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Posts Made By:
Nurse4u2day
Forum:
her2group
08-19-2020, 12:16 PM
Replies:
18
15 Years out!
Views:
1,636
Posted By
Nurse4u2day
Re: 15 Years out!
CONGRATS ON THE 15 years !
Long term survival ship gives so many hope for a great future .
Forum:
her2group
02-20-2019, 06:07 PM
Replies:
16
7 years stage IV
Views:
1,856
Posted By
Nurse4u2day
Re: 7 years stage IV
Great Ned Pam. I like you don’t get on here much but still check in and glad to see some familiar faces but sad to see new ones .
Forum:
Inflammatory Breast Cancer
11-18-2018, 12:46 PM
Replies:
3
IBC ( inflammatory breast cancer)
Views:
7,349
Posted By
Nurse4u2day
Re: IBC ( inflammatory breast cancer)
This is very new and interesting information. I see my oncologist this January . Will have to ask her about this .
Thank you
Forum:
Herceptin / Tykerb
11-18-2018, 12:37 PM
Replies:
4
Herceptin and Joint Stiffness
Views:
3,823
Posted By
Nurse4u2day
Re: Herceptin and Joint Stiffness
While on Herceptin alone I had tremendous bone and muscle pain. Crippling I would say. My doctors agreed it was most likely a combo of the previous treatments but that the herceptin was the straw...
Forum:
her2group
11-18-2018, 12:28 PM
Replies:
12
13 years!!!
Views:
3,394
Posted By
Nurse4u2day
Re: 13 years!!!
Many Congrats to you !!!!!
Forum:
her2group
09-06-2018, 05:10 PM
Replies:
111
ZW25 clinical trial - day one
Views:
20,311
Posted By
Nurse4u2day
Re: ZW25 clinical trial - day one
Always saying prayers for you ladies. And yes may you get your horizon back
Forum:
Inflammatory Breast Cancer
08-22-2018, 08:58 AM
Replies:
3
IBC ( inflammatory breast cancer)
Views:
7,349
Posted By
Nurse4u2day
IBC ( inflammatory breast cancer)
I was just going through some post and realized there’s not to much here about IBC . So just wanted to give those who have had the diagnosis and there heads are spinning as was mine when I received...
Forum:
her2group
08-22-2018, 08:25 AM
Replies:
3
Cannabis anyone?
Views:
4,793
Posted By
Nurse4u2day
Re: Cannabis anyone?
I’m just starting to do my own research in regards to cannabis to help in keeping cancer at bay. There is a Facebook group that really dives into this. It discusses the different ratios of the/cbd...
Forum:
Profiles In Courage
04-14-2018, 04:50 PM
Replies:
51
How many years NED? Give others hope
Views:
36,413
Posted By
Nurse4u2day
Re: How many years NED? Give others hope
I was dx Nov 2013 with IBC ..stage3c node positive. I had my last Pet/Ct Feb 20 ,2018 I still remain NED
Forum:
her2group
11-26-2017, 12:50 PM
Replies:
6
6 Years Out
Views:
3,754
Posted By
Nurse4u2day
Re: 6 Years Out
Congrats on the 6 years .
Forum:
her2group
11-22-2017, 09:03 AM
Replies:
3
Friend recently diagnosed with recurrence
Views:
3,448
Posted By
Nurse4u2day
Re: Friend recently diagnosed with recurrence
Thank you Carol and Tricia. My friend is having her scan today so then we will know what she is up against soon. I so wish she would get a new oncologist. I personally have no faith in the...
Forum:
her2group
11-19-2017, 04:03 PM
Replies:
15
Another year
Views:
6,818
Posted By
Nurse4u2day
Re: Another year
As a fellow IBCer this is great news. May you continue to stay in this great place called remission.
Forum:
her2group
11-19-2017, 03:40 PM
Replies:
3
Friend recently diagnosed with recurrence
Views:
3,448
Posted By
Nurse4u2day
Friend recently diagnosed with recurrence
Hello everyone . It's been awhile but I still check up on everyone . The reason I'm here today is not for myself as I'm doing well, still NED . I'm inquiring regarding a friend. She was just...
