HonCode

Go Back   HER2 Support Group Forums > Search Forums
Reload this Page Search Results
Register Gallery FAQ Members List Calendar Today's Posts

Page 1 of 2 1 2
Showing results 1 to 25 of 45
Search took 0.01 seconds. Search: Posts Made By: grandma2
Forum: her2group 01-30-2009, 07:11 PM
Replies: 18
Views: 2,381
Posted By grandma2
eric, i'm sorry to hear of caryn's problems. i...

eric, i'm sorry to hear of caryn's problems. i have numerous nodes with mets in abdominal area. several are clumped together and pressing on my pancreas, liver and bile duct. in nov i was in hosp....
Forum: Herceptin / Tykerb 01-10-2009, 04:55 PM
Replies: 8
Views: 2,187
Posted By grandma2
with xeloda i started on 8 pills daily, then went...

with xeloda i started on 8 pills daily, then went to 4 pills daily, and finally 2 pills daily. tykerb was supposed to be 5 pills daily but i took 4/day. docs are not sure if it was one or the other...
Forum: Herceptin / Tykerb 01-09-2009, 05:34 PM
Replies: 8
Views: 2,187
Posted By grandma2
sorry to report turbo, but i've had horrendous...

sorry to report turbo, but i've had horrendous problems with these drugs. did go to er new years day and was just released yesterday. very frightening and difficult week. pancreatic tests were...
Forum: Herceptin / Tykerb 01-01-2009, 07:49 AM
Replies: 17
Views: 2,882
Posted By grandma2
thank you...that is exactly what is happening. i...

thank you...that is exactly what is happening. i never had these problems before i started these 2 drugs. i'm now concerned about liver damage...these drugs can cause that also and for past few...
Forum: Herceptin / Tykerb 12-30-2008, 06:20 PM
Replies: 17
Views: 2,882
Posted By grandma2
thanks for asking. my onc (and i agree) think...

thanks for asking. my onc (and i agree) think it's probably more the xeloda or possibly the combo. when i talked to the xeloda pharm company they said they had 1 possible reported case of...
Forum: Herceptin / Tykerb 12-29-2008, 05:19 PM
Replies: 17
Views: 2,882
Posted By grandma2
well talked to onc. off both xeloda and tykerb...

well talked to onc. off both xeloda and tykerb for now. xeloda probably for good. am on a liquid diet and if pain doesn't get better in a few days then back to hospital. very upset.
Forum: Herceptin / Tykerb 12-29-2008, 01:17 PM
Replies: 17
Views: 2,882
Posted By grandma2
hi brenda...i'm no doctor so i don't know if...

hi brenda...i'm no doctor so i don't know if there is such a thing. i do know that xeloda has had a few reported cases. my onc can't say for sure if that was the cause. my gastro thinks it's one...
Forum: Herceptin / Tykerb 12-27-2008, 10:40 PM
Replies: 17
Views: 2,882
Posted By grandma2
thanks everyone. my biggest problem seems to be...

thanks everyone. my biggest problem seems to be the pancreatitis. it's hard to eat since when i do i have alot of pain afterwards. turbo...are you taking tykerb twice a day? i've only heard of...
Forum: Herceptin / Tykerb 12-20-2008, 07:32 PM
Replies: 17
Views: 2,882
Posted By grandma2
one more thing...are you having problems sleeping...

one more thing...are you having problems sleeping also?
Forum: Herceptin / Tykerb 12-20-2008, 07:31 PM
Replies: 17
Views: 2,882
Posted By grandma2
interesting

what does your onc say about this. we tend to blame everything on xeloda because i've probably been sicker with that than tykerb. but as i said in my post, both my brand new gastro doc and onc have...
Forum: Herceptin / Tykerb 12-19-2008, 01:45 AM
Replies: 17
Views: 2,882
Posted By grandma2
tykerb se

hi all, haven't been here in a while. was very ill with acute pancreatitis and in and out of hospital. still have some residual problems. it seems that the cause may have been either xeloda or...
Forum: Herceptin / Tykerb 10-30-2008, 08:27 PM
Replies: 3
Views: 1,467
Posted By grandma2
cardiac stress was normal but still in pain. ...

