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Search: Posts Made By: michka
Forum: her2group 07-14-2017, 11:55 AM
Replies: 7
Views: 5,293
Posted By michka
Re: ONT-380/Tucatinib trial? Anybody has contact with Cascadian Therapeutics?

I just got an answer from the lab. 2 sites may open soon in Paris!
Now, I have to contact them.
Forum: her2group 07-14-2017, 09:54 AM
Replies: 7
Views: 5,293
Posted By michka
ONT-380/Tucatinib trial? Anybody has contact with Cascadian Therapeutics?

Hello to all.
I am still on Halaven+Herceptin and it is still working for my lung and liver mets. However, my brain mets are stable and I wanted to enter the ONT-380/Tucatinib trial that also...
Forum: her2group 06-09-2017, 09:42 AM
Replies: 37
Views: 21,251
Posted By michka
Re: Good and Bad News

Thanks to all for your kind answers.

Lani, thanks once more for the precious information. I did not know about the problem between TDM1 and radiation.
On Monday I am going to have a "lumbar...
Forum: her2group 06-04-2017, 02:24 AM
Replies: 37
Views: 21,251
Posted By michka
Good and Bad News

Hello to all. Here I am back in the HER2 group. Not that I ever left it but last September a liver biopsy showed I was no longer HER2 after more than10 years. The oncs said that happened after a long...
Forum: her2group 02-26-2017, 06:43 AM
Replies: 23
Views: 10,010
Posted By michka
Re: Looking for michka

I first want to thank you all for still thinking of me. It brings tears to my eyes. Please forgive me for not giving news. It is not very good so I do not like sharing it.
After Kadcyla stopped...
Forum: her2group 10-15-2016, 01:11 AM
Replies: 13
Views: 5,173
Posted By michka
Re: My Husband calls it my onc's victory lap...

Hi Ceesun! I am so happy to read the good news.
Ixempra might be an additional weapon for me.
I will post later about myself. Right now it is complicated.
Why do they want to do radiation to the...
Forum: her2group 09-14-2016, 05:49 AM
Replies: 4
Views: 4,218
Posted By michka
Not HER2 anymore

Hello HER2 friends,

I just got the report from my liver biopsy.

ER+ 100% PR 10% and HER2 one + considered not HER2

I am so surprised after 10 years! No wonder Kadcyla stopped working.

Forum: her2group 09-08-2016, 06:28 AM
Replies: 1
Views: 3,561
Posted By michka
Pertuzumab for treated metastatic patients in Europe

Hello all,

I am going crazy trying to get Pertuzumab in France but as you know the guidelines (FDA Europe...), it is for first line or for never treated metastatic patients.
In the States I see...
Forum: her2group 08-15-2016, 11:56 AM
Replies: 11
Views: 5,756
Posted By michka
10 years and in trouble

Hi All. I was hoping to post a positive message for my 10th year on the cancer road but the report of my last liver MRI is not too good.
End of May, a MRI showed that the tumors in the liver had...
Forum: her2group 06-30-2016, 02:59 AM
Replies: 8
Views: 7,616
Posted By michka
Re: Kadcyla and Keytruda Information and side effects

Hi Fern
I am so sorry this is happening. I was hoping with you that it would be a good combo. Now you have to figure out a new plan with your oncs so I am sending hugs and strength across the ocean.
Forum: her2group 06-28-2016, 02:05 AM
Replies: 17
Views: 4,448
Posted By michka
Re: 11 years for me!!

Congratulations Suzan!
Forum: her2group 06-10-2016, 01:25 AM
Replies: 13
Views: 6,024
Posted By michka
Re: MM-302: HERMIONE study

Thank you Joan for sharing this information. I am always happy to see your posts and admire that you are so active at Asco! I hope you are well.
Forum: her2group 05-26-2016, 07:18 AM
Replies: 36
Views: 13,689
Posted By michka
Re: 12 years Stage 4 - Still A-OK

I am happy to read this good news Kim! I hope you were able to get the "booster.
Forum: her2group 05-21-2016, 03:02 AM
Replies: 10
Views: 5,289
Posted By michka
News. Back on Kadcyla

Hello to you all.
I have not posted much these last 2 or 3 months because the stupid cancer came back in my liver. TDM1/Kadcyla saved me 4 years ago. I became Ned in 4 rounds. I took it 3 years and...
Forum: her2group 05-20-2016, 09:31 AM
Replies: 10
Views: 4,559
Posted By michka
Re: What next?

Hi Amy, I am so sorry to hear things are "lighting up" again. I hate things 'lighting up"...
Becky suggested Navelbine with H and P, good idea.
Why not Kadcyla again, even if it half worked, but...
Forum: her2group 03-09-2016, 03:26 AM
Replies: 4
Views: 3,979
Posted By michka
Post Node biopsy. What should I ask?

Since I stopped TDM1 a year ago I have MRIs every 3 months. In January a strange node lit up near a kidney and it also lit up on the Pet/Scan I did right after. Nothing else lit up. After taking...
Forum: her2group 02-26-2016, 09:00 AM
Replies: 10
Views: 3,578
Posted By michka
Re: Still Here

I am happy you are well Kim. Thank you for posting. It is important to know from time to time that many of us are just going on with their life.
Forum: her2group 02-03-2016, 03:33 AM
Replies: 389
Views: 135,969
Posted By michka
Re: Calling all stage iv sisters

Dear Jackie, I am so sorry to read that you have to go back into the fight once more. Today is Wednesday. I am thinking of you and I am hoping your oncologist is able to give a clear diagnosis and...
Forum: her2group 01-12-2016, 04:11 AM
Replies: 20
Views: 6,130
Posted By michka
Re: Yan Yan is in heaven

I am so sorry to hear this terrible news. My thoughts go to YanYan's family and friends. She fought so hard. It is difficult to accept she is gone. When will there be a cure?
Forum: her2group 12-23-2015, 02:35 AM
Replies: 17
Views: 8,255
Posted By michka
Re: AI and Hair Loss

I understand that this can make you upset! I was on AI and did not experience that SE but it can happen from what I know. But being only 5% ER+ I would stop. The benefits for a 5% ER+ are so small...
Forum: her2group 12-18-2015, 02:50 AM
Replies: 20
Views: 6,716
Posted By michka
Re: Progression, starting TDM1

I am so happy for you Tracy! What a roller coaster ride!
Forum: her2group 12-16-2015, 03:11 AM
Replies: 22
Views: 8,333
Posted By michka
Re: Approaching 5 yr cancerversary but running out of options

YanYan I am sorry to read your are facing progression. I do not see why you cannot go back to chemo, even one you already had and that worked for everything except for your skin. You have to take...
Forum: her2group 12-14-2015, 09:17 AM
Replies: 12
Views: 4,050
Posted By michka
Forum: her2group 12-14-2015, 09:15 AM
Replies: 15
Views: 6,638
Posted By michka
Forum: her2group 12-14-2015, 08:53 AM
Replies: 4
Views: 3,754
Posted By michka
Re: SABCS Th3resa: TDM-1 improved overall survival4 heavilypretreated her2+ StageIVs

I was part of the Th3resa trial, phase 3.
44 months now and still Ned. I hate to write this by "superstition" but I want to share this good news for all women starting Tdm1/Kadcyla or hesitating....
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