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Search: Posts Made By: catalina
Forum: her2group 02-02-2015, 08:13 AM
Replies: 12
Views: 2,315
Posted By catalina
My wifes fight- long

My wife of 33 years was diagnosed with invasive ductal HER+++ in August 2012 during her annual mammogram.

Further scans showed liver and lung involvement, so she was diagnosed at stage 4. She...
Forum: Caregivers Corner 12-29-2014, 06:52 AM
Replies: 15
Views: 9,711
Posted By catalina
Re: Tired and angry

We found out Christmas Eve that my wife's cancer has now gone to her meninges. This is a dire situation and we are now talking about risk versus reward of further treatment. I am at a loss. Our kids...
Forum: Caregivers Corner 12-22-2014, 07:20 AM
Replies: 15
Views: 9,711
Posted By catalina
Tired and angry

I am suprised but I am becoming tired and angry. My wife had cerebellar surgery and she is on high doses of decradon. So she does not sleep much. So, neither do the caregivers. it is wearing on us...
Forum: her2group 12-16-2014, 01:47 PM
Replies: 7
Views: 2,201
Posted By catalina
Re: 3 + years stage IV 2 + years brain mets

Ok. We have concerns about her confusion and lack of mobility. This is a pretty scary surgery and we did not understand the recovery needed. The Dr's seem to think things are great. PT/OT might help...
Forum: her2group 12-16-2014, 01:29 PM
Replies: 7
Views: 2,201
Posted By catalina
Re: 3 + years stage IV 2 + years brain mets

I second the NCI research centers. Their imaging is better and you tend to get cutting edge care.
Forum: her2group 12-16-2014, 07:28 AM
Replies: 11
Views: 2,195
Posted By catalina
Re: MET devastation & desperate for advice

We found two clinical trials for my wife:
1. http://clinicaltrials.gov/show/NCT01921335 - This is the ARRY 380 trial
2. http://clinicaltrials.gov/show/NCT01494662 - This trial involves Neratinib in...
Forum: her2group 12-15-2014, 10:32 AM
Replies: 7
Views: 2,084
Posted By catalina
Re: Cerebral craniotomy

Thanks for asking. Surgery went well. She was in Nuero ICU for 2 days, then to her own room. We got her home on Saturday. She has significant gait/balance issues and has some significant PT coming....
Forum: her2group 12-12-2014, 07:53 AM
Replies: 7
Views: 2,084
Posted By catalina
Cerebellar Craniotomy

My wife has brain mets and we have gone the WBR, Gamma knife Tykerb route. We are signing up for the Neratinib clincal trial. Last week she started showing alarming symptoms and we found out that...
Forum: her2group 11-24-2014, 06:54 AM
Replies: 6
Views: 2,763
Posted By catalina
Re: What can I expect from brain rads?

I saw on your husband's post you were having gamma knife. It is not bad, a bit of uncomfort during the procedure but very easily tolerated with little or no hair loss. She was back at work the next...
Forum: her2group 11-18-2014, 08:06 AM
Replies: 8
Views: 3,189
Posted By catalina
Re: Psuedeo-progression in Brain Mets

Thanks! I found it at Dana- Farber. We have tried Tykerb with no luck.
I sent the Dr and email and she quickly replied. They are sending the exclusion checklist to her Drs.
I can't tell you how...
Forum: her2group 11-18-2014, 07:38 AM
Replies: 8
Views: 3,189
Posted By catalina
Re: Psuedeo-progression in Brain Mets

We found out late yesterday that her condition was caused by tumor progression. There are no more radiological options. Where can we find the ARRY- 380 clinical trial info?
Forum: her2group 11-17-2014, 10:40 AM
Replies: 8
Views: 3,189
Posted By catalina
Psuedeo-progression in Brain Mets

My wife has her2+ BC and was diagnosed last year with brain mets. She had whole brain, then gamma knife in May when they started progressing. Now she has edema again causing her to be dizzy, fatigued...
Forum: Diet and Nutrition 11-06-2014, 09:06 AM
Replies: 5
Views: 7,260
Posted By catalina
My wife has no appettite

She was diagnosed 2 years ago with HER2, ER-, stage 4 with liver mets. She responded very well to chemo and had a full pathological response. She had headaches last summer and they found 12+ CNS...
Forum: Caregivers Corner 08-18-2014, 12:13 PM
Replies: 6
Views: 7,627
Posted By catalina
Re: The cancer roller coaster

She is doing better. She had an 8 hour course of gamma knife treatment for 12+ tumors, and responded well to it with no side effects. The oncologist took her off of Tykerb because it had no affect. ...
Forum: Caregivers Corner 05-09-2014, 07:18 AM
Replies: 6
Views: 7,627
Posted By catalina
Re: The cancer roller coaster

She is still taking Herceptin every three weeks. She had significant pan colitis and the Oncologist thought that Tykerb was the least disruptive to her stomach. The Radiation Oncologist and...
Forum: Caregivers Corner 05-08-2014, 07:20 AM
Replies: 6
Views: 7,627
Posted By catalina
The cancer roller coaster

And it is not a fun one. My wife was diagnosed with HER2 BC August 12. She had a great response to herceptin and chemo, then had bad headaches in August 13. She had 10+ brain mets but cancer free...
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