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Search: Posts Made By: Pamelamary
Forum: her2group Yesterday, 01:25 AM
Replies: 1
Views: 53
Posted By Pamelamary
Re: HER2-targeting antibody-drug improves progression-free survival

Thanks again, Lani. We in Oz don't have access to this yet and probably not for a while. In the meantime, I am seeing friends with brain mets who can't access Tucatinib either. We have a pretty good...
Forum: her2group 06-14-2021, 12:45 AM
Replies: 12
Views: 676
Posted By Pamelamary
Re: Hello from Flori

So glad to hear from you, Flori! And congratulations on your grandson - after reading your history, who would have thought you would be here celebrating? An inspiration to us all.
Warm wishes from...
Forum: her2group 04-22-2021, 02:19 PM
Replies: 9
Views: 740
Posted By Pamelamary
Re: Looks like I have progression

Sorry to hear about the progression. What about T.DXd? (Trastuzumab deruxtecan) Here in Melbourne it is being trialled in the Destiny 07 trial.
Good luck with your next treatment..... Pam
Forum: her2group 03-11-2021, 09:42 PM
Replies: 7
Views: 1,182
Posted By Pamelamary
Re: update - liver resection after taxol/Herc/Perj

Great news!
It has been quiet here lately, but always worth checking in.
Here's to continuing stable...... Pam
Forum: her2group 02-07-2021, 09:14 PM
Replies: 47
Views: 3,916
Posted By Pamelamary
Re: its back

Hi Donna,
It's 9 years since my metastatic diagnosis - still stable on Herceptin and Letrozole! A real roller coaster ride, but you will feel better once you have a treatment plan in place.
Best...
Forum: her2group 10-07-2020, 11:27 PM
Replies: 8
Views: 2,237
Posted By Pamelamary
Re: Annual post

Good to hear from you, Jackie - I am still coming right behind you. This year has been really hard for many of us. Such a sense of loss and anxiety. Let's hope for better times to come.
Best...
Forum: her2group 05-16-2020, 12:12 AM
Replies: 7
Views: 1,182
Posted By Pamelamary
Re: update - liver resection after taxol/Herc/Perj

Glad to hear the resection went well and wishing you a long time on the Herceptin/ Perjeta mix, as many of us have had. It is hard to be going through all this and Covid too, so take specially good...
Forum: her2group 02-27-2020, 12:03 AM
Replies: 22
Views: 4,756
Posted By Pamelamary
Re: ENHERTU aka DS8401A

Glad to hear your news, Flori - sounds as if you have been doing it tough, so I hope the new regime gives better QOL.
Best wishes.... Pam
Forum: her2group 02-18-2020, 11:59 PM
Replies: 6
Views: 1,825
Posted By Pamelamary
Re: 8 year stage 4 cancerversary.

Hey Marie,
How are you going? You are way ahead of me in the survival stakes and of course, in the same country. Hope all is well.
Regards.... Pam
(By the way, you might be interested in looking...
Forum: her2group 02-13-2020, 05:28 PM
Replies: 6
Views: 1,825
Posted By Pamelamary
8 year stage 4 cancerversary.

Just checking in... Given Doctor Google gave me 8 months in 2012, I feel profoundly grateful for the fact that I am still here. That first year was awful, but I have been lucky to have continued...
Forum: Herceptin / Tykerb 12-03-2019, 01:14 PM
Replies: 10
Views: 4,372
Posted By Pamelamary
Re: After 9 years on Herceptin,heart ef crash

Diana, this is always a concern for long term users of Herceptin. My Echo has been slowly sliding downwards. Have you discussed what you could do to improve your heart function? I remember quite a...
Forum: her2group 11-24-2019, 12:03 AM
Replies: 9
Views: 2,822
Posted By Pamelamary
Re: Looking for hope

Hi there! I am still basically first line, but I know a number of women through an Australian group I am in who are 10+ years and have had many different treatments, including some not specific to...
Forum: her2group 11-19-2019, 12:02 AM
Replies: 8
Views: 2,237
Posted By Pamelamary
Re: Annual post

Congratulations Jackie - I am close behind you. Here's to many more years for us all! And so thankful for Vitamin H!!!
Best wishes..... Pam
Forum: her2group 10-31-2019, 11:42 PM
Replies: 10
Views: 6,956
Posted By Pamelamary
Re: Wife's Demise

Very sad news. Condolences to you, Ajit, and all your family and friends.
Forum: her2group 09-11-2019, 12:57 AM
Replies: 3
Views: 1,773
Posted By Pamelamary
Re: Lasker award to Drs Slamon, Ullrich, Shepard

Nice to see a Melbournian among the luminaries.... Well deserved kudos for Slamon, though surely belated? Thanks Lani.
Forum: her2group 09-04-2019, 01:18 AM
Replies: 72
Views: 19,082
Posted By Pamelamary
Re: Whack-a-mole next...

Flori,
I am so sorry to hear this news and remember that these prognoses don't necessarily tell the whole of your story. Wishing you peace and strength...... Pam
Forum: her2group 09-03-2019, 12:59 AM
Replies: 12
Views: 2,967
Posted By Pamelamary
Re: Site problem?

So not just me - wonder what the problem is?
Forum: her2group 09-02-2019, 01:45 PM
Replies: 12
Views: 2,967
Posted By Pamelamary
Site problem?

Does anyone have any idea why this site is now appearing in my browser as Not Secure?
Forum: her2group 06-23-2019, 01:11 AM
Replies: 72
Views: 19,082
Posted By Pamelamary
Re: Whack-a-mole next...

Flori - hard to find words, but just keep dancing as long as you can.
Sending love and strength.....Pam
Forum: her2group 06-10-2019, 12:50 AM
Replies: 17
Views: 4,419
Posted By Pamelamary
Re: Brain met ??? Anyone have advice

Glad to hear things are going well - good luck with the next scan.
Forum: her2group 04-29-2019, 12:55 AM
Replies: 12
Views: 2,457
Posted By Pamelamary
Re: Will be 8yrs NED from Stage IV in April

Coming up behind you, Kim, Kai and Diana - currently 7 years stage IV. But not forgetting all those who haven't made it so far. Often think somebody should be studying why some of us continue to...
Forum: her2group 04-17-2019, 04:18 PM
Replies: 124
Views: 20,633
Posted By Pamelamary
Re: Treatment after Kadcyla?

Thank you Iain, and condolences to you and all Julie's family and friends. A sad loss to our community.
Forum: her2group 02-28-2019, 12:05 AM
Replies: 16
Views: 2,060
Posted By Pamelamary
Re: 7 years stage IV

Thanks for all the good wishes - nice to know we are part of a community. Maybe I never would have wanted to be a part of this thing, but am always inspired by the support offered here.
Dawn, are...
Forum: her2group 02-27-2019, 12:07 AM
Replies: 16
Views: 2,060
Posted By Pamelamary
Re: 7 years stage IV

Hi Cathy,
I am on Zometa for the bones - was Osteopaenic (?) before the stage IV diagnosis. Bone density actually improved a bit with several years of Xgeva. However, there are problems with long...
Forum: her2group 02-18-2019, 11:20 PM
Replies: 16
Views: 2,060
Posted By Pamelamary
7 years stage IV

Now celebrating! I haven't updated for a while, but a bone scan last November seemed to show new activity. My oncologist wasn't too concerned as my cancer has been very slow moving, so we just...
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