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Search: Posts Made By: NanaJoni
Forum: her2group 06-01-2013, 10:07 AM
Replies: 28
Views: 2,654
Posted By NanaJoni
Re: Need to be able to...EAT!

I lost almost 50 lbs when I was doing treatments (sadly have gained back a good deal of it) but I found that I could tolerate things that were cold and sweet, i.e., sherbert, milkshakes, ice cream,...
Forum: Keeping Your Mind Off of BC 05-31-2013, 09:19 AM
Replies: 5
Views: 6,106
Posted By NanaJoni
Re: My New Shirt

I have one like this, too. Love to see the look on people's faces when they read it. LOL
Forum: her2group 05-29-2013, 06:41 PM
Replies: 60
Views: 5,005
Posted By NanaJoni
Re: Not ready

Good luck with the procedure and hoping for minimal pain. Please post on how it goes - we're always interested and it may help someone who will have to go through the same thing.
Forum: her2group 05-24-2013, 08:13 PM
Replies: 25
Views: 5,094
Posted By NanaJoni
Re: Smackdown Round 2!

Hoping in a few days you will be the "Incredible Shrinking Woman" - and that is really good news about the Avastin.
Forum: her2group 05-22-2013, 02:46 PM
Replies: 7
Views: 2,769
Posted By NanaJoni
Re: Chronic anemia + sluggish bone marrow = frequent transfusions

Jessica - I had the problems with anemia during chemo and ended up getting transfusions of two units of packed red cells 6 different times. After I stopped chemo, the anemia stayed and was...
Forum: her2group 05-03-2013, 03:00 PM
Replies: 79
Views: 15,143
Posted By NanaJoni
Re: NEDenise vs NEDecadron Smackdown!

Denise - WONDERFUL news!!. My drum is still rolling. You've been through so much and still bring such joy to the rest of us. I know the steroids are making you feel a little like the Pillsbury...
Forum: her2group 04-28-2013, 04:00 PM
Replies: 7
Views: 1,644
Posted By NanaJoni
Re: Herceptin/Benadryl

My first benadryl before a treatment sent me into overdrive - I jumped up out of the chair after about 2 minutes following the dose. Then I paced back and forth as far as the IV tubes would let me...
Forum: General Cancer News 03-29-2013, 01:13 PM
Replies: 1
Views: 791
Posted By NanaJoni
Re: Viewpoints: Budget woes leave Democrats with painful choices; David Kessler on he

I am one of the millions of baby boomer who WORKED for the last 48 years of my life and contributed to the tax base that funded medicare for our parents, SS disability and SSI for those in need and...
Forum: her2group 03-29-2013, 12:58 PM
Replies: 14
Views: 1,697
Posted By NanaJoni
Re: Back to Wills Eye on Tuesday...

Barb - I think many of us pray for this group on a daily basis. It means a lot to me to still know that there is so much caring here. So know that you are prayed for as well. Easter blessing to...
Forum: Diet and Nutrition 03-25-2013, 08:24 AM
Replies: 8
Views: 3,741
Posted By NanaJoni
Re: Should I take anti-oxidants prior to, during, and post treatment?

This is pretty standard and I'll bet Jackie will have the research to back up your onc's position. During chemo and for a while after it's always best to stay away from any supplements unless your...
Forum: her2group 03-23-2013, 07:34 PM
Replies: 40
Views: 9,971
Posted By NanaJoni
Re: Survivors

Such an interesting thread, Ladies. How we define this disease and its effects on us is colored by so many different experiences and personalities. I, very personally, consider myself a...
Forum: her2group 03-18-2013, 08:04 PM
Replies: 35
Views: 3,180
Posted By NanaJoni
Re: 8 years since brain mets ... and counting

Congrats, Steph. And thanks for letting us share in your good news.
Forum: her2group 03-18-2013, 05:35 PM
Replies: 105
Views: 21,825
Posted By NanaJoni
Re: Brain Mets - new or old?

