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Forum: her2group 09-03-2007, 03:58 PM
Replies: 5
Views: 1,208
Posted By jojo
Post For Irene

Hi Irene, how's FLA treating you? :-) I'd love to meet sweet dolphins once again!

I echo Sheila's note of side effects from Avastin, except for nosebleeds, of which I hardly got at all. I would...
Forum: her2group 08-26-2007, 10:47 PM
Replies: 4
Views: 2,473
Posted By jojo
Cool I was told that having low potassium would be too risky?...

I can't remember, if I was on chemo, when I got attacked with low potassium. As soon as my chemo nurse read over my lab work, she entered me into the hospital via ER. That was several months ago. ...
Forum: her2group 08-18-2007, 03:05 AM
Replies: 5
Views: 1,157
Posted By jojo
Unhappy Hi! For julie2 re: nodes

Hi Julie,

I had not been aware of your situation until just yesterday. I'm sorry that you have to go through this, but you have proven to us her2 group that you are a strong woman!

Naveline is...
Forum: her2group 08-01-2007, 04:12 PM
Replies: 24
Views: 3,008
Posted By jojo
Red face Hi Swanky from JoJo

Hi Swanky,

I was originally diagnosed 3b in 2003 (3c in new rulings since '04 or '05 or '06??) I didn't get to ask, if I just turned to stage 4 at that time; I just didn't think of it. Me duh!!...
Forum: her2group 07-31-2007, 05:53 PM
Replies: 28
Views: 2,777
Posted By jojo
Wink To: Kate (tousled) Re: Brain MRI

Hi Kate,

My heart goes out to you re: recently diagnosed stage 4. :-( Terryfing, huh? :-( I was a stage 3c (3b in the old standings) for some time, until I became stage 4. Been mets for 4...
Forum: her2group 07-12-2007, 08:04 PM
Replies: 31
Views: 3,982
Posted By jojo
Wink Hi to Theresa :-)

Hello,

I am sorry that you have been through a LOT of things that could've induce quite a handful of "tasing" to your body.

I feel bad that I dton't have any wisdom words to your case. This...
Forum: Herceptin / Tykerb 07-12-2007, 07:54 PM
Replies: 10
Views: 2,295
Posted By jojo
Reply to Connie's post

Ask Michele U, from this message board, about getting some 800 phone numbers. Some organizations would be willing to help some patients with their fiances on purchasing Tykerb. Best luck to you!
Forum: Herceptin / Tykerb 07-09-2007, 01:21 AM
Replies: 16
Views: 3,434
Posted By jojo
For a clinical trial, I am currently taking...

For a clinical trial, I am currently taking Tykerb & Avastin. I think it has been about 1-1/2 months so far. As side effects goes, like one of the most common symtom, the diarrhea. Instead, I get a...
Forum: her2group 07-03-2007, 03:09 PM
Replies: 25
Views: 2,679
Posted By jojo
Wink "Twin" Cousins?? :-)

Wow!!!

I hope that your grandkids will be close to one another, growing up together, being goofy and whatnot. May many more happy memories come down in your precious lane!!

Best of luck to...
Forum: her2group 07-03-2007, 02:51 PM
Replies: 13
Views: 1,818
Posted By jojo
Wink Quick question for Eric...

Hi Eric,

Real sorry that T/X didn't work out for your wife, Caryn. In your previous post, you had said that Herceptin was questionable. Why is that?

BTW, as some of you may know, some chemo...
Forum: her2group 06-20-2007, 08:52 PM
Replies: 14
Views: 1,422
Posted By jojo
Thumbs up Hey, Grandma! :-D

BIG, happy, exhilarating c-o-n-g-r-a-t-u-l-a-t-i-o-n-s!!!
Forum: Herceptin / Tykerb 06-20-2007, 08:46 PM
Replies: 4
Views: 1,926
Posted By jojo
Question Poll Question: Tykerb / Herceptin?

Please reply your answers. Yes or No, that's easy, right? :-)

Please, pretty please! :-D

Thank you very much.
Forum: her2group 06-20-2007, 08:29 PM
Replies: 2
Views: 788
Posted By jojo
Question Poll question: Herceptin / Tykerb combo

You on Herceptin / Tykerb together?

