HonCode

Go Back   HER2 Support Group Forums > Search Forums
Reload this Page Search Results
Register Gallery FAQ Members List Calendar Today's Posts

Page 1 of 6 1 23 Last »
Showing results 1 to 25 of 148
Search took 0.02 seconds. Search: Posts Made By: KRISS
Forum: Clinical Trials 09-02-2010, 10:50 AM
Replies: 104
Views: 38,551
Posted By KRISS
Re: Neratinib Clinical Trial

I don't find it too bad. My Onc sets up my bloodwork, ekg, muga and his visit on the same day and usually takes 1/2 the day. The fact that after the first visit or 2 you go to every three months...
Forum: Clinical Trials 06-21-2010, 12:38 PM
Replies: 104
Views: 38,551
Posted By KRISS
Re: Neratinib Clinical Trial

Well, just got back from my 6 month check in and am told I have to go off the drug. Blood work and Ekg are great but my muga dropped from 68 to 42. Protocol says off drug for 3 weeks then redo the...
Forum: Clinical Trials 05-02-2010, 04:15 PM
Replies: 104
Views: 38,551
Posted By KRISS
Re: Neratinib Clinical Trial

Hi Ladies and welcome to those of you who are just starting. I am in week 20 and doing great! The diarrhea is still a daily event but every now and then I get a slow day, haha. Savta I was the...
Forum: Clinical Trials 02-19-2010, 06:16 AM
Replies: 104
Views: 38,551
Posted By KRISS
Re: Neratinib Clinical Trial

Hang in there Bethany. I did well on the 5 pill dose and in fact going to ask to go back to that. Tired of feeling "not right". The GI system is constantly on the go making noises and causing...
Forum: Clinical Trials 02-05-2010, 04:07 PM
Replies: 104
Views: 38,551
Posted By KRISS
Re: Neratinib Clinical Trial

Hello Ladies
Sorryit took me so long to tell you about my 1 month visit. Had a nasty infection that kept me in bed but doing great now. All my blood work looked great as well as my ekg. They...
Forum: Clinical Trials 01-15-2010, 06:03 AM
Replies: 104
Views: 38,551
Posted By KRISS
Re: Neratinib Clinical Trial

Well I'm on day 12 of my resart at 200mg and for the last 2 days my life has been almost normal. Only going to the bathroom 2x a day. Wow. I take my pills at night as well Patty. See the doc on...
Forum: Clinical Trials 01-09-2010, 09:56 AM
Replies: 104
Views: 38,551
Posted By KRISS
Re: Neratinib Clinical Trial

becuase I have not been eating well during this I tried to take supplements as well as Ensure. Both caused be to vomit which I never did during chemo! I always thought I was pretty tough but this...
Forum: Clinical Trials 01-08-2010, 02:20 PM
Replies: 104
Views: 38,551
Posted By KRISS
Re: Neratinib Clinical Trial

Wow, at least I know I'm not alone. I have my 1 month on the 18th and am very interested to see what my levels are. Will the increase your dose again after some time or will you always stay at the...
Forum: Clinical Trials 01-08-2010, 10:56 AM
Replies: 104
Views: 38,551
Posted By KRISS
Re: Neratinib Clinical Trial

I took the 1st dose at bedtime and the symptoms started first thing in the morning. By the 3rd day it was unbearable. They started me again on Monday and dropped my dose to 200mg. I started the...
Forum: Clinical Trials 12-23-2009, 11:23 AM
Replies: 104
Views: 38,551
Posted By KRISS
Re: Neratinib Clinical Trial

Thanks ladies for the support. After going to the bathroom 37 times in a 24 hour period and vommiting they took me off the drug for 10 days. After one missed dose I feel like a new person, almost...
Forum: Clinical Trials 12-19-2009, 06:07 AM
Replies: 104
Views: 38,551
Posted By KRISS
Re: Neratinib Clinical Trial

I just started this trial on Monday and am not having that good of time. The diarrhea is uncontrollable for me even with prescription drugs. They say they will probably either cut my dose or take...
Forum: her2group 09-18-2008, 10:05 AM
Replies: 5
Views: 1,222
Posted By KRISS
Casting For Recovery

Hi Ladies
It has been a while since I've posted but wanted to share something wonderful. This past weekend I had the fantastic opportunity to be selected as one of 14 BC survivors to participate...
Forum: her2group 03-28-2008, 10:28 AM
Replies: 23
Views: 2,687
Posted By KRISS
I was only on tamoxafine for about 3 months when...

