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Search: Posts Made By: jaykay
Forum: Profiles In Courage 10-12-2021, 03:21 PM
Replies: 57
Views: 39,381
Posted By jaykay
Re: How many years NED? Give others hope

8 years NED. Fingers and toes crossed. So nice to see everyone ��
Forum: her2group 06-27-2021, 01:54 PM
Replies: 47
Views: 4,530
Posted By jaykay
Re: its back

Donna, hang in there. When I was going through chemo, Imodium was like eating candy - did nothing for the runs. Ask your doc for a prescription for lomotil - it is a controlled substance but works...
Forum: her2group 06-16-2021, 08:27 AM
Replies: 12
Views: 775
Posted By jaykay
Re: Hello from Flori

Flori, I’ve been thinking about you quite a lot lately and am sooo glad you’re doing remarkably well!

Congrats on the grandson and keep on keeping on!
Forum: her2group 05-27-2021, 03:04 PM
Replies: 6
Views: 622
Posted By jaykay
Re: Chemo - I need to make a decision

Paul - The "70" I was referring to is my age. And I definitely get what you are saying. Like most people our age (and unfortunately younger), I've seen more than a few people I consider close...
Forum: her2group 05-14-2021, 04:14 AM
Replies: 6
Views: 622
Posted By jaykay
Re: Chemo - I need to make a decision

Hi, sorry you have this decision to make but as Imani says, there are many women on this board who are still alive and living their lives with no restrictions after many years. As far as Her2+ bc,...
Forum: her2group 04-06-2021, 01:35 PM
Replies: 5
Views: 488
Posted By jaykay
Re: tooth paste

Biotene products - I didn't use the toothpaste but used the mouthwash. It was recommended by my oncologist's office
Forum: her2group 03-30-2021, 02:23 PM
Replies: 47
Views: 4,530
Posted By jaykay
Re: its back

You can do this, Donna. And yes, it is such a mental game.

My thoughts are with you!

Janis
Forum: her2group 03-03-2021, 01:43 PM
Replies: 9
Views: 709
Posted By jaykay
Re: Genetic Testing

Hi - I had genetic testing after my first diagnosis and was BRCA negative. Fast forward to 2018 and a suggestion that I get re-tested since the there were more mutations tested for than BRCA in the...
Forum: her2group 01-07-2021, 03:54 PM
Replies: 7
Views: 1,037
Posted By jaykay
Re: Finally 2021

Echoing Becky and Donna. You will always have support with this group. I also had a melanoma removed from my upper chest; actually right in the middle of my collarbone over 5 years ago. I blame...
Forum: her2group 05-06-2020, 03:23 PM
Replies: 7
Views: 1,762
Posted By jaykay
Re: 15 cancerversary

Happy 15th, Jean! I remember when you reached out to me 8 years ago when I recurred after 12 years of NED.

Here’s to many more cancer free years for both of us and continued development of...
Forum: her2group 03-15-2020, 01:16 PM
Replies: 22
Views: 5,075
Posted By jaykay
Forum: her2group 02-29-2020, 11:13 AM
Replies: 22
Views: 5,075
Posted By jaykay
Re: ENHERTU aka DS8401A

So glad to hear from you, Flori! Your strength continues to amaze me and I hope the new regimen(s) provide you with a better qol. You rock!

Janis
Forum: her2group 02-21-2020, 10:09 AM
Replies: 12
Views: 3,020
Posted By jaykay
Re: Site problem?

I am seeing “not secure” as well on my iPad using safari. I don’t recall ever seeing that it was a secure site
Forum: her2group 12-09-2019, 02:18 PM
Replies: 5
Views: 1,540
Posted By jaykay
Re: Osteoporosis: is it caused by chemo?Not just aging?

I’ve had osteopenia since I went through menopause 20+ years ago (pre breast cancer). Being on letrozole for many years does not help but I’m holding my own. My vitamin d levels have always been...
Forum: her2group 12-09-2019, 02:07 PM
Replies: 11
Views: 2,400
Posted By jaykay
Re: Melanoma Biopsy when almost 5yrs NED BC.

Hi Jessica,

Sorry you had to go though the angst of another cancer. I also had a melanoma removed 3.5 years ago. I noticed it myself, my dermatologist did the biopsy and I was shocked to hear it...
Forum: her2group 09-10-2019, 09:20 AM
Replies: 72
Views: 19,835
Posted By jaykay
Re: Whack-a-mole next...

Great news, Flori!
Forum: her2group 09-05-2019, 09:50 AM
Replies: 72
Views: 19,835
Posted By jaykay
Re: Whack-a-mole next...

Dear Flori,

I'm with Jessica re: doctors and their timelines. Many of us would be speaking from the grave if their timelines were valid.

Thinking of you and sending positive thoughts

xoxo...
Forum: her2group 09-01-2019, 11:52 AM
Replies: 9
Views: 2,754
Posted By jaykay
Re: Tamoxifen - 8-10 years?

I took Tamoxifen for 4.5 years and Femara (letrozole) for 5 years after my first bout with breast cancer. 2 years after I stopped, I had a new primary (I call it a recurrence!) tumor in my "healthy"...
Forum: her2group 08-16-2019, 08:41 AM
Replies: 72
Views: 19,835
Posted By jaykay
Re: Whack-a-mole next...

Like everyone else you have touched - thinking of you, Flori. Hang in there!
Forum: her2group 06-24-2019, 11:06 AM
Replies: 72
Views: 19,835
Posted By jaykay
Re: Whack-a-mole next...

Aw, f__k, Flori! No words of wisdoms, only love and positive thoughts.
Forum: her2group 06-12-2019, 05:33 PM
Replies: 13
Views: 3,879
Posted By jaykay
Re: Long term survivor checking in!

Such great news from all the long term survivors! I’m almost 7 years out from my second diagnosis and I echo Donna’s thoughts.
Forum: her2group 04-01-2019, 05:49 PM
Replies: 7
Views: 1,626
Posted By jaykay
Re: 5 yr or 10 yr Femara

Hi Donna, congrats on the five year mark!

I was told 10 years is the “new norm” for AI’s. This is my second “stretch” with femara (almost 6 years). First time was 5 years and I developed a new...
Forum: her2group 10-31-2018, 08:49 AM
Replies: 18
Views: 4,750
Posted By jaykay
Re: Sleepness nights after chemo

I believe the drug is zofran for nausea. Ativan for stress relief, sleeping aid. Similar to Valium
Forum: her2group 09-07-2018, 02:51 PM
Replies: 10
Views: 4,911
Posted By jaykay
Re: Chemo Not Needed for Most Early Breast Cancer: TAILORx

I’m with Sarah on this one. I was diagnosed with stage 1a and had radiation as well as anti-estrogens for 10 years. Herceptin was out of the question for early stage. 12 years later...
Forum: her2group 08-09-2018, 05:29 PM
Replies: 9
Views: 4,313
Posted By jaykay
Re: Recurrence

Hi Ginny, sorry to hear of your recurrence. I recurred after 12 years and even though it was considered a new primary because it was in the other breast, it was the exact same pathology as the...
Showing results 1 to 25 of 462

 
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