Please, input your answers on the poll. Yes, please! :-D

Thank you very much.
Forum: her2group 06-20-2007, 08:15 PM
Replies: 6
Views: 1,436
Posted By jojo
Talking Thanks to C :-)

I think I get it... thanks much for taking your time to explain your rather unique situation.

A lot of best luck to you, plus the trial! :-)
Forum: her2group 06-20-2007, 08:12 PM
Replies: 6
Views: 1,275
Posted By jojo
Thumbs up Yea, I'm in! :-D

Brief announcement:

Joined in the Tykerb & Avasin trial. No major side effects so far.

Naturally, nervous about any outcomes. Wish me luck! Also, I would always welcome to receive positive...
Forum: her2group 06-19-2007, 10:25 PM
Replies: 6
Views: 1,436
Posted By jojo
Question To: Chrisy :-)

Hi Chrisy,

If I'm not mistaken, you have 2 onc's; the 2nd one being Dr Rugo as a 2nd opinion. Is she aware of that? Is she even a "full-time" 2nd opinion for you? I'm just curious, as to why...
Forum: her2group 06-19-2007, 09:52 PM
Replies: 10
Views: 1,377
Posted By jojo
Talking Minize size for CT's imagery

Hello Shell,

If memory serves, the CT picks up 8mm or 3cm?.... Can somebody help us out here?

Shell, I am sorry for not having the answer for you -- I am embarrassed! <covering face with...
Forum: her2group 06-02-2007, 07:54 PM
Replies: 4
Views: 1,078
Posted By jojo
Arrow My spring 2007 abstract...

I haven't been to the website in a good long while, so I'm quite behind in catching up on our posts. But I'll try my best!

Disqualified for Tykerb / Avastin clinical trial, due to my echo (low...
Forum: her2group 06-02-2007, 07:46 PM
Replies: 66
Views: 6,450
Posted By jojo
Question One of our dearest angels! Oh, and who is 2nd "ghost"??

Awww, shoot! :-(

I have never met Sandy in person, as we lived on the opposite coasts, but we have exchanged such personal emails, and I had always truly enjoyed reading from her.

I shall keep...
Forum: her2group 05-05-2007, 06:12 PM
Replies: 15
Views: 2,111
Posted By jojo
Red face Whoopsie! Typo....

I forgot to put in "hurt" before "if you took a double-check......"
Forum: her2group 05-05-2007, 06:10 PM
Replies: 15
Views: 2,111
Posted By jojo
Question Allergic to Lovenox??

Hi Steph,

Oh boy, this sounds pretty annoying, huh? After all you have come through for the past few months....tsk, tsk, tsk! <shaking head, rolling eyes>

Honestly, the list of your symptoms...
Forum: her2group 04-12-2007, 07:36 PM
Replies: 5
Views: 1,836
Posted By jojo
Question Having Chemo while doing Cyber Knife?

My onc is thinking of giving me a chemo break during my CK treatments, just to reduce toxicity.

Just curious out there.... have ever done your chemo while undergoing your CK prodecure?

Thank...
Forum: her2group 03-08-2007, 10:34 PM
Replies: 6
Views: 1,044
Posted By jojo
Unhappy EF downslide -- doggone it!!!! :-(

Well, because of my low EF (I even took echo TWICE & muga once), I couldn't qualify for the trial, so here I just ended up with: taking GEMZAR two weeks, one week off.

Naturally, my Herceptin is...
Forum: her2group 02-21-2007, 09:19 PM
Replies: 15
Views: 1,478
Posted By jojo
Thumbs up JoJo's new treatment regimen (clinical trial)

I look forward to getting OFF those nasty chemo's. Yea!!!! :-D

I am expected to begin a new treatment on Mon, Feb 26. The new treatment regimen is Tykerb & Avastin.

Crossing fingers in hope...
Forum: her2group 02-21-2007, 09:09 PM
Replies: 8
Views: 1,112
Posted By jojo
Talking Thank you very much! :-)

Wow! I can't believe that my big 4-0 is just around the corner (in 2008).

My actual birthday was a quiet day, but I feel blessed to celebrate an early birthday luncheon with a small circle of...
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