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Search: Posts Made By: mamacze
Forum: her2group 06-14-2022, 03:16 AM
Replies: 5
Views: 301
Posted By mamacze
Re: Seminars on breast cancer vaccines at UW Seattle

Hi Mel3,
You are a vaccine “alumni” as well - and you are still NED, that’s great! I wonder how many of us on this site are UW vaccine alum?
I too signed up for a couple of sessions, (one is on my...
Forum: her2group 06-13-2022, 09:59 AM
Replies: 5
Views: 301
Posted By mamacze
Re: Seminars on breast cancer vaccines at UW Seattle

Hi Laura - the link will be emailed out later today.
It is good to see your name - I always feel like I am coming “home” when I visit this site. (I also sent you an email!)
Forum: her2group 06-01-2022, 04:12 AM
Replies: 5
Views: 301
Posted By mamacze
Seminars on breast cancer vaccines at UW Seattle

If you have any interest in exploring a breast cancer vaccine I highly recommend these sessions:
...
Forum: Events and Social Calendar 06-01-2022, 04:05 AM
Replies: 0
Views: 436
Posted By mamacze
Vaccine Clinical trial info seminar at UW

Good news! This is open to the patient public. (I received my vaccine through clinical trial here and found the staff to be knowledgeable and kind hearted.) If you would like more information I...
Forum: her2group 10-14-2020, 05:17 AM
Replies: 2
Views: 1,152
Posted By mamacze
Smile Cancer vaccines - more info!

I know there is no cure and not many sure fire treatments
But this lady (Dr Nora Disis) is a real trailblazer (not to mention warm, kindhearted generous and smart as a whip)
Sixteen short years...
Forum: her2group 09-30-2020, 05:20 PM
Replies: 5
Views: 1,268
Posted By mamacze
Re: Just accepted into clinical trial

So happy to hear you got into a clinical trial that will boost your own immunity.
Your thoughts are perfectly reasonable are are worth a conversation with the PI.
Please post a link to the trial...
Forum: her2group 09-30-2020, 05:15 PM
Replies: 4
Views: 2,432
Posted By mamacze
Re: Tucatinib Is Active Against Brain Metastases in HER2+ Breast Cancer

It is heartening to read of a drug for brain mets that increases OFS by 6 months; not bad efficacy.
Thanks for posting Lani! It is great to see you are still active on the message boards.
Kim from...
Forum: her2group 09-30-2020, 05:07 PM
Replies: 11
Views: 3,224
Posted By mamacze
Re: It's Been Awhile

Hey Laurel,
Thanks! It is good to be active and back on the message boards. I always loved your signature - yes I think you just might hang around awhile.... !! Are you still on Tamoxifen??
Kim...
Forum: her2group 09-30-2020, 02:59 PM
Replies: 22
Views: 3,589
Posted By mamacze
Re: 15 Years out!

And here you are Tricia, FIFTEEN (!!) years out - it warms my heart to come back to these boards after a long time out and "seeing" you and all of these familiar names. Better than a comfortable...
Forum: her2group 09-25-2020, 05:56 PM
Replies: 16
Views: 5,239
Posted By mamacze
Re: mouth sores

Hi Pam,
I had many many mouth sores early in my treatment course and know first hand just how miserable they can be. My oncologist had me try a prescription mouth rinse called Caphasol. It worked...
Forum: her2group 09-25-2020, 05:37 PM
Replies: 2
Views: 1,097
Posted By mamacze
Re: New vaccine trial for stage 4 patients

Hi Steph! I am so happy to see your name and see that you are still active and doing well. It just warms my heart. Please - check your inbox - I sent you a pm. Hopefully we will talk soon. and...
Forum: her2group 09-20-2020, 11:21 AM
Replies: 11
Views: 3,224
Posted By mamacze
Re: It's Been Awhile

Hi Kim,
Your alter ego Kim from CT here - It has been awhile for me as well and I am saddened to hear of this progression for you, but happy to see your post right away when I logged on today. I...
Forum: her2group 12-23-2016, 06:30 AM
Replies: 40
Views: 15,529
Posted By mamacze
Re: 15 years stage IV - no drugs in 8yrs - still NED

