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Search: Posts Made By: rondo
Forum: her2group 12-01-2014, 03:01 PM
Replies: 5
Views: 1,928
Posted By rondo
Re: Vision / off balance when looking up

Sorry I just found this post. sounds like a vestibular problem. The nausea and visual problems are part of it, but it affectcs balance as well. I developed similar symptoms during chemo and they...
Forum: Profiles In Courage 06-17-2014, 01:59 PM
Replies: 52
Views: 38,335
Posted By rondo
Re: How many years NED? Give others hope

6 years. I intend to live forever. So far, so good!,:-)
Forum: Breast Cancer Meeting Highlights 08-22-2013, 02:21 PM
Replies: 3
Views: 6,399
Posted By rondo
Forum: her2group 03-18-2013, 02:26 PM
Replies: 17
Views: 1,940
Posted By rondo
Re: Need advice - warning - not pretty

Are you sure its cramps and not acid reflux? I had a huge problem with this on taxotere. My onc put me on proton pump inhibitors for 10 days of each cycle. Worked wonders. Also Emend, if you are on...
Forum: Herceptin / Tykerb 03-10-2013, 03:17 PM
Replies: 689
Views: 246,685
Posted By rondo
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I'm sorry you are having such severe symptoms but glad to hear about your NED status. I
Definitely experienced increasing fatigue from the Herceptin during the year I was on it as well as some other...
Forum: her2group 09-06-2011, 01:15 PM
Replies: 9
Views: 6,416
Posted By rondo
Re: Vaginal Estriol Cream

ESTRIOL vaginal cream is not the same as ESTRADIOL cream. Estriol can be obtained with your doctor's Rx from a compounding pharmacy. The standard warnings are attached to all estrogen products...
Forum: her2group 02-15-2011, 03:17 PM
Replies: 5
Views: 1,880
Posted By rondo
Re: for those newly diagnosed--STANDARD of care about to change-old dogma being disca

I was so encouraged by this study as I agonized over my decision not to have ALND after they found micromets in the sentinel node. My surgeon has been very supportive throughout the whole thing. My...
Forum: her2group 02-15-2011, 03:04 PM
Replies: 1
Views: 905
Posted By rondo
Re: Possible start of lymphodema ??

GET THEE TO A PHYSICAL THERAPIST pronto who specializes in lymphedema treatment. Ask your oncologist for a referral. Don't delay because the earlier treatment is started the better the...
Forum: her2group 02-15-2011, 02:54 PM
Replies: 19
Views: 14,880
Posted By rondo
Re: Taxotere Carboplatin Herceptin Side Effects

Get a port! Also, you can wear specially made gel-filled frozen gloves and socks just during the taxotere portion of your infusions to prevent peeling, painful hands, feet and nails called...
Forum: her2group 08-13-2010, 01:50 PM
Replies: 41
Views: 16,680
Posted By rondo
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Look into radiofrequency ablation for solitary liver mets-it is relatively non-invasive and quite effective
Forum: her2group 02-15-2010, 02:59 PM
Replies: 7
Views: 1,948
Posted By rondo
Re: Magnesium...loose stools?

Typically recommended ratio of calcium to magnesium is 2:1; but everyone is different as far as their tolerance. Magnesium oxide (cheapest and easiest to find ) definitely causes the runs. Try...
Forum: her2group 02-15-2010, 02:45 PM
Replies: 10
Views: 1,119
Posted By rondo
Re: HER2 Serum Test

Sorry-dumb question-there's a Her-2 serum test????
Is it used to monitor for recurrence or only for more advanced cases? Sorry to ask this question here- I am having trouble with this site since its...
Forum: her2group 11-16-2009, 03:21 PM
Replies: 8
Views: 2,694
Posted By rondo
Re: testosterone - CAN IT HELP?

I have found that testosterone cream is the ONLY thing that helped with libido. It is still working for me after several years. It works a lot better if you don't use it daily. I use it 5 days on ...
Forum: her2group 10-23-2009, 01:34 PM
Replies: 24
Views: 2,508
Posted By rondo
Re: Who else has a Power Port?

I had a brain MRI with my right sided power port in place. They made a big deal about it at the imaging center because it is metallic but eventually decided it was OK, which I already knew since I...
Forum: Articles of Interest 10-23-2009, 01:10 PM
Replies: 6
Views: 1,900
Posted By rondo
Re: Cardiovascular Risk Greater Than Breast Cancer Recurrence Risk in Some Patients

Thanks for posting. Another reason to be glad I refused those drugs. I thought the Herceptin and left breast radiation effects were enough to worry about.
Forum: her2group 09-14-2009, 01:50 PM
Replies: 2
Views: 979
Posted By rondo
Re: Herceptin and wound issues ??

I did have some problems with recurrent wounds on my fingers in areas of repeated trauma; they recurred after every herceptin treatment. The one surgery I had during herceptin healed, but...
Forum: Herceptin / Tykerb 05-12-2009, 12:32 PM
Replies: 689
Views: 246,685
Posted By rondo
See signature for history; currently on q 3 wk...

See signature for history; currently on q 3 wk herceptin only. 3 treatments to go, I think. Have night lower leg/foot cramps, getting worse, although calcium/magnesium supplements do help a lot....
Forum: her2group 03-06-2009, 02:50 PM
Replies: 22
Views: 3,449
Posted By rondo
Even if reducing sugar intake doesn't help with...

Even if reducing sugar intake doesn't help with the cancer, I sure feel a LOT better and I lost 25 lbs. since cutting way back on the refined sugar.That alone makes it worth it!
Forum: her2group 03-02-2009, 03:26 PM
Replies: 12
Views: 2,427
Posted By rondo
Jackie, Premarin cream contains horse estrogens...

Premarin cream contains horse estrogens which include estrone (E1), one of the estrogens that stimulate breast tissue. Estrace and some others contain estradiol (E2), which can also...
Forum: her2group 03-02-2009, 03:08 PM
Replies: 14
Views: 2,260
Posted By rondo
Janice, You have my sympathy regarding the...

You have my sympathy regarding the chemobrain. If you are interested in a nutritional-supplement approach to this problem, here is what I did and continue to do: fish oil 1200 mg caps, 5...
Forum: her2group 03-02-2009, 02:39 PM
Replies: 11
Views: 1,919
Posted By rondo
Sorry, Joe, What the heck is MUGA? Couldn't...

Sorry, Joe,
What the heck is MUGA? Couldn't find it in the abbreviations list.
Forum: her2group 02-06-2009, 03:00 PM
Replies: 8
Views: 1,976
Posted By rondo
Magnesium worked great for me too. it also helps...

Magnesium worked great for me too. it also helps with the leg cramps.
Forum: her2group 02-06-2009, 02:46 PM
Replies: 37
Views: 3,668
Posted By rondo
Laurel, Revitalash contains parabens. It's...

Revitalash contains parabens. It's probably a relatively small exposure due to the tiny amount of mascara applied compared to, for example, a skin lotion. Still, some people recommend...
Showing results 1 to 23 of 23

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