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Search: Posts Made By: jaykay
Forum: her2group 03-15-2023, 07:48 PM
Replies: 2
Views: 1,023
Posted By jaykay
Re: Reclast

I use reclast for osteopenia. I currently get it once every 18 months and it has helped with increased bone density. I received it more frequently during chemo but was off it for 5 years before...
Forum: her2group 08-29-2022, 08:20 AM
Replies: 11
Views: 1,534
Posted By jaykay
Re: AndiBB

I'm so sorry to hear this. Like many other members of this group, I was in awe of Andi and her journey(s). My condolences to her family and friends
Forum: her2group 03-18-2022, 02:37 PM
Replies: 2
Views: 1,900
Posted By jaykay
Re: Verna has earned her wings.

So sorry to hear this. She fought a long fight, my sympathies to her family and friends.
Forum: her2group 01-13-2022, 05:09 PM
Replies: 11
Views: 2,989
Posted By jaykay
Re: The party's over?

Oh Pam, what a way to start the new year. I’m betting on you to celebrate your 70th in Italy in September!

Best,
Janis
Forum: her2group 11-30-2021, 10:14 AM
Replies: 2
Views: 1,206
Posted By jaykay
Re: Silicone Breast Implant ?

My silicone implants are 8 years old (also double mastectomy). I have had some discomfort around my left nipple the past couple of months - I had nipple sparing mast. I do get an MRI every year and...
Forum: Profiles In Courage 10-12-2021, 03:21 PM
Replies: 64
Views: 59,676
Posted By jaykay
Re: How many years NED? Give others hope

8 years NED. Fingers and toes crossed. So nice to see everyone ��
Forum: her2group 06-27-2021, 01:54 PM
Replies: 47
Views: 10,231
Posted By jaykay
Re: its back

Donna, hang in there. When I was going through chemo, Imodium was like eating candy - did nothing for the runs. Ask your doc for a prescription for lomotil - it is a controlled substance but works...
Forum: her2group 06-16-2021, 08:27 AM
Replies: 12
Views: 2,797
Posted By jaykay
Re: Hello from Flori

Flori, I’ve been thinking about you quite a lot lately and am sooo glad you’re doing remarkably well!

Congrats on the grandson and keep on keeping on!
Forum: her2group 05-27-2021, 03:04 PM
Replies: 6
Views: 1,982
Posted By jaykay
Re: Chemo - I need to make a decision

Paul - The "70" I was referring to is my age. And I definitely get what you are saying. Like most people our age (and unfortunately younger), I've seen more than a few people I consider close...
Forum: her2group 05-14-2021, 04:14 AM
Replies: 6
Views: 1,982
Posted By jaykay
Re: Chemo - I need to make a decision

Hi, sorry you have this decision to make but as Imani says, there are many women on this board who are still alive and living their lives with no restrictions after many years. As far as Her2+ bc,...
Forum: her2group 04-06-2021, 01:35 PM
Replies: 5
Views: 1,790
Posted By jaykay
Re: tooth paste

Biotene products - I didn't use the toothpaste but used the mouthwash. It was recommended by my oncologist's office
Forum: her2group 03-30-2021, 02:23 PM
Replies: 47
Views: 10,231
Posted By jaykay
Re: its back

You can do this, Donna. And yes, it is such a mental game.

My thoughts are with you!

Janis
Forum: her2group 03-03-2021, 01:43 PM
Replies: 9
Views: 2,177
Posted By jaykay
Re: Genetic Testing

Hi - I had genetic testing after my first diagnosis and was BRCA negative. Fast forward to 2018 and a suggestion that I get re-tested since the there were more mutations tested for than BRCA in the...
Forum: her2group 01-07-2021, 03:54 PM
Replies: 7
Views: 2,600
Posted By jaykay
Re: Finally 2021

Echoing Becky and Donna. You will always have support with this group. I also had a melanoma removed from my upper chest; actually right in the middle of my collarbone over 5 years ago. I blame...
Forum: her2group 05-06-2020, 03:23 PM
Replies: 7
Views: 3,017
Posted By jaykay
Re: 15 cancerversary

Happy 15th, Jean! I remember when you reached out to me 8 years ago when I recurred after 12 years of NED.

Here’s to many more cancer free years for both of us and continued development of...
Forum: her2group 03-15-2020, 01:16 PM
Replies: 22
Views: 8,983
Posted By jaykay
Forum: her2group 02-29-2020, 11:13 AM
Replies: 22
Views: 8,983
Posted By jaykay
Re: ENHERTU aka DS8401A

So glad to hear from you, Flori! Your strength continues to amaze me and I hope the new regimen(s) provide you with a better qol. You rock!

Janis
Forum: her2group 02-21-2020, 10:09 AM
Replies: 12
Views: 3,903
Posted By jaykay
Re: Site problem?

I am seeing “not secure” as well on my iPad using safari. I don’t recall ever seeing that it was a secure site
Forum: her2group 12-09-2019, 02:18 PM
Replies: 5
Views: 2,113
Posted By jaykay
Re: Osteoporosis: is it caused by chemo?Not just aging?

I’ve had osteopenia since I went through menopause 20+ years ago (pre breast cancer). Being on letrozole for many years does not help but I’m holding my own. My vitamin d levels have always been...
Forum: her2group 12-09-2019, 02:07 PM
Replies: 11
Views: 3,288
Posted By jaykay
Re: Melanoma Biopsy when almost 5yrs NED BC.

Hi Jessica,

Sorry you had to go though the angst of another cancer. I also had a melanoma removed 3.5 years ago. I noticed it myself, my dermatologist did the biopsy and I was shocked to hear it...
Forum: her2group 09-10-2019, 09:20 AM
Replies: 72
Views: 28,788
Posted By jaykay
Re: Whack-a-mole next...

Great news, Flori!
Forum: her2group 09-05-2019, 09:50 AM
Replies: 72
Views: 28,788
Posted By jaykay
Re: Whack-a-mole next...

Dear Flori,

I'm with Jessica re: doctors and their timelines. Many of us would be speaking from the grave if their timelines were valid.

Thinking of you and sending positive thoughts

xoxo...
Forum: her2group 09-01-2019, 11:52 AM
Replies: 9
Views: 3,570
Posted By jaykay
Re: Tamoxifen - 8-10 years?

I took Tamoxifen for 4.5 years and Femara (letrozole) for 5 years after my first bout with breast cancer. 2 years after I stopped, I had a new primary (I call it a recurrence!) tumor in my "healthy"...
Forum: her2group 08-16-2019, 08:41 AM
Replies: 72
Views: 28,788
Posted By jaykay
Re: Whack-a-mole next...

Like everyone else you have touched - thinking of you, Flori. Hang in there!
Forum: her2group 06-24-2019, 11:06 AM
Replies: 72
Views: 28,788
Posted By jaykay
Re: Whack-a-mole next...

Aw, f__k, Flori! No words of wisdoms, only love and positive thoughts.
Showing results 1 to 25 of 467

 
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