Wow- StephN - I peek in on the boards today and your joyful update is the first post I see - so providential and such wonderful holiday news! Not only are you doing well but you continue to shower...
Forum: her2group 07-05-2016, 09:42 AM
Replies: 36
Views: 14,006
Posted By mamacze
Re: 12 years Stage 4 - Still A-OK

Valleygirl - Perjeta and Herceptin are showing promising results - take heart!
Godspeed to you and your family.
Kim (from CT)
Forum: her2group 06-28-2016, 04:52 AM
Replies: 27
Views: 6,966
Posted By mamacze
Re: Chest pain

Hi Pipandor - you are smart to gauge the experience of others but at the same time I don't think I would delay alerting my doc to chest pain. You never know and truthfully you have enough on your...
Forum: her2group 06-08-2016, 04:45 AM
Replies: 36
Views: 14,006
Posted By mamacze
Re: 12 years Stage 4 - Still A-OK

Hi Annette- and look at you "stable - stable - and Stable"! God willing you too will make it another 12 - and your beautiful daughter will hold you in her arms at her high school graduation. When I...
Forum: her2group 06-08-2016, 04:33 AM
Replies: 42
Views: 23,085
Posted By mamacze
Re: Karen has moved on

My heart is sick- there are no words.
Forum: her2group 06-07-2016, 02:45 PM
Replies: 36
Views: 14,006
Posted By mamacze
Re: 12 years Stage 4 - Still A-OK

Hey Ellie F - how nice to see your name pop up! I often think of you with a smile- how are you doing now?? XO
Forum: her2group 05-27-2016, 06:28 PM
Replies: 36
Views: 14,006
Posted By mamacze
Re: 12 years Stage 4 - Still A-OK

Becky!! Kim from Ca! This is like old home week! I am so happy to see you are all doing well. And Marie thank you for your good wishes. Kim call the TVG - you just might get into a booster trial and...
Forum: her2group 05-26-2016, 07:39 PM
Replies: 36
Views: 14,006
Posted By mamacze
Re: 12 years Stage 4 - Still A-OK

Hey old friend - StephN, {{{hugs}}} right back atcha! I am so happy to see you are still NED and your port is removed?!! Wow, Lucky you! Yes, my onc called the Tumor Vaccine Group folk in Seattle...
Forum: her2group 05-26-2016, 05:46 PM
Replies: 36
Views: 14,006
Posted By mamacze
Re: 12 years Stage 4 - Still A-OK

Thank you for your well wishes, and Trisha Keegan, how nice to see your familiar "face". I hope you are well.
Forum: her2group 05-26-2016, 05:09 AM
Replies: 36
Views: 14,006
Posted By mamacze
Smile 12 years Stage 4 - Still A-OK

Bringing my happy dance to this forum of old friends and pals - and God willing a small bucket of hope to the newly diagnosed. I remember well the sky high anxiety that I felt when I first heard...
Forum: her2group 09-16-2014, 08:42 PM
Replies: 0
Views: 1,135
Posted By mamacze
Smile 2014 MBCN Conference this weekend - Anyone Going?

The Metastatic Breast Cancer Network is having there National Conference this weekend in Chapel Hill, North Carolina - is anyone going? (www.mbcn.org) I would love to connect with my her2 sisters...
Forum: her2group 09-16-2014, 08:35 PM
Replies: 14
Views: 2,233
Posted By mamacze
Re: CAYA gets to eat chocolate!

Happy Birthday Caya - 8 years NED!! Way to go - and so happy you too are a chocolate lover!!
XO
Forum: her2group 08-07-2014, 07:54 PM
Replies: 52
Views: 7,914
Posted By mamacze
Re: I'm NED

Your good news just knocked me off my feet!! Ann, I couldn’t be happier for you! You hung in there, tried this tried that, and oh my God, here you are at the party arm and arm with NED!! You made...
Showing results 1 to 25 of 500

 
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