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Search: Posts Made By: Pamelamary
Forum: her2group 01-12-2022, 01:19 PM
Replies: 4
Views: 620
Posted By Pamelamary
The party's over?

Hi everybody,
After nearly 10 years stable on Herceptin and Letrozole, it seems the beast has struck again. It was no surprise when a tumour in the brain was discovered, but it isn't a breast met....
Forum: her2group 11-29-2021, 12:46 PM
Replies: 5
Views: 463
Posted By Pamelamary
Re: No more 10 years

Hi Jackie,
No lung mets myself, but it does sound as if Enhertu is outperforming Kadcyla. However lung problems could be among the side-effects, so you would probably need careful monitoring from...
Forum: her2group 11-24-2021, 11:57 PM
Replies: 6
Views: 617
Posted By Pamelamary
Re: Goodbye Herceptin?

Donna,
Seems it shouldn't matter, though we will all be grateful for the original Herceptin! Hope you are going well........ Pam
Forum: her2group 11-21-2021, 11:48 PM
Replies: 6
Views: 617
Posted By Pamelamary
Re: Goodbye Herceptin?

Hi Dawn!
I don't think we need worry - but you would definitely be having the bio-similar now. Like you, I have been stable for ages. My oncologist says my cancer is "indolent". She hasn't suggested...
Forum: her2group 11-09-2021, 10:57 PM
Replies: 6
Views: 617
Posted By Pamelamary
Re: Goodbye Herceptin?

Thanks Paul - I kind of knew it was OK, but any change causes trepidation..... Pam
Forum: her2group 11-08-2021, 12:59 PM
Replies: 14
Views: 1,396
Posted By Pamelamary
Re: radio-embolization

Good luck Donna!
Best wishes.....Pam
Forum: her2group 11-08-2021, 12:54 PM
Replies: 6
Views: 617
Posted By Pamelamary
Goodbye Herceptin?

Hi Everybody,
I have just found out that Australia's pharmaceutical benefits scheme will no longer be funding Roche's Herceptin and my treatment will continue with a "bio-similar" called Herzuma....
Forum: her2group 10-31-2021, 07:52 PM
Replies: 1
Views: 360
Posted By Pamelamary
Re: 10 year living with metastatic disease

Congratulations Jackie! And coming upright behind you - cheers for Vitamin H!
Best wishes..... Pam
Forum: her2group 09-19-2021, 01:25 AM
Replies: 1
Views: 623
Posted By Pamelamary
Re: HER2-targeting antibody-drug improves progression-free survival

Thanks again, Lani. We in Oz don't have access to this yet and probably not for a while. In the meantime, I am seeing friends with brain mets who can't access Tucatinib either. We have a pretty good...
Forum: her2group 06-14-2021, 12:45 AM
Replies: 12
Views: 1,186
Posted By Pamelamary
Re: Hello from Flori

So glad to hear from you, Flori! And congratulations on your grandson - after reading your history, who would have thought you would be here celebrating? An inspiration to us all.
Warm wishes from...
Forum: her2group 04-22-2021, 02:19 PM
Replies: 9
Views: 1,141
Posted By Pamelamary
Re: Looks like I have progression

Sorry to hear about the progression. What about T.DXd? (Trastuzumab deruxtecan) Here in Melbourne it is being trialled in the Destiny 07 trial.
Good luck with your next treatment..... Pam
Forum: her2group 03-11-2021, 09:42 PM
Replies: 7
Views: 1,563
Posted By Pamelamary
Re: update - liver resection after taxol/Herc/Perj

Great news!
It has been quiet here lately, but always worth checking in.
Here's to continuing stable...... Pam
Forum: her2group 02-07-2021, 09:14 PM
Replies: 47
Views: 6,464
Posted By Pamelamary
Re: its back

Hi Donna,
It's 9 years since my metastatic diagnosis - still stable on Herceptin and Letrozole! A real roller coaster ride, but you will feel better once you have a treatment plan in place.
Best...
Forum: her2group 10-07-2020, 11:27 PM
Replies: 8
Views: 2,599
Posted By Pamelamary
Re: Annual post

Good to hear from you, Jackie - I am still coming right behind you. This year has been really hard for many of us. Such a sense of loss and anxiety. Let's hope for better times to come.
Best...
Forum: her2group 05-16-2020, 12:12 AM
Replies: 7
Views: 1,563
Posted By Pamelamary
Re: update - liver resection after taxol/Herc/Perj

Glad to hear the resection went well and wishing you a long time on the Herceptin/ Perjeta mix, as many of us have had. It is hard to be going through all this and Covid too, so take specially good...
Forum: her2group 02-27-2020, 12:03 AM
Replies: 22
Views: 6,342
Posted By Pamelamary
Re: ENHERTU aka DS8401A

Glad to hear your news, Flori - sounds as if you have been doing it tough, so I hope the new regime gives better QOL.
Best wishes.... Pam
Forum: her2group 02-18-2020, 11:59 PM
Replies: 6
Views: 2,165
Posted By Pamelamary
Re: 8 year stage 4 cancerversary.

Hey Marie,
How are you going? You are way ahead of me in the survival stakes and of course, in the same country. Hope all is well.
Regards.... Pam
(By the way, you might be interested in looking...
Forum: her2group 02-13-2020, 05:28 PM
Replies: 6
Views: 2,165
Posted By Pamelamary
8 year stage 4 cancerversary.

Just checking in... Given Doctor Google gave me 8 months in 2012, I feel profoundly grateful for the fact that I am still here. That first year was awful, but I have been lucky to have continued...
Forum: Herceptin / Tykerb 12-03-2019, 01:14 PM
Replies: 10
Views: 5,263
Posted By Pamelamary
Re: After 9 years on Herceptin,heart ef crash

Diana, this is always a concern for long term users of Herceptin. My Echo has been slowly sliding downwards. Have you discussed what you could do to improve your heart function? I remember quite a...
Forum: her2group 11-24-2019, 12:03 AM
Replies: 9
Views: 3,030
Posted By Pamelamary
Re: Looking for hope

Hi there! I am still basically first line, but I know a number of women through an Australian group I am in who are 10+ years and have had many different treatments, including some not specific to...
Forum: her2group 11-19-2019, 12:02 AM
Replies: 8
Views: 2,599
Posted By Pamelamary
Re: Annual post

Congratulations Jackie - I am close behind you. Here's to many more years for us all! And so thankful for Vitamin H!!!
Best wishes..... Pam
Forum: her2group 10-31-2019, 11:42 PM
Replies: 10
Views: 7,205
Posted By Pamelamary
Re: Wife's Demise

Very sad news. Condolences to you, Ajit, and all your family and friends.
Forum: her2group 09-11-2019, 12:57 AM
Replies: 3
Views: 1,929
Posted By Pamelamary
Re: Lasker award to Drs Slamon, Ullrich, Shepard

Nice to see a Melbournian among the luminaries.... Well deserved kudos for Slamon, though surely belated? Thanks Lani.
Forum: her2group 09-04-2019, 01:18 AM
Replies: 72
Views: 24,397
Posted By Pamelamary
Re: Whack-a-mole next...

Flori,
I am so sorry to hear this news and remember that these prognoses don't necessarily tell the whole of your story. Wishing you peace and strength...... Pam
Forum: her2group 09-03-2019, 12:59 AM
Replies: 12
Views: 3,360
Posted By Pamelamary
Re: Site problem?

So not just me - wonder what the problem is?
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