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Search: Posts Made By: cafe1084
Forum: Profiles In Courage 06-24-2014, 05:32 PM
Replies: 62
Views: 49,437
Posted By cafe1084
Re: How many years NED? Give others hope

I was diagnosed ER/PR-, HER2+ in August 2006, bilateral mastectomy with 3months adriamycin, 3 months taxol, and 18 months herceptin...so its been almost eight years. The only problems I have are some...
Forum: her2group 12-27-2009, 04:33 PM
Replies: 37
Views: 13,751
Posted By cafe1084
Re: Bilateral mastectomy support group

I had bilateral mastectomies over 3 years ago and have not had reconstructive surgery. I throw it around in my head every now and then, and I may sometime in the future have something done. For now,...
Forum: her2group 12-04-2009, 04:42 PM
Replies: 14
Views: 1,661
Posted By cafe1084
Re: Toothpaste Advice

When your tongue and mouth begin to burn and develop sores, have your MD call you in a mycelex troche to combat oral thrush. The only toothpaste I found that did not burn my mouth was peridex paste...
Forum: her2group 10-11-2009, 03:43 PM
Replies: 68
Views: 9,491
Posted By cafe1084
Re: Good Advice?

I found my lump also and had I not, it may have been found too late. I was only 35, low risk, and no recommendations for an annual mammo because of these reasons. I say in 10 years they do another...
Forum: Diet and Nutrition 09-12-2009, 02:05 AM
Replies: 1
Views: 2,476
Posted By cafe1084
Post treatment Liver Issues

Hi Tanya and welcome to the board!
I was dx August 2006 stage I er/pr-, her2 +. I completed 3 rounds adriamycin, 12 taxol, and 1 yr herceptin. My liver has sustained significant damage from all the...
Forum: her2group 07-19-2009, 07:57 PM
Replies: 42
Views: 3,746
Posted By cafe1084
I remember the early days post-diagnosis when I...

I remember the early days post-diagnosis when I would see Esther's posts from this beach or that mountain and I would think that if she can do all that with breast cancer, then I can make it through...
Forum: her2group 07-03-2009, 06:37 AM
Replies: 2
Views: 958
Posted By cafe1084
Triple negative info, anyone?

A good friend of mine has a sister just diagnosed with triple negative breast cancer. She is lost and desperate and doesn't feel she is prepared to make decisions. If anyone knows anything about it...
Forum: her2group 07-03-2009, 06:17 AM
Replies: 14
Views: 2,806
Posted By cafe1084
I posted on this a couple of years back. My...

I posted on this a couple of years back. My sister was born on base and I was there from 6 mo old to 3 yrs old. They called my mom back in 1984 with a "survey" about our family's current health, but...
Forum: her2group 06-25-2009, 07:14 PM
Replies: 17
Views: 1,582
Posted By cafe1084
Thanks so Much!

Birthdays mean so much more when you have had to face not having them anymore, so I just wanted to say thank you Marie for taking time from your day to remember mine. Books from sis, flowers and cake...
Forum: her2group 08-17-2008, 04:07 PM
Replies: 57
Views: 4,275
Posted By cafe1084
My sincerest sympathy to Vanessa's family and...

My sincerest sympathy to Vanessa's family and friends. This really rips at my heart to have lost another strong woman who helped me find my way when I felt lost.

Love and prayers to you all,...
Forum: her2group 08-02-2008, 01:17 AM
Replies: 82
Views: 8,309
Posted By cafe1084
I met a woman during my treatments, stage 4...

I met a woman during my treatments, stage 4 breast ca bone and brain mets and has been on and off treatment for the last 12 years. She works everyday, loves her family, cooks Sunday meals, and takes...
Forum: her2group 07-22-2008, 10:56 PM
Replies: 31
Views: 2,350
Posted By cafe1084
I feel very fortunate to have had the knowledge...

I feel very fortunate to have had the knowledge to do my breats self-exams, otherwise it would've probably been too late when I had the compulsory mammo at age 40. I have friends who do have...
Forum: her2group 01-29-2008, 12:35 PM
Replies: 32
Views: 3,771
Posted By cafe1084
Her 2neu means....

a guarded optimism, NOW. Only because of the introduction of herceptin and Tykerb for us early stagers. THEN, it meant living with this dark ominous cloud hanging over my head waiting for absolute...
Forum: her2group 01-28-2008, 07:10 AM
Replies: 22
Views: 2,410
Posted By cafe1084
I saw sicko a few months back and it was...

