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Forum: her2group 09-20-2016, 07:27 AM
Replies: 4
Views: 4,409
Posted By Jane
How long did you stay on Arimadex

Hi,
I'm in my 11th year of taking Arimadex, after a bilateral mastectomy in 2005 at the age of 47.

I'm waiting to hear back from my oncologist to see if she wants me to stop. I just had a Dexa...
Forum: her2group 11-14-2014, 01:10 PM
Replies: 4
Views: 1,624
Posted By Jane
swelling in arm pit -- am I right to be very concerned?

I had a bilateral mastectomy in 2005; cancer was in my right breast and 3 nodes. Left breast was removed prophylactically, no lymph nodes taken on that side. I've had no problems or issues at all --...
Forum: her2group 10-27-2013, 10:18 AM
Replies: 17
Views: 1,998
Posted By Jane
Re: braless

I had a bilateral mastectomy in 2005 at the age of 45.

I have decided not to do reconstruction (hate hospitals and continual doc appts). I went braless at first; then switched to Coobies bras with...
Forum: her2group 01-13-2012, 01:09 PM
Replies: 43
Views: 5,036
Posted By Jane
Re: more bumps in the road

Pam,
I am praying for you - and thinking about you a great deal. You have been through so very much.

I pray that you will feel God's presence in your room and that He will give you emotional and...
Forum: her2group 01-04-2012, 12:27 PM
Replies: 57
Views: 7,739
Posted By Jane
Re: Courtney Needs Our Thoughts & Well Wishes

Courtney,
I am so praying for you.
Your posts have always impressed me -- you have been so active through all this cancer stuff ...
May God heal you and help you rally.
I hope you can feel all...
Forum: her2group 01-03-2012, 11:17 AM
Replies: 57
Views: 7,739
Posted By Jane
Re: Courtney Needs Our Thoughts & Well Wishes

What is Courtney's CaringBridge link? I'm sorry but I can't find it in this thread -

many thanks,
jane
Forum: her2group 03-04-2011, 06:58 AM
Replies: 77
Views: 9,623
Posted By Jane
Re: brain mets

Dear Pam,
I'm sorry to hear about the brain mets. Hopefully, your doctors will do the right treatments and you will end up being like a number of other incredible women on this board living with...
Forum: her2group 12-27-2010, 08:55 AM
Replies: 28
Views: 3,375
Posted By Jane
Re: surgery complications - or what?

Pam,
I've been following your posts and I'm so sorry that you are having such an incredibly tough time. You are such a fighter, I can just tell from your posts -

I just wanted to write to let you...
Forum: her2group 12-08-2010, 09:41 AM
Replies: 36
Views: 4,255
Posted By Jane
CNN's email to comment on appalling comments about Eliz. Edwards

Ladies,
I just read the comments from CNN correspondent Gloria Bolger, spoken today on Wolf Blitzer's Situation Room show. Thanks to this board for flagging this totally offensive and inappropriate...
Forum: her2group 09-30-2010, 10:03 AM
Replies: 22
Views: 3,255
Posted By Jane
Re: new diagnosis in addition to bc?

Pam,
I hope the new diagnosis is helpful and can bring you to a better place. You sound as though you have really been struggling.

I have an autoimmune disease called vasculitis and I took high...
Forum: her2group 09-14-2010, 06:21 AM
Replies: 9
Views: 1,439
Posted By Jane
Re: Neuropathy symptoms/needles in surgery arm?

Dear HER2 friends,
Thank you so much for all of your insights and suggestions. They are extremely helpful.

And Sassy, yes, I am ER/PR positive and am on Arimadex.

When I called the EMG lab...
Forum: her2group 09-13-2010, 10:12 AM
Replies: 9
Views: 1,439
Posted By Jane
Neuropathy symptoms/needles in surgery arm?

Hi folks,

Two questions for this wonderful board:

1.)Has anyone had these symptoms in their surgery-side arm and been diagnosed?

I've been waking up the past two months in the middle of the...
Forum: her2group 12-19-2007, 06:57 PM
Replies: 10
Views: 1,344
Posted By Jane
Thank you everyone who has answered. I truly...

Thank you everyone who has answered. I truly appreciate the wisdom of the men and women of this organization!

I did get results back today from the first culture I had last Thursday - there is no...
Forum: her2group 12-19-2007, 06:30 AM
Replies: 10
Views: 1,344
Posted By Jane
Does this sound like skin mets?

I'm wondering if anyone has had a similar experience - and what was the outcome:

I woke up a week ago with a small (dime-sized) fluid-filled blister on my right shin. It came out of nowhere - no...
Forum: her2group 05-23-2006, 08:11 AM
Replies: 1
Views: 970
Posted By Jane
Can I access chat sessions I missed?

Hi Becky,

Is there a way for me to access a chat session that I missed?

thanks,
jane
Forum: her2group 04-29-2006, 06:13 AM
Replies: 107
Views: 11,601
Posted By Jane
my prayers are with you

I am so sorry for your loss. Please know that you and your family will be in my prayers.

I am relatively new to this board but I know from all of your posts that you were so deeply involved with...
Forum: her2group 03-27-2006, 08:22 PM
Replies: 3
Views: 900
Posted By Jane
advice on brain scans please?

Hi,

I'd like to know how often I should request a brain scan. There seems to be some question on this and I'm wondering what everyone has experienced -

I'm 47, divorced, with a 10-year-old...
Forum: her2group 03-01-2006, 07:39 PM
Replies: 11
Views: 1,584
Posted By Jane
Hi Maria, I was diagnosed with IDC in my...

Hi Maria,

I was diagnosed with IDC in my right breast in Feb. 05. My tumor was 6.5 cm, ER/PR+, HER2+, 6/12 positive lymph nodes.

I also had my left breast removed prophylatically and i have...
Forum: her2group 12-12-2005, 07:25 PM
Replies: 7
Views: 1,524
Posted By Jane
Tara, Here's my two cents worth: I'd find...

Tara,

Here's my two cents worth: I'd find another oncologist. Seriously. If he couldn't answer your questions, he should have offered to make some calls so that he could. If he was angry about you...
Forum: her2group 11-27-2005, 08:59 PM
Replies: 11
Views: 8,155
Posted By Jane
Smile To Sassy and all who were so kind to answer my...

To Sassy and all who were so kind to answer my query:


thank you very much. your experiences sound similar to mine (pain after finishing chemo and starting herceptin, etc.).

and yes, sassy,...
Forum: her2group 11-25-2005, 08:11 PM
Replies: 11
Views: 8,155
Posted By Jane
Bone/muscle pain from Herceptin?

hi folks - a question about significant muscle/joint pain while on Herceptin... i'm a 47-year-old Stage 3 breast cancer patient - her2 3+, 6/15 lymph nodes positive, bilateral mastectomy in April 05....
Forum: her2group 11-01-2005, 07:33 PM
Replies: 6
Views: 1,935
Posted By Jane
becky, thanks for your answer. I did...

becky,

thanks for your answer.

I did get a baseline CT of abdomen, lungs and chest as well as a bone scan. The original found a tiny "hot spot" on a back rib so i was scanned again in six...
Forum: her2group 11-01-2005, 07:11 PM
Replies: 6
Views: 1,935
Posted By Jane
Frequency of scanning after chemo?

Hi -
I'm new to group and i have a question: once you were finished with chemo/radiation, how often do you get scanned to check for any mets?

I'm 46, was dx in March 2005 with Stage 3 breast...
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