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Search took 0.01 seconds. Search: Posts Made By: jellybean
Forum: her2group 09-01-2015, 11:36 AM
Replies: 4
Views: 2,502
Posted By jellybean
Re: CVS Caremark Denying Herceptin Coverage

How awful! This is crazy. I would call your oncologist's office to see if he or she can help. Maybe Genentech could help you with the costs until you get the decision overturned. They have...
Forum: her2group 12-11-2013, 07:17 PM
Replies: 3
Views: 1,219
Posted By jellybean
Re: Need early access for 2013 SABCS abstracts

I can't seem to find the 2013 abstracts online. Is the public not allowed access to them yet?
Forum: her2group 07-17-2013, 08:33 PM
Replies: 40
Views: 4,523
Posted By jellybean
Re: Brain MRI this morning

Wow, what an ordeal!! I believe I was told in advance that I could not do a brain MRI with my expanders in. I think they have some metal in them.

If you are going to have surgery to remove...
Forum: her2group 07-05-2013, 12:48 PM
Replies: 28
Views: 3,891
Posted By jellybean
Re: How can they know this?

I am glad your daughter had such a great response to treatment. Of course, her oncologist can't know how long she will live. All the doctor can do is give his best estimate, based on the median of...
Forum: her2group 06-26-2013, 07:15 PM
Replies: 30
Views: 4,608
Posted By jellybean
Re: Cancelled reconstruction

I also would concur with the NOLA recommendation. I didn't end up having a Diep, but my research indicated that, if I wanted a Diep, they were the best in the country. I even spoke with a woman who...
Forum: her2group 06-23-2013, 08:26 PM
Replies: 27
Views: 5,656
Posted By jellybean
Re: Lower back pain - when to worry?

Yes, you definitely can have bone mets with normal labs. When I was first diagnosed, I had mets in almost every bone in my spine, and all my labs were perfectly normal. And I felt fine!
Forum: her2group 04-11-2013, 05:01 PM
Replies: 23
Views: 3,407
Posted By jellybean
Re: BC Mets to Uterus - Roller Coaster Ride

I would think that the breast cancer onc would be more knowledgeable, since it is breast cancer. Regarding radiation, why not get an opinion from a radiation oncologist, since that would be the...
Forum: her2group 04-11-2013, 10:52 AM
Replies: 26
Views: 3,665
Posted By jellybean
Re: Progression. :(

I agree that you should go for the T-DM1.
Forum: her2group 03-12-2013, 07:25 PM
Replies: 113
Views: 13,063
Posted By jellybean
Re: Chemo Failure #3...now I'm doing what???

I hope the procedure went well! Sending lots of good thoughts for a quick and easy recovery, and, of course, for the obliteration of the mets!
Forum: her2group 02-28-2013, 03:58 PM
Replies: 30
Views: 5,396
Posted By jellybean
Re: Kadcyla/TDM1 CELEBRATION @ Genentech:)

Hi Coolbreeze,

I am sorry that your doctor's office won't order the drug for you. Perhaps he could coordinate with a major cancer center in your area. I am sure UCSF will have it soon, but that...
Forum: her2group 01-24-2013, 12:34 PM
Replies: 12
Views: 1,664
Posted By jellybean
Re: These SE's are no JOKE!

Jessica,

I am glad the radiation went well.

On the chemo front, some people find weekly Taxol more tolerable than Taxotere. I know I didn't find Taxol too bad. Could you switch? Of course,...
Forum: her2group 01-18-2013, 08:23 PM
Replies: 13
Views: 3,128
Posted By jellybean
Re: C-diff

Hi Deena,

I am sorry you are in the hospital and you have c-diff and pneumonia. Cancer is more than enough, I think!

I read an article recently, and the poop transplant is extremely...
Forum: her2group 01-14-2013, 07:02 PM
Replies: 28
Views: 3,222
Posted By jellybean
Re: perjeta with gemzar?

