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Search: Posts Made By: cyalata
Forum: her2group 07-03-2011, 06:41 AM
Replies: 1
Views: 1,231
Posted By cyalata
mystery fever?

I was in the hospital for 3 days over the weekend because of a fever that would go up & down. This has been going on for about 2 weeks. They did numerous tests on me & couldn't find any reason so...
Forum: her2group 05-21-2011, 05:50 AM
Replies: 7
Views: 1,907
Posted By cyalata
Re: Has anyone asked for a test to be redone

Thank you all - I know brain mets can be controlled but mine happen to be in the lining which is more difficult. I saw my onc yesterday & they need to do wbr because there are 2 small lesions on the...
Forum: her2group 05-20-2011, 05:37 AM
Replies: 7
Views: 1,907
Posted By cyalata
Has anyone asked for a test to be redone

I had a brain mri about 6 weeks ago, all normal; went to another facility with new & improved super machine due to shaking in arm, leg & teeth on left side & showed highly abnormal brain activity,...
Forum: her2group 05-18-2011, 11:56 AM
Replies: 7
Views: 2,847
Posted By cyalata
NEED SUPPORT TODAY! More bad news.

I had an mri of my brain yesterday because I had shaking on my left side of my body a few days ago. The MRI shows highly abnormal in brain. The lining of the brain looks like cancer & they want to...
Forum: her2group 05-11-2011, 10:12 AM
Replies: 12
Views: 1,926
Posted By cyalata
Re: Please help me get through this

Thanks Kris - I do have Ativan from when I found out about my mets but haven't taken it since this new finding. I will take it though - it did help me relax. I'm going for my first radiation...
Forum: her2group 05-11-2011, 06:58 AM
Replies: 5
Views: 1,367
Posted By cyalata
Re: Is it ok to have dental check up while on Zometa?

I work at a periodontal office & one of our doctors has done lots of research on this. From what I know, the chances of osteonecrosis of the jaw are extremely rare. But if you need any invasive...
Forum: her2group 05-10-2011, 02:32 PM
Replies: 12
Views: 1,926
Posted By cyalata
Re: Please help me get through this

Thank you all for your support. I went to the radiologist today & she said the report was so much worse than the scan acutally is. Her & her partner looked at the scan & said it's not that bad, not...
Forum: her2group 05-09-2011, 12:48 PM
Replies: 12
Views: 1,926
Posted By cyalata
Please help me get through this

Pulled a muscle in my leg over a week ago, went for MRI 2 days ago & my onc called me today at work & said I have a tumor on the back of my neck pressing on my spinal cord! I am so depressed &...
Forum: her2group 05-08-2011, 07:28 AM
Replies: 26
Views: 5,931
Posted By cyalata
Re: dairy products

My friend runs a wellness clinic in Chicago & when she found out my breast cancer metasticized she said I HAVE to do a vegan diet. I did great for 2 months & got my first PET/CT scan since starting...
Forum: her2group 05-05-2011, 02:40 PM
Replies: 47
Views: 5,426
Posted By cyalata
Re: Once again - news is NED

Thank you so much for the great advice on eating! As far as sugar goes, do you eat food that has evaporated cane juice or do you check for the grams of sugar in foods like dry cereal? Also, do you...
Forum: her2group 05-03-2011, 08:26 AM
Replies: 20
Views: 2,603
Posted By cyalata
Re: Staying Sane During Wash-Out Periods

I was hoping for the TDM-1 trial also but they saw a suspicious spot on my brain so I wasn't eligible. Started on tykerb/xeloda had scan 2 months later & mets in right lung gone, sternum nodes gone,...
Forum: her2group 05-01-2011, 07:30 AM
Replies: 47
Views: 5,426
Posted By cyalata
Re: Once again - news is NED

You are such an inspiration! Yes, I'm also interested in your eating habits. I've heard vegan is the way to avoid cancer. I did it for 2 months & got a great response on my PET scan but then got...
Forum: Herceptin / Tykerb 04-26-2011, 03:14 PM
Replies: 10
Views: 6,782
Posted By cyalata
Re: Question re: hand/foot syndrome

My hand/foot syndrome has been unbearable lately. I have cracks on my hands & feet are always peeling & sore. I can hardly move my hands when I first wake up. I have tried udderly smooth, bag balm,...
Showing results 1 to 13 of 13

 
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