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Forum: her2group 01-19-2012, 09:18 AM
Replies: 41
Views: 21,853
Posted By SunDiego
Thumbs up Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

It's been a while since I've last posted an update... but not for any other reason than life has returned to a level of normalcy.

My wife's last 13 months of scans, including a PET/CT, bone scan...
Forum: her2group 02-09-2011, 12:08 PM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Hi everyone, sorry for no recent updates, but returned to the office today after being out for the last few days doing updated scans... GREAT NEWS!
First PET/CT Aug 5
SUV 10.8
Size 3.7 x 3.2...
Forum: her2group 11-30-2010, 04:05 PM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

No radiation current in the plans. Thinking we may want to avoid Xeloda/Tykerb since it seems the only recruiting TDM-1 trial excludes those who have previously used Xel/Tyk. Would be a shame to...
Forum: her2group 11-30-2010, 11:37 AM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Just a quick update on my wife's tumor marker improvements (CA 15-3)

1003 as of 8/3/2010 (first reading pre-first chemo)
527 as of 8/30
334 as of 9/15
102 as of 10/11
47.9 as of 10/29
25.3...
Forum: her2group 11-04-2010, 11:15 AM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Just a quick update...
CA 15-3
1003 as of 8/3 (first reading)
527 as of 8/30
334 as of 9/15
102 as of 10/11
47.9 as of 10/2
It's amazing to see this tumor marker go from over 1000 to under...
Forum: her2group 10-14-2010, 12:33 PM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Wife just completed 4th of 6 TCH treatment. Ran tumor marker tests on the day of treatment and it dropped nearly 70% in the last month.

CA 15-3
1003 as of 8/3 (first reading)
527 as of 8/30...
Forum: her2group 09-16-2010, 11:03 AM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Just wanted to give a quick update. My wife did a follow up PET/CT yesterday. First TCH was done on Aug 9, a second on Aug 30, and third will be on Monday. The numbers related to the isolated liver...
Forum: her2group 09-01-2010, 12:27 PM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Wife's second TCH was Monday... Tumor Marker CA 15-3 was redone and dropped from 1003 to ~550 (still seems awefully high, but Onc was thrilled). Full healthy thick head of hair still (those on TCH,...
Forum: her2group 08-23-2010, 08:18 AM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Question all... my wife just started TCH two weeks ago (1 of 6 completed). Been reading a lot about Tykerb as well and think it could be a good addition to the treatment. Is that possible?
Can one...
Forum: her2group 08-18-2010, 08:15 AM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Liver biopsy came back positive for metastatic breast. Chemo treatment doesn't change. We will monitor this very closely and med onc feels confident it will repond to TCH. We're feeling optimistic...
Forum: her2group 08-13-2010, 11:53 AM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Unfortunately the PET scan of the liver came back highly metabolic (SUV = 10.8), and the tumor markers were highly elevated (both CA 15-3 and CA 27-29). One was 678 and the other 1003. Not sure how...
Forum: her2group 07-29-2010, 08:07 AM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Liver mass is in an area that both surgeons separately said could not be biopsied.... if/when it had to be removed it would be full open surgery and they would need to take 40% of liver (only if it...
Forum: her2group 07-28-2010, 03:52 PM
Replies: 41
Views: 21,853
Posted By SunDiego
Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

A few updates... my wife found a great medical oncologist she is very comfortable with that came highly recommended. Along with a second (or was that a third opinion?) from City of Hope...
Forum: her2group 07-21-2010, 09:22 AM
Replies: 41
Views: 21,853
Posted By SunDiego
32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

Here is the full background....

We recently discovered (mid June 2010) a lump in my 32 year old wife's right breast, and immediately followed up with ultrasound > core needle biopsy > MRI >...
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