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Search: Posts Made By: JessicaV
Forum: her2group 06-23-2021, 01:32 AM
Replies: 1
Views: 419
Posted By JessicaV
Re: Mastectomy for HER2 +ve metastasis breast cancer.

Hi Koushik, Oncology treatment can continue for years and years. I have a friend who was diagnosed with metastatic Her2+ breast cancer in 2014, with tumors in liver, lungs and bone. She has been on...
Forum: her2group 06-23-2021, 12:41 AM
Replies: 6
Views: 687
Posted By JessicaV
Re: Anyone Else for Heart Arrhythmias?

Thanks. Yes, I was on herceptin/trastuzumab in 2014. Had the first spell of tachycardia/atrial flutter a month after I finished trastuzumab. No reduction in ventrical fraction.
Forum: her2group 05-22-2021, 02:49 AM
Replies: 7
Views: 978
Posted By JessicaV
Re: Finally 2021

Thanks for the support. All well, saw a great gynecologist who is mostly an obstetrician so much more geared than many male gynies to empowering women by giving full info re options and risks, and...
Forum: her2group 05-18-2021, 06:25 AM
Replies: 6
Views: 687
Posted By JessicaV
Anyone Else for Heart Arrhythmias?

I am just dusting myself off after three-day hospital visit that began with tachycardia at 150 heartbeats a minute that had not slowed after half an hour. Rang hospital, asked if I should come in,...
Forum: her2group 05-18-2021, 06:10 AM
Replies: 6
Views: 576
Posted By JessicaV
Re: Chemo - I need to make a decision

Jeet, in 2014, when I was diagnosed at 62 with a 2.2cm HER2+ invasive carcinoma Grade 3 Stage 2, very aggressive and invasive in a 6cm field of DCIS, my oncologist told me that that 10 years earlier...
Forum: her2group 04-25-2021, 06:00 AM
Replies: 2
Views: 383
Posted By JessicaV
Lymphodema, Armpit Recurrence or maybe just fatty flab?

Just checking in: over the past year or so, 6-7 years after my initial diagnosis I have become aware of a growing swelling of flab on the side of my mastectomy that fills my armpit and extends out of...
Forum: her2group 04-25-2021, 05:22 AM
Replies: 47
Views: 3,893
Posted By JessicaV
Re: its back

Hi Donna, I just dropped in to the page after months away. I am so sorry to hear this is happening to you. I am so glad you are sharing this time and experience with the group, where there are so...
Forum: Diet and Nutrition 01-05-2021, 08:42 AM
Replies: 104
Views: 46,005
Posted By JessicaV
Re: Vitamin D thread -Please use this for your Vit D info.

A while ago, I read that the blood/immune system entity that transports Vitamin D around the body and delivers it where it is needed also is involved in consuming seed malignant cells/telomer...
Forum: her2group 01-05-2021, 08:35 AM
Replies: 2
Views: 513
Posted By JessicaV
Re: Off topic: Looking for "covid nurse"

Good luck with this, I hope you can find some good sources.
Forum: her2group 01-05-2021, 08:17 AM
Replies: 7
Views: 978
Posted By JessicaV
Re: Finally 2021

Hi Becky, how lovely it is to see you there and hear that you are 16years NED. I am just waking up to the fact that it is that time of year again: 6th January 2014 was my wakeup call: sitting with a...
Forum: her2group 03-23-2020, 06:57 PM
Replies: 0
Views: 1,064
Posted By JessicaV
Covid19 morbidity and mortality risk greater for cancer survivors

Hi, I wanted to pass this information on, not to scare people but to help people get grounds to access the telehealth options etc to survive this new health threat ok.
A
research project reported...
Forum: her2group 12-09-2019, 01:29 PM
Replies: 5
Views: 1,507
Posted By JessicaV
Osteoporosis: is it caused by chemo?Not just aging?

I was reading about the body draws calcium out of the bones to balance the pH when the blood becomes acidic after too much protein hits this system, either from diet or from tissue death. I figure...
Forum: her2group 12-09-2019, 01:14 PM
Replies: 11
Views: 2,361
Posted By JessicaV
Re: Melanoma Biopsy when almost 5yrs NED BC.