I found this information in the sticky above regarding T-DM1. I would call the number below and ask about an EAP (expanded access program) near you. Even if Stockton is the closest, you would only...
Forum: her2group 01-04-2013, 06:59 PM
Replies: 8
Views: 1,217
Posted By jellybean
Re: Herceptin alone -- always at an oncology center?

I get my Herceptin infusions on weekends, when there are not likely to be any oncologists on-site. Of course, the nurses are experienced in Herceptin infusions. Maybe someone at your local hospital...
Forum: her2group 10-22-2012, 07:11 PM
Replies: 16
Views: 2,615
Posted By jellybean
Re: Best day of week for chemo?

Thursday worked well for me, too. Friday I felt fine, but took off from work anyhow. Eventually, I was somewhat tired on Saturday and Sunday, and ready for work on Monday. Between chemo and seeing...
Forum: her2group 10-02-2012, 12:28 PM
Replies: 23
Views: 4,213
Posted By jellybean
Re: TDM-1 results reported @ ASCO annual mtg 2012 now in New England Journal of Medic

Actually, this article (and the full article seems to be available for free) updates the ASCO data, and includes the significant point that T-DM1 improves overall survival over Tykerb and Xeloda by...
Forum: her2group 09-10-2012, 10:32 PM
Replies: 12
Views: 1,898
Posted By jellybean
Re: walking in memory of courtney - 9/9/12

I sent you a PM with Jay's e-mail address.
Forum: her2group 09-06-2012, 11:47 AM
Replies: 12
Views: 1,898
Posted By jellybean
Re: walking in memory of courtney - 9/9/12

The link doesn't work for me, and I would like to send it and your post to Courtney's husband.

JB
Forum: her2group 09-03-2012, 10:34 PM
Replies: 54
Views: 4,775
Posted By jellybean
Re: Oh yeah, and about that bad leg...

Chrisy,

Can someone bring you in food from the outside? It is a shame for you to suffer with hospital food when you are in San Francisco, a culinary mecca.

I hope your leg is doing better.
...
Forum: her2group 08-31-2012, 02:14 PM
Replies: 54
Views: 4,775
Posted By jellybean
Re: Oh yeah, and about that bad leg...

Hey Chrisy,

I am sure you had better plans for the three day weekend.

If you need anything over the weekend, please let me know. I live in San Francisco, and could bring over food (when...
Forum: her2group 08-29-2012, 08:04 AM
Replies: 34
Views: 4,291
Posted By jellybean
Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO

Chris,

How infuriating and upsetting! If you get your medical insurance through your job, and your company is a decent size, you might also try having your HR department contact the insurance...
Forum: her2group 07-08-2012, 07:39 PM
Replies: 15
Views: 4,615
Posted By jellybean
Re: MUST READ-- metastatic her2+ breast cancer not necessarily the death sentence it

Hi Lani,

Thanks very much for posting this. Would it be possible to post the full article, or at least the Table 1? If not, could you please send me a PM with the article. I am very interested...
Forum: her2group 05-11-2012, 04:06 PM
Replies: 13
Views: 2,619
Posted By jellybean
Re: TDM-1 petition to Dr. Kathleen Sebelius, Secretary of Health and Huma

From a healthcare business posting:

T-DM1 (Trastuzumab emtansine, Genentech/Roche) in HER2+ Breast Cancer
The concept behind T-DM1 is exciting – adding the benefit of chemotherapy to the...
Forum: her2group 05-10-2012, 06:09 PM
Replies: 13
Views: 2,619
Posted By jellybean
Re: TDM-1 petition to Dr. Kathleen Sebelius, Secretary of Health and Huma

One thought. . . . The results of a recent big trial (EMILIA, I think) with T-DM1 are scheduled to be presented in a plenary session at ASCO, which is the first week of June. This suggests to me...
Forum: her2group 03-31-2012, 11:22 AM
Replies: 17
Views: 5,327
Posted By jellybean
Re: IBC after initial dx of IDC?

I am so sorry to hear of your recurrence.

I believe your oncologist is wrong on the adriamycin front. Typically, adriamycin IS effective for Her2 positive breast cancer. Some, like Dr....
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