Forum:
Profiles In Courage
10-01-2017, 05:53 PM
Replies:
51
How many years NED? Give others hope
Views:
36,413
Posted By
Nurse4u2day
Re: How many years NED? Give others hope
3 1/2 years NED
Forum:
her2group
10-01-2017, 05:48 PM
Replies:
27
Our Waterdreamer is Gone
Views:
8,723
Posted By
Nurse4u2day
Re: Our Waterdreamer is Gone
I have not been on here for sometime and am very saddened to hear about waterdreamer.
Forum:
her2group
07-11-2017, 02:14 PM
Replies:
31
12 years, but who is counting?
Views:
15,438
Posted By
Nurse4u2day
Re: 12 years, but who is counting?
Love to hear this news. It always gives hope to others just starting out and even for those of us that are years out
Forum:
Herceptin / Tykerb
06-15-2017, 05:12 PM
Replies:
4
Herceptin and Joint Stiffness
Views:
3,823
Posted By
Nurse4u2day
Re: Herceptin and Joint Stiffness
I had severe stiffness, joint and muscle pain once I started on herceptin alone. When I say severe I mean in tears severe. I was seen by a rheumatologist and based on labs they stayed I had...
Forum:
her2group
05-21-2017, 05:15 PM
Replies:
8
Lymphovascular invasion / survivors ?
Views:
7,177
Posted By
Nurse4u2day
Re: Lymphovascular invasion / survivors ?
Hello Lilneenz... I had a diagnosis that included lymph vascular invasion. Dx Nov 2013 with IBC and nodes involved as well. I remain NED 3 1/2 years later. Hope this gives you some hope.
Forum:
her2group
12-23-2016, 08:43 PM
Replies:
40
15 years stage IV - no drugs in 8yrs - still NED
Views:
14,362
Posted By
Nurse4u2day
Re: 15 years stage IV - no drugs in 8yrs - still NED
This is awesome NEWS!
Forum:
her2group
03-19-2016, 05:17 PM
Replies:
7
PET/CT vs CT only
Views:
3,676
Posted By
Nurse4u2day
Re: PET/CT vs CT only
I just had a pet/ct scan yesterday because of ongoing lower back/hip pain. They did an MRI 2 months ago and it was clear so my oncologist agreed it was time for a pet/ct.
Thankfully it came back...
Forum:
her2group
01-24-2016, 05:47 PM
Replies:
8
2 years since diagnoses, 1 year since last treatment
Views:
3,038
Posted By
Nurse4u2day
Re: 2 years since diagnoses, 1 year since last treatment
Agness I did get the brain scan and other then some calcifications ( which I had prior to cancer ) my brain scan was all clear. Just 2 weeks ago they also did an ex ray of my back and coccyx area as...
Forum:
her2group
01-24-2016, 03:37 PM
Replies:
8
2 years since diagnoses, 1 year since last treatment
Views:
3,038
Posted By
Nurse4u2day
2 years since diagnoses, 1 year since last treatment
Hello Ladies,
Just wanted to touch bases and say I'm still around. I don't post much these days but continue to follow the group. My update: as of yesterday I am one year from last Herceptin tx and...
Forum:
her2group
12-31-2015, 08:21 PM
Replies:
19
Vitamin D Testing Frequency
Views:
6,280
Posted By
Nurse4u2day
Re: Vitamin D Testing Frequency
3 months ago my vitamin d test was at 20.... Just got retested today, so let's see what the new year brings
Forum:
her2group
12-04-2015, 03:44 PM
Replies:
9
50 hours post TCH chemo and my body feels like going through withdrawals
Views:
4,015
Posted By
Nurse4u2day
Re: 50 hours post TCH chemo and my body feels like going through withdrawals
This indeed sounds like a side effect of the steroids. I felt exactly what you are expressing. The only thing that helped me was at night I would at doctors orders take 2mg Ativan to help with sleep....
Forum:
her2group
12-04-2015, 03:32 PM
Replies:
17
6 Year Anniversary since dx :)
Views:
4,800
Posted By
Nurse4u2day
Re: 6 Year Anniversary since dx :)
Congrats on the 6years and clean scans!!!
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