I saw sicko a few months back and it was eye-opening to say the least. It made me want to move to another country to live, but there are always downsides to anything that seems to be better....you...
Forum: her2group 01-14-2008, 09:26 AM
Replies: 55
Views: 6,482
Posted By cafe1084
Dx at 36 yo, er<10% (technically negative)/pr-,...

Dx at 36 yo, er<10% (technically negative)/pr-, her2+ grade 3 with 1.5 cm IDC L breast, found DCIS and LCIS in large portion of L breast with mastectomy pathology. There definitely seems to be a...
Forum: her2group 01-01-2008, 03:06 PM
Replies: 6
Views: 1,449
Posted By cafe1084
Chemobrain has a lasso around my brain-to-tongue...

Chemobrain has a lasso around my brain-to-tongue action and my previously impeccable meory and organizational skills, even though I finished chemo in April 2007. I was talking with my doctor about it...
Forum: her2group 01-01-2008, 09:46 AM
Replies: 25
Views: 3,565
Posted By cafe1084
It is always a sad, introspective day when...

It is always a sad, introspective day when learning of a "sisters" passing. I didn't know Jojo, but her family and friends are in my thoughts and prayers today.

Steph C.
Forum: her2group 12-24-2007, 07:35 PM
Replies: 25
Views: 3,668
Posted By cafe1084
I have to agree with everyone else who's replied....

I have to agree with everyone else who's replied. You only get one first chance to get this thing under control. Your second chance is a chance you don't want to have to get. Im also er/pr-, her2 +,...
Forum: her2group 12-23-2007, 10:56 PM
Replies: 37
Views: 2,933
Posted By cafe1084
Last year, as I sat with my family and friends, I...

Last year, as I sat with my family and friends, I was scared that my Holidays with them were numbered. Here's to many more holidays to come, for all of us!

Merry Christmas Everyone!
Stephanie
Forum: her2group 11-10-2007, 09:05 PM
Replies: 22
Views: 2,399
Posted By cafe1084
It is so very easy to get caught up in the...

It is so very easy to get caught up in the negativity around you. It is also very contagious, also! When my days get hairy, and anymore, they ALL are, I find a quiet spot, I take a deep breathe,...
Forum: her2group 11-10-2007, 08:49 PM
Replies: 34
Views: 3,872
Posted By cafe1084
I was put on prozac shortly after my dad died in...

I was put on prozac shortly after my dad died in 2006, coincidentally, just about the time the doc said my cancer may have started. Then again, at the time, I lost over 80 lbs, so it could have...
Forum: her2group 11-10-2007, 08:35 PM
Replies: 25
Views: 3,262
Posted By cafe1084
The onc nurse told me that sinus complaints is...

The onc nurse told me that sinus complaints is the only commonality she has found among the 15 of us being treated with herceptin. Otherwise, the are little to no complaints with the drug
Forum: Keeping Your Mind Off of BC 11-05-2007, 06:08 PM
Replies: 0
Views: 2,144
Posted By cafe1084
Interesting Non-BC related websites

Always different, is for a good cause, and has spawned several books. I personally just like the freedom it offers to release whatever secrets you are carrying with you....sometimes a little risque,...
Forum: Keeping Your Mind Off of BC 11-05-2007, 05:49 PM
Replies: 83
Views: 12,007
Posted By cafe1084
My sister and I love to have weekend dinners...

My sister and I love to have weekend dinners together and we share the cooking tasks. This weekend, I found a recipe for a soup that I was really unsure of...until I tasted it! It was so...
Forum: her2group 11-04-2007, 06:28 PM
Replies: 11
Views: 1,609
Posted By cafe1084
Unfortunately for us, the world doesn't stand...

Unfortunately for us, the world doesn't stand still so we can rest when we need to. Kids football games, fall festivals, work, fundraisers... the list goes on and on. I'm feeling ya! Life, somedays,...
Showing results 1 to 25 of 101

 
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