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Search: Posts Made By: supportwife
Forum: her2group 03-09-2020, 11:22 AM
Replies: 2
Views: 1,122
Posted By supportwife
Corona Virus

Hello Friends,

How are infusion centers and oncologists responding to Corona Virus? Are they taking extra precautions for patients?

Thanks
Forum: Herceptin / Tykerb 01-09-2020, 11:40 AM
Replies: 9
Views: 3,007
Posted By supportwife
Re: After 9 years on Herceptin,heart ef crash

My wife experienced the same thing, however the doctor prescribed an ace inhibitor carvedilol and she was back on herceptin. Hope it helps.
Forum: her2group 11-18-2019, 10:37 AM
Replies: 10
Views: 6,312
Posted By supportwife
Re: Wife's Demise

Thanks everyone for the kind words. Seems like yesterday when she was diagnosed at 35, 2 weeks after her birthday. Seven years passed by so fast. She put on a very brave fight for the kids. ...
Forum: her2group 10-03-2019, 09:04 AM
Replies: 10
Views: 6,312
Posted By supportwife
Wife's Demise

Hello All,

Itís with a sad heart I say that my true friend, my soulmate, a loving mother and my wife Sarada passed away yesterday after a strong 7 year battle with cancer.

Thanks a lot for all...
Forum: her2group 04-23-2019, 10:24 AM
Replies: 7
Views: 1,326
Posted By supportwife
Re: Could this be Skin Mets?

Hello,

My wife has been fighting skin mets for past 7 years. She underwent several rounds of chemo and 90 radiations to the skin ( a life time max ). Having said that, there were time when there...
Forum: her2group 09-17-2018, 09:33 AM
Replies: 7
Views: 3,372
Posted By supportwife
Re: DS-8201A Trial

Thanks Donna, The only thing that's bothering her right now is extreme fatigue and nausea.
Forum: her2group 09-14-2018, 09:46 AM
Replies: 7
Views: 3,372
Posted By supportwife
Re: DS-8201A Trial

Thanks All,

The scans came out okay. Brain clear, CT clear except for insignificant increate in lymph nodes. Eye exam clear. My wife had her first infusion of DS-8201 yesterday. So far nothing...
Forum: her2group 09-05-2018, 10:40 AM
Replies: 7
Views: 3,372
Posted By supportwife
DS-8201A Trial

Hi Friends,

My wife is enrolling in the ds8201 trial. However, prior to trial the doctors want her to go through a list of tests. I can understand CT, Brain MRI etc. However they are asking her...
Forum: Herceptin / Tykerb 02-22-2018, 12:09 PM
Replies: 7
Views: 2,681
Posted By supportwife
Re: Lisa D

Hi Lisa,

My wife had the same issue while on herceptin alone and she was put on coreg ( minimum dose ) to bring back the LVEF back to normal. Once that was done she continued with Herceptin. As...
Forum: her2group 01-19-2018, 10:15 AM
Replies: 31
Views: 9,347
Posted By supportwife
Re: Need input, KADCYLA or TAS116?

Hi Kim,

Since you have been on Kadcyla for so long, has it happened that they have suspended treatment for a few weeks to get platelets up? My wife was on kadcyla in the past, they switched...
Forum: her2group 01-18-2018, 02:34 PM
Replies: 40
Views: 15,965
Posted By supportwife
Re: Amy? (Mtngrl)

RIP Amy. You were such an inspiration. Whatever little interaction we had, you were so supportive of my wife's situation, in spite of all the turbulences you went through. Will miss you and your...
Forum: her2group 10-30-2017, 12:35 PM
Replies: 13
Views: 4,530
Posted By supportwife
Re: Any good chemos I could try?

Hi Amy,

Did you look into the option of Tucatinib, apparently it has shown good results for brain mets.
Forum: her2group 02-23-2017, 03:54 PM
Replies: 9
Views: 4,562
Posted By supportwife
Re: Surgery for cutaneous mets

Hi Steve,

Are you in US? I have been researching for places which offer electro chemotherapy here.

