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Search: Posts Made By: HavahJ
Forum: her2group 07-08-2008, 01:21 PM
Replies: 1
Views: 900
Posted By HavahJ
ixempra

Has anyone had good results with ixempra?
Forum: Herceptin / Tykerb 05-01-2008, 08:56 AM
Replies: 6
Views: 2,246
Posted By HavahJ
Very High Tumor Marker CA 27, 29 over 2500

Please respond if you've had it. I don't know why yet but it's scary. HavahJ
Forum: Keeping Your Mind Off of BC 03-31-2008, 05:06 PM
Replies: 2
Views: 1,458
Posted By HavahJ
Thanks for trying to stand in my shoes

My post is at the end of the comments of my previous post.
Forum: Keeping Your Mind Off of BC 03-31-2008, 04:53 PM
Replies: 17
Views: 2,390
Posted By HavahJ
just a reply

Sorry, won't make a negative comment again! Thankx for trying to see things by standing in someone else's shoes. But you all make a great defense; I just don't understand the necessity for it. I was...
Forum: Keeping Your Mind Off of BC 03-08-2008, 01:38 PM
Replies: 17
Views: 2,390
Posted By HavahJ
I don't know where to put this post

Hi folks. I use to spend a lot of time on this board when it was much simpler. I don't want to be mean but I think the setup here doesn't lend itself well to people communicating with each other. ...
Forum: her2group 03-05-2008, 06:59 PM
Replies: 1
Views: 942
Posted By HavahJ
I'm on all four - have been for two weeks. I...

I'm on all four - have been for two weeks. I have diarrhea so far, but mostly tired and manageable stuff with the other chemo. I don't think I had any side effects from navelbine. HavahJ@aol.com
Forum: her2group 03-05-2008, 06:55 PM
Replies: 3
Views: 1,255
Posted By HavahJ
a wreck

none, I'm a wreck
Forum: her2group 03-05-2008, 11:32 AM
Replies: 3
Views: 1,255
Posted By HavahJ
At what point after start of chemo was change noticed 2 weeks, 4, 6?

Hi, I'm wondering at what point one notices regression on scans. We noticed progression at 6 weeks. I've been on the new stuff for two weeks, but my marker has gone up 2000 point in 4 weeks? I'm...
Forum: her2group 03-05-2008, 11:27 AM
Replies: 15
Views: 2,132
Posted By HavahJ
Hi Lani help- marker up 2000 points in 4 weeks.

Hi Lani, I've just started the second chemo, only been on two weeks.navelbine/hercep/xeloda/tykerb. What do you think this swift rise in tumor marker means? I can't believe what really hasn't been...
Forum: her2group 03-05-2008, 11:23 AM
Replies: 15
Views: 2,132
Posted By HavahJ
HavahJ

No problem.
Forum: her2group 02-29-2008, 12:38 PM
Replies: 3
Views: 1,405
Posted By HavahJ
Question about chemo side effect

I'm on navelbine, xeloda/ herceptin. My stomach is getting bigger, but I'm not gaining weight! I took a diuretic, but it's still big. Anyone have familiar effect or know what it is? It can't be...
Forum: her2group 02-29-2008, 06:57 AM
Replies: 15
Views: 2,132
Posted By HavahJ
for Lani, Liver Mets

Hi Lani, Thanks so much for responding. I can wait for further response. I have 15 small liver mets; the largest is one and a half cm. My liver is working normally. I don't have other mets at the...
Forum: her2group 02-28-2008, 04:18 PM
Replies: 15
Views: 2,132
Posted By HavahJ
Lani, I need advice too!

I did have single skull met for three years. Now I have single liver mets. The onc. did herceptin/abraxane that didn't work. Now I'm on navelbine/herceptin/xeloda/tykerb. I just read the article...
Forum: her2group 02-21-2008, 11:58 AM
Replies: 22
Views: 2,505
Posted By HavahJ
I'm a good candidate for spheres!

If the chemo doesn't work, I'm a good candidate for spheres, a new kind of radiation thing just for the liver. It's not a cure, but like chemo, can help hold things off. At least there's another...
Forum: her2group 02-18-2008, 04:25 PM
Replies: 1
Views: 914
Posted By HavahJ
spheres for liver mets

Has anyone done spheres radiation for liver mets? I think that's next for me. Would love to hear! HavahJ This cancer is moving very fast. I will probably start spheres next week.
Forum: her2group 02-14-2008, 07:40 PM
Replies: 6
Views: 1,314
Posted By HavahJ
If no chemo works, then what?

I did abraxane/herceptin . It was a no. Now I'm trying navelbine/hecepton/teloda. Then what? HavahJ
Forum: her2group 02-14-2008, 01:12 AM
Replies: 5
Views: 1,262
Posted By HavahJ
not one liver tumor, a ton of mini tumors

Can anyone relate to this and suggest a treatment. I have a lots of liver tumors very small, progression of more seems very fast. Any suggestions
Forum: her2group 02-13-2008, 05:11 PM
Replies: 5
Views: 1,613
Posted By HavahJ
Please please tell me what worked for your liver mets

My liver mets are small and numerous, exploding. Abraxane hasn't worked. Please tell me what chemo have worked on liver mets for you. I'm really desperate. It's a weird type of met. all these...
Forum: her2group 02-13-2008, 01:39 PM
Replies: 4
Views: 2,729
Posted By HavahJ
My marker doubled from 700 to 1400 in 2 weeks

It's the same old liver met me. I'm freaked completely out. I think I have very little time, this is moving very fast. If you want to write me use my email because I see it more often. ...
Forum: her2group 02-12-2008, 06:50 AM
Replies: 27
Views: 4,059
Posted By HavahJ
I'm really scared, can't stop crying

I'm so frantic about the liver mets and waiting to see if the chemo is working. I don't know how to figure out all the death stuff. I'm so alone. I had a single met for so long - I just didn't ...
Forum: her2group 02-11-2008, 04:03 PM
Replies: 16
Views: 3,212
Posted By HavahJ
After in the liver, it's over

I can't get away from this. I had a single metastasis for three years and then suddenly in a month 15 lesions on my liver. My Ca27,29 went up 600 points. I went on herceptin abraxane, but how much...
Forum: her2group 02-02-2008, 12:49 PM
Replies: 9
Views: 1,765
Posted By HavahJ
call in help lines

Are there any breast cancer hotlines where you can call at anytime and talk to a professional or someone who really knows something, not just support? Thanks HavahJ
Forum: Herceptin / Tykerb 02-01-2008, 02:46 PM
Replies: 8
Views: 1,789
Posted By HavahJ
Can anyone ever believe it?

Does everybody feel like this whole metastatic thing isn't really real or happening until they're practically dead? I keep feeling like it really can't be happening. I wondering if I'll still feel...
Forum: her2group 01-29-2008, 09:46 AM
Replies: 3
Views: 1,198
Posted By HavahJ
Surgery New Mets

Does anyone think that surgery that they had might have inadvertantly put met. cancer cells into their blood? HavahJ
Forum: her2group 01-22-2008, 04:00 PM
Replies: 8
Views: 1,146
Posted By HavahJ
marker up after 3 weeks of abraxane/herceptin

The marker is up 250 after 3 weeks of abraxane/ herceptin, can someone help my pessimistic upset?
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