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Forum: Articles of Interest 01-27-2013, 04:36 PM
Replies: 6
Views: 2,948
Posted By Carol.hope
Re: Is the Cure for Cancer Inside You?

I agree. That was very interesting! Thanks for posting it.
Forum: Articles of Interest 01-27-2013, 04:14 PM
Replies: 4
Views: 2,406
Posted By Carol.hope
Re: Long-Term Effects of Chemo on the Cognitive Function of Cancer Patients

"... have started looking at genetic predictors of susceptibility to cognitive impairment during and after chemotherapy....Dr. Ahles found that APOE...
Forum: her2group 04-03-2012, 08:23 AM
Replies: 18
Views: 2,961
Posted By Carol.hope
Re: Social Security benefits??

Congratulations, Vicki, on getting one more project resolved. I think SS understands Stage IV better than any other issue. May your life go a little easier now.

Carol
Forum: her2group 03-21-2012, 05:48 PM
Replies: 18
Views: 2,961
Posted By Carol.hope
Re: Social Security benefits??

If you decide to get an attorney, do NOT sign up with a national firm that advertises over the radio. I wasted a year with them not even understanding my situation at all, just wasting time. In the...
Forum: her2group 03-21-2012, 05:29 PM
Replies: 14
Views: 3,014
Posted By Carol.hope
Re: Does cancer treatment age you?

Studies published in 2001-2006 show that chemo shortens telomeres, which are the ends of our DNA strands. They are responsible for replicating and making new cells, which is what keeps us young. As...
Forum: her2group 03-21-2012, 05:05 PM
Replies: 45
Views: 8,019
Posted By Carol.hope
Re: Christine our Founder needs Cards & Prayers

Thank you, Sheila and Danielle. Yes, Christine is way more than "special." Her inspiration and guidance have helped hundreds or thousands of us, and they continue as this great group continues.
Best...
Forum: her2group 09-06-2011, 02:23 PM
Replies: 33
Views: 5,681
Posted By Carol.hope
Re: What would you do?

Tricia,
Good for you for asking here - of many wise women who have been there - and for sticking with your intuition. We all deserve doctors who take us seriously. After all, it's OUR bodies, our...
Forum: her2group 02-12-2011, 05:16 PM
Replies: 2
Views: 1,485
Posted By Carol.hope
Re: Getting insurance to pay for all oral chemotherapy drugs

Ev, this sounds like a great project to bring up now in Congress. I have not heard of it, and hope Komen will get major publicity out and make it easy for patients to send in their support of this,...
Forum: her2group 01-12-2011, 02:31 PM
Replies: 28
Views: 3,324
Posted By Carol.hope
Re: Advice on work situation

Hi Ginny.
I thought I sent you two messages yesterday, but my internet service was sporadic, and it looks like neither one showed up. Internet is back today, so here goes again.

First, it's not...
Forum: her2group 12-13-2010, 06:48 PM
Replies: 2
Views: 1,306
Posted By Carol.hope
Re: prophylactic whole brain irradiation may prevent her2 brain metastasis and suppos

I would like them to differentiate between patients with and without the ApoE4 gene, which apparently is highly correlated with cognitive challenges after brain stresss/injury.

I would not...
Forum: her2group 12-05-2010, 07:59 PM
Replies: 4
Views: 1,204
Posted By Carol.hope
Re: Another opinion on vitamin D and cancer

Wow. This article says:
"North Americans need on average 400 International Units (IUs) of vitamin D per day, the committee decided. Those 71 and older may require as much as 800 IUs a day." The...
Forum: her2group 11-23-2010, 02:15 PM
Replies: 29
Views: 4,224
Posted By Carol.hope
Re: Help with chemo brain

Hi Mary L,
That's what my new oncologist said. I asked her if there was any hope for my brain, and she said, "Of course there is, that's what your book is all about - hope!"

