes me sick.

http://www.google.com/hostednews/ap/article/ALeqM5gMPe52K71ikVsV_T-WR5Ef0fBFFwD9HRUKQG0

Here is the key sentence in the release: "In its review of the BLA, the FDA stated...
Forum: her2group 08-23-2010, 08:18 AM
Replies: 41
Views: 21,031
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Question all... my wife just started TCH two weeks ago (1 of 6 completed). Been reading a lot about Tykerb as well and think it could be a good addition to the treatment. Is that possible?
Can one...
Forum: her2group 08-21-2010, 10:22 PM
Replies: 8
Views: 1,468
Posted By SunDiego
Re: brain mri

delete message
Forum: her2group 08-20-2010, 12:44 PM
Replies: 53
Views: 7,748
Posted By SunDiego
Re: Pet Scan for Stage 1?

initial Her2+++ was 7.4 on FISH

Liver path just came in:
Metastatic adenocarcinoma c/w breast primary
ER is positive in 80% of tumor cells.
PR is negative.
Her2/neu is positive (3+,...
Forum: her2group 08-20-2010, 10:48 AM
Replies: 53
Views: 7,748
Posted By SunDiego
Re: Pet Scan for Stage 1?

Rich, here is the full initial path & background (excluding all the liver stuff which changes it).

http://her2support.org/vbulletin/showthread.php?p=232164#post232164

Thanks for those...
Forum: her2group 08-20-2010, 10:24 AM
Replies: 53
Views: 7,748
Posted By SunDiego
Re: Pet Scan for Stage 1?

No PET scan before surgery - but MRI w/ Mammograms. Ironically the initial MRI showed the liver mass in passing, which led to two additional MRIs with contrast. Despite that they did not request the...
Forum: her2group 08-20-2010, 09:59 AM
Replies: 53
Views: 7,748
Posted By SunDiego
Re: Pet Scan for Stage 1?

My wife had a lumpectomy (7mm IDC with 0/13). Doctors locally staged her at 1b. We didn't like the direction the care was going locally, so we went to another med onc who requested full restaging....
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