Sweet girl - we never get tired of praying for you. It's just what we do! So sorry you're having the decadron blues - I have to take 5 mg of prednisone every day (forever) now because of some lung...
Forum: her2group 03-18-2013, 11:31 AM
Replies: 17
Views: 2,082
Posted By NanaJoni
Re: Need advice - warning - not pretty

My onc nurses told me to keep and take Metamucil every day. Which I did most of the time - it is high fiber and really helped. But as always, don't take or use anything without checking with your...
Forum: her2group 03-16-2013, 09:24 AM
Replies: 40
Views: 9,971
Posted By NanaJoni
Re: Survivors

I use the date my dr told me my biopsy was positive for breast cancer. Not long after my diagnosis I was at our local American Cancer Society office looking at wigs. The wonderful lady who was...
Forum: her2group 03-12-2013, 02:58 PM
Replies: 6
Views: 1,061
Posted By NanaJoni
Re: EF's

I did Herceptin for 11 months - had some lung problems related to radiation and my onc decided not to press my luck. When I stopped Herceptin my last echocardigram showed an EF of 50%. That was a...
Forum: her2group 03-12-2013, 10:30 AM
Replies: 7
Views: 3,209
Posted By NanaJoni
Re: Ugh, Aflac Insurance woman brings tears.

Linn- it really is a grieving process. You have lost the person you were before bc and cancer takes so many things away from you. As hard as it is, it's normal and really does get better with...
Forum: her2group 03-01-2013, 03:08 PM
Replies: 19
Views: 1,731
Posted By NanaJoni
Re: Not sure what to think of the info I got today

Leah - so glad your dr was reassuring today (and is kind enough to know you needed a hug). I have some scarring from radiation treatments on top of a lifetime of ashthma and bronchitis which also...
Forum: her2group 02-27-2013, 08:32 PM
Replies: 105
Views: 21,825
Posted By NanaJoni
Re: Brain Mets - new or old?

Denise - I hope you know how much we all love you and how hard we are praying.
Forum: her2group 02-25-2013, 09:56 AM
Replies: 18
Views: 1,975
Posted By NanaJoni
Re: It has been a LONG time...

Rhonda - thank you so much for posting. It's folks like you and your willingness to share with us that make this group such a blessing. Congrats on passing your eight yr mark.
Forum: her2group 02-18-2013, 12:55 PM
Replies: 22
Views: 4,964
Posted By NanaJoni
Re: Thoughts on drinking alcohol

I think you are right, Bonnie - and I've used those exact words many times over the last 3 years. As for this study - did they factor in how many people who drink alcohol also smoke, or have jobs...
Forum: her2group 02-16-2013, 08:26 AM
Replies: 33
Views: 1,811
Posted By NanaJoni
Re: Eight is GREAT!!!

Denise - that's what I've been doing so far and your thinking on it is exactly right. So many dates that I can't seem to let go of-March 1 (found lump), March 9 (got diagnosis), March 31st...
Forum: her2group 02-16-2013, 08:10 AM
Replies: 11
Views: 1,198
Posted By NanaJoni
Re: What could it be?

Yup - me too. I still have to shave legs but not very often and underarms not at all. Of course since I'm an old lady, I have plenty of hair growing on my upper lip. I've wondered if the lack of...
Forum: her2group 02-15-2013, 08:51 PM
Replies: 20
Views: 1,928
Posted By NanaJoni
Re: One year Stage IV - triumph and trepidation?

You got lots of crossed fingers and some hands folded in prayer.
Forum: her2group 02-15-2013, 02:30 PM
Replies: 33
Views: 1,811
Posted By NanaJoni
Re: Eight is GREAT!!!

Yeah!!! Wonderful - and thank you so much for all you do for others. A quick question - what date do you celebrate? - diagnosis, finish of treatments? I've asked my onc but he just shrugs. ...
Showing results 1 to 25 of 243

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