cardiac stress was normal but still in pain. went back to doc and sent for stat bloodwork for gallbladder and pancreatitis (from meds since i don't drink). tykerb or xeloda????? if either come back...
Forum: Herceptin / Tykerb 10-29-2008, 04:51 PM
Replies: 3
Views: 1,467
Posted By grandma2
having more problems - scary

hi ladies. more problems. havn't feel well at all since early sept when i started xeloda and tykerb...you know the story. got to the point where i couldn't eat at all. lost 11lbs in last 2 1/2...
Forum: Herceptin / Tykerb 10-24-2008, 11:46 PM
Replies: 3
Views: 1,226
Posted By grandma2
now i'm really confused. are you in the trial? ...

now i'm really confused. are you in the trial? this is a fairly large office i would think they would know these things. maybe i should call medicare myself.
Forum: Herceptin / Tykerb 10-24-2008, 05:58 PM
Replies: 3
Views: 1,226
Posted By grandma2
results of 5FU test

just wanted to let you know that the results of my recent 5 FU toxicity test came back as low risk. so that means i'm not missing the enyzmes to metabolize xeloda. onc concluded that because of my...
Forum: her2group 10-15-2008, 06:59 PM
Replies: 10
Views: 2,624
Posted By grandma2
my port was never an issue with dental work. ...

my port was never an issue with dental work. right in the middle now as a matter of fact. my whole life i did take antibiotics for dental work but the amer. college of card. recently changed the...
Forum: Herceptin / Tykerb 10-15-2008, 03:34 PM
Replies: 8
Views: 1,860
Posted By grandma2
thanks for all your comments. i had such an easy...

thanks for all your comments. i had such an easy time with herceptin...no problems at all (except if you want to count that it stopped working lol). i have actually stopped even my multivitamin and...
Forum: Herceptin / Tykerb 10-14-2008, 07:13 PM
Replies: 8
Views: 1,860
Posted By grandma2
just miserable

i'm not asking for advice...just venting i guess. i have never felt so miserable so continuously as i have since xeloda - tykerb came into my life. it changes between constipation, diarhhea,...
Forum: Herceptin / Tykerb 10-12-2008, 12:38 PM
Replies: 2
Views: 1,474
Posted By grandma2
is it odd for tykerb se's to increase?

i think i'm starting week 6 or 7 now. at first it didn't really seem to do much to me. now i'm finding that i have more and more se's. not all of them, but gas, bloating and diarhhea. it's much...
Forum: Herceptin / Tykerb 10-11-2008, 07:50 PM
Replies: 8
Views: 2,196
Posted By grandma2
i got herceptin alone but i had already finished...

i got herceptin alone but i had already finished ac and taxotere....my 1st onc forgot to give me the herceptin and of course my present onc starts it with taxotere. i recently came off another 3...
Forum: Herceptin / Tykerb 10-09-2008, 04:12 PM
Replies: 6
Views: 1,713
Posted By grandma2
yes elaine, i'm having the test tomorrow...thanks

yes elaine, i'm having the test tomorrow...thanks
Forum: Herceptin / Tykerb 10-09-2008, 03:07 PM
Replies: 6
Views: 1,713
Posted By grandma2
well i talked to the lab that does the test today...

well i talked to the lab that does the test today and yes it is only for the genes that would show if i have the enyzme or not. i can't seem to find anyone else who has had this test. am i that...
Forum: Herceptin / Tykerb 10-08-2008, 07:55 PM
Replies: 6
Views: 1,713
Posted By grandma2
thanks brenda...i think tomorrow i might just...

thanks brenda...i think tomorrow i might just call the company...they have a 800 #. this office manager is a sweetheart but very strongwilled and insistent on what is what. i felt much better after...
Forum: Herceptin / Tykerb 10-08-2008, 06:30 PM
Replies: 6
Views: 1,713
Posted By grandma2
has anyone had this?

saw onc today. of course we discussed my inability to tolerate xeloda. last attempt was 2000mg daily. she wants me to have the 5 FU/capecitabine toxicity test. hutchick suggested this and i asked...
Forum: Herceptin / Tykerb 10-02-2008, 05:50 PM
Replies: 13
Views: 1,838
Posted By grandma2
thank all of you for your comments and advice. ...

thank all of you for your comments and advice. am feeling better since i stopped xeloda again...just still tired. i was so weak for days that i think all the diarhhea for days messed up my...
Showing results 1 to 25 of 45
Page 1 of 2 1 2

 
Forum Jump

All times are GMT -7. The time now is 11:42 AM.
Contact Us - HER2 Support Group - Archive - Privacy Statement - Top

Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter