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Posts Made By:
jaykay
Forum:
her2group
01-07-2021, 03:54 PM
Replies:
4
Finally 2021
Views:
307
Posted By
jaykay
Re: Finally 2021
Echoing Becky and Donna. You will always have support with this group. I also had a melanoma removed from my upper chest; actually right in the middle of my collarbone over 5 years ago. I blame...
Forum:
her2group
05-06-2020, 03:23 PM
Replies:
7
15 cancerversary
Views:
1,137
Posted By
jaykay
Re: 15 cancerversary
Happy 15th, Jean! I remember when you reached out to me 8 years ago when I recurred after 12 years of NED.
Here’s to many more cancer free years for both of us and continued development of...
Forum:
her2group
03-15-2020, 01:16 PM
Replies:
22
ENHERTU aka DS8401A
Views:
3,526
Posted By
jaykay
Re: ENHERTU aka DS8401A
Great news!
Forum:
her2group
02-29-2020, 11:13 AM
Replies:
22
ENHERTU aka DS8401A
Views:
3,526
Posted By
jaykay
Re: ENHERTU aka DS8401A
So glad to hear from you, Flori! Your strength continues to amaze me and I hope the new regimen(s) provide you with a better qol. You rock!
Janis
Forum:
her2group
02-21-2020, 10:09 AM
Replies:
12
Site problem?
Views:
2,330
Posted By
jaykay
Re: Site problem?
I am seeing “not secure” as well on my iPad using safari. I don’t recall ever seeing that it was a secure site
Forum:
her2group
12-09-2019, 02:18 PM
Replies:
5
Osteoporosis: is it caused by chemo?Not just aging?
Views:
1,098
Posted By
jaykay
Re: Osteoporosis: is it caused by chemo?Not just aging?
I’ve had osteopenia since I went through menopause 20+ years ago (pre breast cancer). Being on letrozole for many years does not help but I’m holding my own. My vitamin d levels have always been...
Forum:
her2group
12-09-2019, 02:07 PM
Replies:
11
Melanoma Biopsy when almost 5yrs NED BC.
Views:
1,918
Posted By
jaykay
Re: Melanoma Biopsy when almost 5yrs NED BC.
Hi Jessica,
Sorry you had to go though the angst of another cancer. I also had a melanoma removed 3.5 years ago. I noticed it myself, my dermatologist did the biopsy and I was shocked to hear it...
Forum:
her2group
09-10-2019, 09:20 AM
Replies:
72
Whack-a-mole next...
Views:
16,301
Posted By
jaykay
Re: Whack-a-mole next...
Great news, Flori!
Forum:
her2group
09-05-2019, 09:50 AM
Replies:
72
Whack-a-mole next...
Views:
16,301
Posted By
jaykay
Re: Whack-a-mole next...
Dear Flori,
I'm with Jessica re: doctors and their timelines. Many of us would be speaking from the grave if their timelines were valid.
Thinking of you and sending positive thoughts
xoxo...
Forum:
her2group
09-01-2019, 11:52 AM
Replies:
9
Tamoxifen - 8-10 years?
Views:
2,410
Posted By
jaykay
Re: Tamoxifen - 8-10 years?
I took Tamoxifen for 4.5 years and Femara (letrozole) for 5 years after my first bout with breast cancer. 2 years after I stopped, I had a new primary (I call it a recurrence!) tumor in my "healthy"...
Forum:
her2group
08-16-2019, 08:41 AM
Replies:
72
Whack-a-mole next...
Views:
16,301
Posted By
jaykay
Re: Whack-a-mole next...
Like everyone else you have touched - thinking of you, Flori. Hang in there!
Forum:
her2group
06-24-2019, 11:06 AM
Replies:
72
Whack-a-mole next...
Views:
16,301
Posted By
jaykay
Re: Whack-a-mole next...
Aw, f__k, Flori! No words of wisdoms, only love and positive thoughts.
Forum:
her2group
06-12-2019, 05:33 PM
Replies:
13
Long term survivor checking in!
Views:
3,207
Posted By
jaykay
Re: Long term survivor checking in!
