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Forum: her2group 10-27-2012, 05:18 PM
Replies: 61
Views: 5,037
Posted By CLTann
Re: Surgery tomorrow - finally!

steph,

The best luck to you.

CLTann
Forum: her2group 10-06-2012, 05:59 AM
Replies: 18
Views: 1,833
Posted By CLTann
Re: five year anniversary!!

My sincere congratulation. I am 7 years anniversary veteran. It is wonderful.

CLTann
Forum: her2group 03-07-2012, 03:04 PM
Replies: 12
Views: 2,194
Posted By CLTann
Re: Time to check what the latest advices on post 5 year Arimidex, Femara or other si

The last reply cites the study reported at Sea Island, GA is an excellent review. What I can interpret is that AI inhibitor beyond five years help younger women as well as those with risk potentials...
Forum: her2group 02-08-2012, 08:54 PM
Replies: 12
Views: 2,194
Posted By CLTann
Time to check what the latest advices on post 5 year Arimidex, Femara or other simila

From time to time, we would like to know the current thinking among treating doctors on the discontinuance of AI inhibitors. What is your doctor's opinion?

Your answers are appreciated.
Forum: her2group 10-15-2011, 06:22 AM
Replies: 7
Views: 3,794
Posted By CLTann
Re: Alternative treatment to chemo

It is a very personal decision. As you can see from my treating history, I opted not to do chemo. It hinges on your gut feeling whether all offending cancer cells have been removed, your age, the...
Forum: her2group 09-29-2011, 01:26 PM
Replies: 10
Views: 1,776
Posted By CLTann
Re: Five Year mark for AI inhibitor

Jean and Gerri,

Thanks a lot for your useful replies. I will use your info to get my seventh year Femera. I don't quite understand the reason for my onc's position for not continuing the...
Forum: her2group 09-28-2011, 06:10 PM
Replies: 10
Views: 1,776
Posted By CLTann
Five Year mark for AI inhibitor

Hi Sisters,

This is the time again my onc bringing up the end of Femera regimen. Last year was the end of five years but I talked my way out. So I had another year. Now it is the end of 6...
Forum: her2group 08-26-2011, 06:48 PM
Replies: 8
Views: 3,568
Posted By CLTann
Re: Anyone on metformin?

Metaformin is almost no cost. For my husband's three month supply at 500 mg each day, the cost is $5. It is an old drug for diabetes type 2.
Forum: her2group 02-21-2011, 05:58 PM
Replies: 53
Views: 9,528
Posted By CLTann
Re: To treat or not to treat VERY early stage HER2 IDC

At the risk of being the only minority opinion giver, I just want to share my own situation with you. About 5 years ago, I was in the same situation as you are now. I decided not to get chemo,nor...
Forum: her2group 11-29-2010, 07:11 PM
Replies: 12
Views: 13,748
Posted By CLTann
Re: Itching below skin on mastectomy site

ask your doctor to prescribe the pepper ointment, which is the standard care for post herpetic neuralgia.

Good luck.
Forum: her2group 10-24-2010, 09:16 PM
Replies: 11
Views: 1,386
Posted By CLTann
Re: Five Year Femera is up

I sent all of your comments to my onc and he changed his mind. I will continue on Femara indefinitely. Thanks for the inputs.

ann
Forum: her2group 10-04-2010, 03:28 PM
Replies: 11
Views: 1,386
Posted By CLTann
Five Year Femera is up

I was hoping my onc will allow me to continue on with Femara after the completion of 5 years. But he says that he just can't do that, without any data to support the continuation. He follows the...
Forum: her2group 09-04-2010, 03:18 PM
Replies: 30
Views: 4,280
Posted By CLTann
Re: New to this.. Just dx dcis/idc Scared

Dear Angelisa,

Five years ago, almost to the day, I was in your shoes. My first friend in the support group advised me to get a copy of the book written by Dr. Susan Love of UCLA, titled Breast...
Forum: her2group 09-03-2010, 08:19 PM
Replies: 19
Views: 3,710
Posted By CLTann
Re: Chinese barley

I have been taking Chinese barley as a supplement for the past five years. It tastes good and seems to be harmless. I also take Ganoderma pills which are said to have cancer treating quality. I am...
Forum: her2group 09-02-2010, 09:31 PM
Replies: 13
Views: 2,817
Posted By CLTann
Re: study being done on herceptin with no chemo/for elderly patients

My registered name is CLTann. I will repeat my message below:

Some of you may remember that I was one of those who didn't accept the offer by onc to take both chemo and herceptin. My onc would...
Forum: her2group 08-13-2010, 03:48 PM
Replies: 139
Views: 19,552
Posted By CLTann
Re: Joe passed on this evening

Dear Danielle,

My sincere condolence. Your father is a perfect gentleman and has devoted his energy in helping so many people here. He is for sure an angel who will continue to help many of us...
Forum: her2group 06-29-2010, 07:33 PM
Replies: 30
Views: 3,143
Posted By CLTann
Re: Treatment Decision Time

Dear Courtney,

Your path is clear. Go for the best and known treatment for your cancer. You are more important to yourself and your family. Vaccine trial is secondary to you. Best luck.
Forum: her2group 06-29-2010, 07:05 PM
Replies: 10
Views: 2,382
Posted By CLTann
Re: pain in sentinal node scar

Many patients after severe pain syndrome, such as herpetic (shingle) pain, continue to have pain off and on, even after years. For shingles, they are post herpetic neuralgia. My husband still has...
Forum: her2group 06-14-2010, 07:16 PM
Replies: 24
Views: 2,485
Posted By CLTann
Re: 5 years for me!!

Congratulations! I am also in the same group.

What is your doc's decision on Arimidex, now the five year is up?

My doc indicated that he will stop the AI as planned. I just felt that I am...
Forum: her2group 05-12-2010, 06:11 PM
Replies: 66
Views: 9,822
Posted By CLTann
Re: Five years out???

I refused herception, chemo and radiation. I will be NED sept 2010. Just add to your stats.
Forum: her2group 02-22-2010, 06:15 PM
Replies: 2
Views: 1,160
Posted By CLTann
Any new info on AI inhibitor after 5 years?

Was there any new info on 5 year survivors who have been on Arimidex or Femera for the duration? My time is fast coming to this time line. My onc doesn't know what to do.
Forum: her2group 01-26-2010, 09:11 PM
Replies: 17
Views: 2,687
Posted By CLTann
Re: Femara - Sharing your Experience

I have taken Femara for 4 years, switching from Arimidex for its joint ache. Except for a few rare cramps I had no problem. I guess everyone is different in getting side effects.
Forum: her2group 01-26-2010, 06:23 PM
Replies: 11
Views: 2,085
Posted By CLTann
Re: NYT article on radiation mistakes/overdoses - very scary

I have long outcried about the radiation danger. I am certainly outraged for the 1,000 dollar fines to two New York based hospitals for their errors. They are what the patients' lives worth?

A...
Forum: her2group 01-25-2010, 10:21 AM
Replies: 5
Views: 1,597
Posted By CLTann
Any info on A.I.inhibitor after 5 years?

My 5 year Femara is coming to the end soon. Are there any new instructions or opinions on what I need to do? On the one hand, I don't have to put up with minor joint discomfort anymore. On the...
Forum: her2group 01-05-2010, 05:37 PM
Replies: 7
Views: 4,171
Posted By CLTann
Re: Lump on sternum

What a coincidence. I have a friend in Eugene who is a professor living alone there. He wanted to save heat and left the house unheated. He had his water pipes leaking everywhere. His neighbor...
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