Thanks
Forum: her2group 02-23-2017, 12:19 PM
Replies: 4
Views: 4,182
Posted By supportwife
Re: Is late afternoon and evening tiredness a side effect ?

With continuous treatments, my wife experiences the same symptoms. She needs her afternoon nap otherwise by evening she feels dog tired.
Forum: her2group 02-23-2017, 12:17 PM
Replies: 9
Views: 4,562
Posted By supportwife
Re: Surgery for cutaneous mets

My wife has cutaneous mets, however the surgeons have stated that it would be very hard to surgically excise a cutaneous met. The skin being such a large organ and since they cannot determine the...
Forum: her2group 02-21-2017, 01:29 PM
Replies: 5
Views: 5,614
Posted By supportwife
Re: Any of you have Axillary Web Syndrome?

Hi Brenda,

My wife started experiencing something similar since December in her left hand. Doctors did an MRI to see if they could see anything but there wasn't anything in her left arm other...
Forum: her2group 02-17-2017, 12:05 PM
Replies: 9
Views: 4,361
Posted By supportwife
Re: CT scan vs PET scan

Here in America and we have been to two premium university hospitals, they have never done PET scan for my wife. They did it only once for radiation planning. The doctors are very comfortable with...
Forum: her2group 02-16-2017, 02:59 PM
Replies: 12
Views: 4,489
Posted By supportwife
Re: Sophia

Thanks a lot Phil, I am hoping Xeloda works with herceptin.
Forum: her2group 02-14-2017, 01:27 PM
Replies: 12
Views: 4,489
Posted By supportwife
Re: Sophia

So my wife was randomized into the Xeloda+Herceptin arm. We were so hoping to get MGAH22. The doctor said, give it 6-9 weeks and see how it helps. If not then go the next one. 9 weeks wait it is.
Forum: her2group 02-08-2017, 01:01 PM
Replies: 9
Views: 7,263
Posted By supportwife
Re: Any information on these trials would be helpful

I talked to the trial coordinator, they said we will know what drugs we are going to get once we are randomized. At that point we are free to decide whether we want to participate at that time. ...
Forum: her2group 02-06-2017, 03:00 PM
Replies: 9
Views: 7,263
Posted By supportwife
Re: Any information on these trials would be helpful

Thanks Tiffany, Doctor is suggesting we enroll into Margetuximab trial first. If we enroll into Keytruda trial we will not be eligible for Margetuximab trial later. If for some reason it fails we...
Forum: her2group 02-02-2017, 10:58 AM
Replies: 12
Views: 4,489
Posted By supportwife
Re: Sophia

My wife is getting into the SOPHIA trial with Margetuximab + chemo. Here in California it is a blinded trial. THe options are MGAH22+chemo or Herceptin+chemo. We are not sure which side we are...
Forum: her2group 01-30-2017, 10:51 AM
Replies: 9
Views: 7,263
Posted By supportwife
Any information on these trials would be helpful

Hi All,

we are evaluating if my wife is eligible for these trials for her skin mets.


1. Margetuximab with Vinorelbine

2. Pembroluzimab with herceptin and Vorinostat.
Forum: her2group 01-05-2017, 01:08 AM
Replies: 1
Views: 2,904
Posted By supportwife
Anybody using immunotherapy for her2+

Hi All,

currently my wife is getting treated for skin mets and currently on ASTELLAS trial, which is getting Enzalutamide + herceptin. it worked for a while but now the doctor is considering...
Forum: her2group 08-03-2016, 12:48 PM
Replies: 2
Views: 3,393
Posted By supportwife
Medical Insurance question

Hi All,

Currently My wife , mykids and I are on my wife's medical insurance plan through her company. However starting December, that will end as she is going to be switched to Medicare as she is...
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