Such great news from all the long term survivors! I’m almost 7 years out from my second diagnosis and I echo Donna’s thoughts.
Forum:
her2group
04-01-2019, 05:49 PM
Replies:
7
5 yr or 10 yr Femara
Views:
1,437
Posted By
jaykay
Re: 5 yr or 10 yr Femara
Hi Donna, congrats on the five year mark!
I was told 10 years is the “new norm” for AI’s. This is my second “stretch” with femara (almost 6 years). First time was 5 years and I developed a new...
Forum:
her2group
10-31-2018, 08:49 AM
Replies:
18
Sleepness nights after chemo
Views:
4,508
Posted By
jaykay
Re: Sleepness nights after chemo
I believe the drug is zofran for nausea. Ativan for stress relief, sleeping aid. Similar to Valium
Forum:
her2group
09-07-2018, 02:51 PM
Replies:
10
Chemo Not Needed for Most Early Breast Cancer: TAILORx
Views:
4,364
Posted By
jaykay
Re: Chemo Not Needed for Most Early Breast Cancer: TAILORx
I’m with Sarah on this one. I was diagnosed with stage 1a and had radiation as well as anti-estrogens for 10 years. Herceptin was out of the question for early stage. 12 years later...
Forum:
her2group
08-09-2018, 05:29 PM
Replies:
9
Recurrence
Views:
4,160
Posted By
jaykay
Re: Recurrence
Hi Ginny, sorry to hear of your recurrence. I recurred after 12 years and even though it was considered a new primary because it was in the other breast, it was the exact same pathology as the...
Forum:
her2group
07-30-2018, 03:33 PM
Replies:
71
Cancer 'n Me
Views:
15,247
Posted By
jaykay
Re: Cancer 'n Me
Hey Flori,
Thinking of you and hoping for some positive news re:trials and everything else. You are an incredibly brave lady.
Janis
Forum:
her2group
05-13-2018, 10:48 AM
Replies:
71
Cancer 'n Me
Views:
15,247
Posted By
jaykay
Re: Cancer 'n Me
Ah Flori - love the mohel reference but hate the context. Will be thinking of you tomorrow.
F’ing cancer
Forum:
her2group
04-11-2018, 12:39 PM
Replies:
8
Stroke after tamoxifen
Views:
4,278
Posted By
jaykay
Re: Stroke after tamoxifen
Oh jeez, Europa! I'm glad you're okay now but it must have been frightening for you
Forum:
her2group
03-11-2018, 10:13 AM
Replies:
39
Kadcyla ‘n me
Views:
11,497
Posted By
jaykay
Re: Kadcyla ‘n me
Dear Flori - crossing my fingers and toes that the side effects and liver numbers stay within the tolerable range.
Thinking of you
Forum:
her2group
02-09-2018, 06:13 AM
Replies:
17
6 years later and MRI picks up something
Views:
6,170
Posted By
jaykay
Re: 6 years later and MRI picks up something
Waiting sucks. I had an 18 month stint where the breast MRI showed something and there was nothing on the ultrasound. Every six months for both tests until MRI was clear.
And I have implants!
...
Forum:
her2group
02-06-2018, 03:24 PM
Replies:
6
Sore mouth from chemo - ice therapy?
Views:
4,536
Posted By
jaykay
Re: Sore mouth from chemo - ice therapy?
I used biotene products at the recommendation of my dentist for dry mouth. I'm not sure I ever had a sore mouth.
I had a prescription for "magic mouthwash" which is similar to what Paul...
Forum:
her2group
01-26-2018, 07:11 AM
Replies:
4
Michka has earned her wings (back in 2017)
Views:
4,687
Posted By
jaykay
Re: Michka has earned her wings (back in 2017)
Thanks, Lani for the bad news. I think we all figured something was wrong when there was no activity. Same with Amy. Sigh...
Forum:
her2group
01-26-2018, 07:09 AM
Replies:
40
Amy? (Mtngrl)
Views:
15,999
Posted By
jaykay
Re: Amy? (Mtngrl)
I hate this disease. So sad to hear about Amy
Showing results 1 to 25 of 454
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