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Forum: Clinical Trials 01-18-2010, 07:22 AM
Replies: 104
Views: 38,557
Posted By carykim
Re: Neratinib Clinical Trial

You have to be within 2 years of your last Herceptin and currently NED to enroll.

Vanessa--I read on another board that a few women finishing up Herceptin "prequalified" for the study so they...
Forum: Clinical Trials 01-17-2010, 03:21 AM
Replies: 104
Views: 38,557
Posted By carykim
Re: Neratinib Clinical Trial

Took so much immodium on day 3 (when the diarrhea first started) that I was stopped up and bloated day 4.

Day 5 I was back to wishing for diarrhea to get some relief from the unbearable...
Forum: Clinical Trials 01-14-2010, 08:37 PM
Replies: 104
Views: 38,557
Posted By carykim
Re: Neratinib Clinical Trial

I enrolled on Tuesday and am on day three of the pills at the 240 mg dose. First day just a little light-headedness. Audible gurgling in my belly at night. Yesterday a bit of nausea while working out...
Forum: her2group 06-23-2008, 08:58 PM
Replies: 20
Views: 2,585
Posted By carykim
post-menopause life

Janelle--

Not sure whether to post here or at YSC. I read Katie's response to you, and she laid out the reasons why I ended up with an ooph + AI. I took Tamoxifen for a few months during...
Forum: her2group 06-22-2008, 10:08 PM
Replies: 20
Views: 2,585
Posted By carykim
formerly premenopausal ER+ PR- checking in

Hi Janelle--

I've been lurking for months, and your post made me dig up my login/password because I remember well being exactly where you are a year ago.

I've read all those same reports that...
Forum: her2group 09-27-2007, 06:17 PM
Replies: 18
Views: 2,184
Posted By carykim
protein too??

Janet/FL--what you wrote about protein is so frustrating and sums up for me why it's so impossible to know what the right choices are. I've given up alcohol altogether out of fear that it would make...
Forum: her2group 08-14-2007, 08:56 PM
Replies: 18
Views: 2,697
Posted By carykim
Julie-- I'm so sorry to hear your news. I...

Julie--

I'm so sorry to hear your news. I hope you get an answer from some of the more experienced ladies soon on which treatment to go with.

Thinking of you and your family tonight and...
Forum: her2group 08-11-2007, 07:39 AM
Replies: 4
Views: 1,031
Posted By carykim
(((Julie))) The waiting to find out is...

(((Julie)))

The waiting to find out is torture. Sending positive thoughts your way and hoping that the marker is elevated for a B9 reason.

xo
Cary
Forum: her2group 07-25-2007, 09:35 PM
Replies: 24
Views: 3,006
Posted By carykim
Hi Swanky-- It's like running into you at...

Hi Swanky--

It's like running into you at Target to see you on a different board. Hope you get the answers you are looking for.

xo
cary
Forum: her2group 07-20-2007, 07:41 AM
Replies: 23
Views: 2,020
Posted By carykim
thinking of you...

I've been thinking of you all week and will send up a special prayer for you today and all my strength and support to Georgia.

xo
Cary
Forum: her2group 07-04-2007, 06:47 PM
Replies: 4
Views: 1,583
Posted By carykim
I don't know about the website you quote, but as...

I don't know about the website you quote, but as far as what your onc was describing with "sophomore and junior" cancer cells hiding out, I know from experience this is true.

DCIS (ductal...
Forum: her2group 07-04-2007, 06:40 PM
Replies: 6
Views: 1,082
Posted By carykim
Tell me it's nothing....

Had CT scans following chemo, surgery and rads. Brain and abdomen are clear. Chest had two tiny spots:

"Ill-defined subpleural nodules" 2mm each, one on each side. I guess this is not technically...
Forum: her2group 06-26-2007, 07:42 AM
Replies: 10
Views: 1,165
Posted By carykim
Thank you, petesmom! I know the answer--like...

Thank you, petesmom!

I know the answer--like with practically every decision in my cancer treatment--is that it's up to me and what I can live with. But just knowing I'm not the only one who's had...
Forum: her2group 06-25-2007, 07:41 AM
Replies: 10
Views: 1,165
Posted By carykim
ER+ BRCA- but having an ooph...

Hello Ladies--
I've been lurking a while and reading all your informative posts, but now I've got a question.

Even though I'm BRCA-, my onc is recommending an ooph to turn off the estrogen faucet...
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