First, I looked up...
Forum: her2group 11-23-2010, 12:18 PM
Replies: 29
Views: 4,224
Posted By Carol.hope
Re: Help with chemo brain

Mary L,
I do so understand your chemo brain! It sounds like mine. We are in a different category from those who had fuzzy brains during chemo and recovered within a year. I learned from my MDs and...
Forum: her2group 11-21-2010, 08:17 PM
Replies: 29
Views: 4,224
Posted By Carol.hope
Re: Help with chemo brain

Thanks, Idelle.
I'll be interested to hear what you think, and how we might work together to help everyone with chemo brain - long-term or short - get good information that makes a difference to...
Forum: her2group 11-21-2010, 07:38 PM
Replies: 29
Views: 4,224
Posted By Carol.hope
Re: Help with chemo brain

Kiri's mum,
I am finally able to figure out some things on the computer (5 years after chemo) and just figured out, I think, how to attach my list of 20 Recommendations for Recovering From Chemo...
Forum: her2group 11-20-2010, 08:10 PM
Replies: 29
Views: 4,224
Posted By Carol.hope
Re: Help with chemo brain

Kiri's Mom,
I agree with Joni. Especially during chemo treatment, it's important to have someone advising you who has knowledge and experience with chemo as well as supplements. I had a Naturopath...
Forum: her2group 11-20-2010, 06:34 PM
Replies: 28
Views: 3,324
Posted By Carol.hope
Re: Advice on work situation

Ginny,
Under ADA, employers with 15 or more employees must make reasonable accommodations. The Job Accommodation Network (JAN) is part of the federal Dept. of Labor. They have a set of fact sheets;...
Forum: her2group 11-20-2010, 06:14 PM
Replies: 7
Views: 1,875
Posted By Carol.hope
Re: Something to make you giggle;)

Thanks for a good laugh, Rhonda!

Carol
Forum: her2group 11-20-2010, 06:01 PM
Replies: 29
Views: 4,224
Posted By Carol.hope
Re: Help with chemo brain

Hi Kiris Mum.
I was one of the x% (15% or more) who got long-term chemo brain and have had to learn a lot about recovering.

When I had chemo 5 years ago, my oncologist said they would bring me...
Forum: her2group 10-19-2010, 12:37 PM
Replies: 32
Views: 2,930
Posted By Carol.hope
Re: Career crossroad

Bejuce, thanks for the article. I think it points to the major value of this very organization. Starting with Christine, who found a way to help others after she survived, each person who joins in is...
Forum: Herceptin / Tykerb 09-27-2010, 06:53 PM
Replies: 689
Views: 290,904
Posted By Carol.hope
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Pamela, I took CoQ10, Hawthorn, and a few others, at the direction of my Naturopath. Got my Ejection Fraction back up in short order - I think 2 months (it had gone down to 35%). I'd recommend...
Forum: Diet and Nutrition 08-22-2010, 05:21 PM
Replies: 24
Views: 4,415
Posted By Carol.hope
Re: Vitamin D Test Results

Hey, R.B.
Please tell us about your book - when will it be out, what's the title, how to get it, etc. Thanks and good luck! - Carol
Forum: her2group 08-15-2010, 09:15 AM
Replies: 6
Views: 1,379
Posted By Carol.hope
Re: Question on veins post-chemo

Re: Question on veins post-chemo
Thanks, friends, for the comments! Yes, ever since the later chemo days I have used the hotpacks, hydrate, etc. And always the butterfly to help hold the needle....
Forum: her2group 08-14-2010, 04:56 PM
Replies: 6
Views: 1,379
Posted By Carol.hope
Question Question on veins post-chemo

I have "challenging veins" since chemo (20 infusions, the usual MUGAs, etc, no port). It's been 4 years and it still takes most MDs and RNs several tries to get a good IV. I wonder if there's...
Forum: her2group 08-14-2010, 03:37 PM
Replies: 16
Views: 1,827
Posted By Carol.hope
Re: Heading out to walk 60 miles....with ALL of you in my heart!

Maureen,
Thank you for taking us with you! What a wonderful, healing step you are taking! I admire you.
Carol
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