I was only on tamoxafine for about 3 months when they switched me to femara after my hysterectomy. I had no side affects for the first 2 months but for the last three have had horrible joint and...
Forum: her2group 03-19-2008, 09:49 AM
Replies: 13
Views: 1,907
Posted By KRISS
my insurance company just gave me a book on this...

my insurance company just gave me a book on this topic. I have not read very far but so far it has great insight and information. It's called LIVING BEYOND BREAST CANCER, A SURVIVOR'S GUID FOR...
Forum: her2group 03-01-2008, 02:33 PM
Replies: 3
Views: 1,334
Posted By KRISS
I saw it last week and thought the same. Chemo...

I saw it last week and thought the same. Chemo was totally different for me. It did bring up many emotions from my experience. I saw it with my husband and mother and I could see it hit them the...
Forum: her2group 03-01-2008, 02:29 PM
Replies: 27
Views: 3,605
Posted By KRISS
I'm 15 months out and have to say my income is...

I'm 15 months out and have to say my income is the same as it was before BC. I received chemo every two weeks so I would take the week of chemo off and work the following week. I was fortunate that...
Forum: her2group 02-18-2008, 07:51 AM
Replies: 8
Views: 1,712
Posted By KRISS
Marie First of all do not feel like a...

Marie
First of all do not feel like a complainer. We all are going through a horrible thing. Our bodies and mood change with the doctors appointment of the day. You have every right to feel...
Forum: her2group 01-29-2008, 11:08 AM
Replies: 16
Views: 1,946
Posted By KRISS
Congrats Maryanne. even though I am very...

Congrats Maryanne. even though I am very jealous. I thought my last one would have been yesterday but I still have one more to go. I can't wait. I know you are rejoycing. Now go out and LIVE!!!!
Forum: her2group 01-29-2008, 11:05 AM
Replies: 7
Views: 1,379
Posted By KRISS
I too have been using these stamps since DX as...

I too have been using these stamps since DX as well as my entire family. I tell friends that they cost a little more, but for those who cannot afford a large lump sum donation this is the easiest...
Forum: her2group 01-29-2008, 10:58 AM
Replies: 32
Views: 4,068
Posted By KRISS
I admit I had the same reaction as the two of you...

I admit I had the same reaction as the two of you did. Finding out I had BC was bad enough but then they tacked on the her2 a week after surgery and the wall came tumbling down. All I could find on...
Forum: her2group 01-25-2008, 10:26 AM
Replies: 4
Views: 987
Posted By KRISS
I have had two different kinds of muga scans. At...

I have had two different kinds of muga scans. At two different places. One place refuses to use it and the other depends on if there is a nurse who can come and access it. I have a power port. I...
Forum: her2group 01-20-2008, 02:44 PM
Replies: 13
Views: 2,863
Posted By KRISS
Thank You Ladies I still have about a month...

Thank You Ladies
I still have about a month and a half supply left. That will get me through all my herceptin. I will try all the suggestions. After looking at my coverage better I find they...
Forum: her2group 01-19-2008, 12:16 PM
Replies: 13
Views: 2,863
Posted By KRISS
anyone ever stop taking AI

Well, my new insurance just started and they cancelled our perscription part. I am not sure I will be able to afford the $300 for femara every month. Has anyone ever stopped taking it and done OK? ...
Forum: her2group 01-17-2008, 11:13 AM
Replies: 17
Views: 1,322
Posted By KRISS
Thank you all so much for thinking of me...

Thank you all so much for thinking of me yesterday. Let me tell you it was much better than last year. I was doing chemo last year. My husband is out of town but I had friends come over and just...
Forum: her2group 01-11-2008, 11:44 AM
Replies: 21
Views: 2,051
Posted By KRISS
Thank you Thank you Thank you Ladies for all your...

Thank you Thank you Thank you Ladies for all your prayers. They were answered. We got the path report today. Node Neg. Margins clear, No her2 or hormone. The mass in one breast was fibroids. ...
Showing results 1 to 25 of 148
Page 1 of 6 1 23 Last »

 
Forum Jump

All times are GMT -7. The time now is 04:16 AM.
Contact Us - HER2 Support Group - Archive - Privacy Statement - Top

Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter