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Search: Posts Made By: Lauriesh
Forum: her2group 02-15-2017, 05:34 AM
Replies: 10
Views: 5,633
Posted By Lauriesh
Re: Runny Nose

I never found anything that helped with the runny nose, but I would use an actibacterial cream on the inside of my nose which seemed to help with the bleeding and soreness.
Forum: her2group 01-18-2017, 06:55 AM
Replies: 21
Views: 8,903
Posted By Lauriesh
Re: Long-term Herceptin: How many and how's it effecting your life?

I stopped herceptin after being Ned for 4 years, because of increasing side effects. I have been off all meds for 2 years now and still Ned.
Forum: her2group 12-23-2016, 03:23 PM
Replies: 40
Views: 14,679
Posted By Lauriesh
Re: 15 years stage IV - no drugs in 8yrs - still NED

Congratulations Steph!
When I was diagnosed with liver mets in 2010, you were one of the people who gave me hope that I could survive to see my kids grow up. That was 2010. I have now been Ned for...
Forum: her2group 04-29-2016, 09:04 AM
Replies: 21
Views: 7,516
Posted By Lauriesh
Re: Law suit due to Taxotere permanent hair loss/balding

The lawsuit is not to get taxotere taken off the market, it is still available and will always be. The lawsuit is because it is alleged that the manufacturer had info that it caused permanent hair...
Forum: her2group 04-28-2016, 04:04 PM
Replies: 21
Views: 7,516
Posted By Lauriesh
Re: Law suit due to Taxotere permanent hair loss/balding

I just want to add the dr is not being sued. I clarified that before I joined the lawsuit that my dr wouldn't be included.
Forum: her2group 03-19-2016, 12:50 PM
Replies: 3
Views: 3,308
Posted By Lauriesh
Re: taxotere lawsuit

I joined one of the lawsuits. I have no hair on the top of my head and only very thin hair on the sides and back.
I don't know how much hair loss you have to have. I would just call them. I just had...
Forum: her2group 03-05-2016, 07:01 AM
Replies: 14
Views: 4,573
Posted By Lauriesh
Re: Majority of breast cancer patients develop symptoms of PTSD

PTSD is not just for soldiers. I have seen drs use the term with with women who were raped or molested. Also, people in traumatic car accidents, terror attacks, etc.m
Forum: her2group 02-19-2016, 07:05 AM
Replies: 17
Views: 5,487
Posted By Lauriesh
Re: discovering why some Stage IVs are exceptional responders to herceptin/lapatinib(

Tracy, I went off herceptin in jan, 2015 after being Ned for 4 years.
I had my scans in nov, still clear, so will be Ned for 5 years feb 23.

Laurie
Forum: her2group 01-31-2016, 07:00 AM
Replies: 72
Views: 28,299
Posted By Lauriesh
Re: I think I'm in trouble!

I don't know the size of your dcis, but when I was originally diagnosed I had a large dcis tumor ( confirmed by biopsy). I had a mastectomy 4 days after being diagnosed, and it turned out that along...
Forum: her2group 01-15-2016, 06:38 AM
Replies: 2
Views: 3,078
Posted By Lauriesh
Re: Basic Definitions

I have seen women use NEAD - no evidence of active disease. I think that would describe your situation. Ned came about because the report will say " no evidence of metastatic disease"
I have only...
Forum: her2group 01-09-2016, 06:07 AM
Replies: 9
Views: 3,720
Posted By Lauriesh
Re: Puzzled??

They aren't standard treatment because they have not been successful enough. They started with the original vaccine, but it didn't produce enough of an immune response, so then they started trying...
Forum: her2group 01-07-2016, 01:21 PM
Replies: 9
Views: 3,720
Posted By Lauriesh
Re: Puzzled??

I had to take a break from my herceptin treatments in order to do my trial. I think I was off for about 5 months, then went back on when trial was completed.
Forum: her2group 10-16-2015, 05:50 AM
Replies: 46
Views: 7,710
Posted By Lauriesh
Re: Invited to a talk by Dr Slamon.

I stopped after 4 years Ned because the side effects were just getting too much. It has only been 9 months since I stopped, but so far I'm doing ok. I have my next scan in Nov.
Forum: her2group 10-12-2015, 06:45 PM
Replies: 46
Views: 7,710
Posted By Lauriesh
Re: Invited to a talk by Dr Slamon.

Was he talking about women who had herceptin and perjeta in early stage when he was talking about being cured after 3 years?
If hewas just talking about chemo w/ herceptin, I recurred after 3 years...
Forum: her2group 09-03-2015, 10:01 AM
Replies: 5
Views: 2,877
Posted By Lauriesh
Re: On Herceptin for 5 years or more

I stopped herceptin after 4 1/2 years. My last treatment was in Jan, 2015 and i have been Ned since feb, 2011.
Forum: her2group 06-22-2015, 04:39 AM
Replies: 10
Views: 2,966
Posted By Lauriesh
Re: Some Slight Consolation

This is so interesting to me, as I have 3 teenagers and the oldest will be graduating high school next year.
I couldn't find any programs that helped stage 4 cancer patients help pay for their kids...
Forum: her2group 04-22-2015, 06:15 AM
Replies: 12
Views: 2,716
Posted By Lauriesh
Re: Brain mets but no systemic disease

I think having stage 4 cancer means it is systemic.
It had to travel through your body to get to your brain,so I guess I don't see it as much different than having liver or lung mets.
I had...
Forum: her2group 04-07-2015, 05:43 AM
Replies: 7
Views: 1,876
Posted By Lauriesh
Re: Mastectomy & Radiation with Stage 4 Diagnosis

Yes, I have heard of stage 4 women who had surgery after thier mets became Ned or stable., but they still had a breast lump remaining.
but, if there is no sign of a lump left in your breast, I...
Forum: her2group 03-12-2015, 04:59 AM
Replies: 3
Views: 1,330
Posted By Lauriesh
Re: Herceptin dosage

They usually adjust it after 10% gain or loss of weight. At least that is what I was told . I have been losing weight and the dr commented that because I had lost over 10%, they were going to lower...
Forum: Caregivers Corner 02-18-2015, 06:07 PM
Replies: 19
Views: 10,475
Posted By Lauriesh
Re: What about non-orthodox "cures"? Have you tried?

There are no guarantees that tamoxifen will keep the cancer from returning, but there are studies and trials,etc that show it definitely reduces the risk of recurrence. It would not have been...
Forum: Caregivers Corner 02-18-2015, 05:33 PM
Replies: 19
Views: 10,475
Posted By Lauriesh
Re: What about non-orthodox "cures"? Have you tried?

I give you credit for researching and trying to help your sister, but this is her fight and she needs to do it her way.
honestly,I would resent my sister always telling me about this cure or that,...
Forum: her2group 01-07-2015, 05:24 PM
Replies: 12
Views: 2,693
Posted By Lauriesh
Re: Recommended: regular brain MRIs for all HER2+ patients

I think it is going to be very hard to convince your onc to give you MRI 's without symptoms.
I have stage 4, and my onc won't order brain MRI's unless I have symptoms . And from reading on here and...
Forum: her2group 01-03-2015, 06:10 AM
Replies: 22
Views: 2,831
Posted By Lauriesh
Re: Are blood tests really that important in follow up care?

Even though you say that you don't think that you could respect and trust an oncologist, it is imp that you have one because if the cancer returns, you will have a lifelong relationship with them.
I...
Forum: her2group 12-30-2014, 09:46 AM
Replies: 21
Views: 4,698
Posted By Lauriesh
Re: ER-/PR- HER2+ Recurrence Period

I think the confusion is that " catching it early " is referring to stage 4 , and that catching liver mets for example, when they are 1 cm compared to 3 cms doesn't improve survival rates. It is more...
Forum: her2group 12-22-2014, 06:19 PM
Replies: 389
Views: 134,109
Posted By Lauriesh
Re: Calling all stage iv sisters

Hi,
I don't think I have posted lately on this thread.
I also am doing well after being diagnosed with liver mets in July, 2010.
This Feb, I will be Ned for 4 years.
I have 3 kids. My little...
Showing results 1 to 25 of 192

 
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