Well, the surgical cut to remove all last possible traces of a melanoma was about the same size as for my complete mastectomy: from my shoulder to my breastbone. And the tissue showed that the biopsy...
Forum: her2group 05-28-2019, 02:45 AM
Replies: 111
Views: 21,562
Posted By JessicaV
Re: ZW25 clinical trial - day one

I so hope your scans and MRIs will bring some good news, and that the regime you are on will start to help.
I love to think of you dancing, and it makes me think of Peggy Lee

"I remember when I...
Forum: her2group 05-28-2019, 01:27 AM
Replies: 11
Views: 2,361
Posted By JessicaV
Re: Melanoma Biopsy when almost 5yrs NED BC.

The biopsy results say it is a melanoma, but no invasive lesion, no ulceration, probably only dermis to epidermis junction. They are calling it early melanoma, possibly in situ, which I think sounds...
Forum: her2group 05-26-2019, 06:42 PM
Replies: 11
Views: 2,361
Posted By JessicaV
Re: Melanoma Biopsy when almost 5yrs NED BC.

Thanks for your kind support.
Becky, the biopsy removed all the lesion for testing, so it should be all gone, and they have enough for staging if it is malignant. If it is not melanoma, there...
Forum: her2group 05-26-2019, 01:26 AM
Replies: 11
Views: 2,361
Posted By JessicaV
Melanoma Biopsy when almost 5yrs NED BC.

I have a flat irregular pigmented area about 1.3cm across just below my right collarbone. I get Molemaps most years, tho missed from Nov 2015 to May 2019. It was chopped in half in 2014 when my...
Forum: her2group 05-26-2019, 01:13 AM
Replies: 3
Views: 1,487
Posted By JessicaV
Re: ?Safety of Estrogen cream (for Pessary) after HER2+ ER- PR-

Thanks Trish. I did check the research and found several comments that topical low-dose vaginal estrogen cream or pessaries did not increase the measure of systemic estrogen, even in women on...
Forum: her2group 05-15-2019, 06:35 AM
Replies: 3
Views: 1,487
Posted By JessicaV
Re: ?Safety of Estrogen cream (for Pessary) after HER2+ ER- PR-

Just heard back from my oncologist that she's let my GP know that she approves topical estrogen for me because my cancer was hormone receptor negative. Such a relief, and I wanted to pass on if any...
Forum: her2group 05-13-2019, 07:01 PM
Replies: 3
Views: 1,487
Posted By JessicaV
?Safety of Estrogen cream (for Pessary) after HER2+ ER- PR-

Hi all, for a number of years I have intermittently been having distressing problems with a bladder prolapse plus uterine grade 3+prolapse causing massive discomfort when walking etc UTIs, etc.

I...
Forum: her2group 11-15-2018, 04:25 AM
Replies: 24
Views: 5,518
Posted By JessicaV
Re: Aphasia?? First symptom brain mets???

I got MRI results via the Breast Cancer Clinic receptionist who got them from the breast surgeon: all is fine. A bit more detail eg what they checked for and what they didn't check for other than...
Forum: her2group 11-11-2018, 07:35 AM
Replies: 12
Views: 3,593
Posted By JessicaV
Re: 13 years!!!

May your health get better and better, keep smiling.
Forum: her2group 11-11-2018, 07:32 AM
Replies: 16
Views: 11,026
Posted By JessicaV
Re: Survey on bisphosphonates-please participate

Hi, having recently been diagnosed with osteoporosis and advised to go on bisphosphonates, I suddenly started to look at the issue. For those on estrogen/hormone adjusters of various sorts the water...
Forum: her2group 11-10-2018, 05:46 AM
Replies: 24
Views: 5,518
Posted By JessicaV
Re: Aphasia?? First symptom brain mets???

Well, I had my MRIs on Friday, nearly an hour in the machine which was tiring but at least I don't get claustrophobia :-) . Afterwards, they told me the results will be through in 2-4 business days,...
Forum: her2group 11-08-2018, 06:24 AM
Replies: 24
Views: 5,518
Posted By JessicaV
Re: Aphasia?? First symptom brain mets???

Thanks for the support and for sharing your experiences. It helps me so much. I hope this has not stirred up pain and distress for you. MRIs tomorrow now. Knowledge is power.
thanks
Jessica
Showing results 1 to 25 of 134

 
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