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Search took 0.01 seconds. Search: Posts Made By: Marilyn
Forum: her2group 03-15-2011, 06:05 PM
Replies: 389
Views: 154,662
Posted By Marilyn
Re: Calling all stage iv sisters

Stage IV since July of 2001.
Forum: her2group 03-15-2011, 05:55 PM
Replies: 42
Views: 16,827
Posted By Marilyn
Re: Chemotherapy Permanent Hair Loss

I am "hair challenged". First had Taxotere in 2000 for four doses. My hair grew back thick and curly. Mets to bones in 2001 and 6 months of weekly Taxotere, Herceptin, and Zometa (although I'm not...
Forum: her2group 04-06-2010, 06:11 AM
Replies: 32
Views: 9,595
Posted By Marilyn
Re: Eyelashes--Need Some!

I have been using Latisse for a few weeks now and I can see little eyelashes starting to grow. I checked around for the cost and it was the least expensive ordering through Medco. My opthamologist...
Forum: her2group 02-07-2010, 08:59 PM
Replies: 46
Views: 10,146
Posted By Marilyn
Re: Positive stories, please come out of the woods

Here's a positive story for you. I was diagnosed on Feb. 8th, 2000. I had 12 of 19 lymph nodes positive and opted for a double mastectomy. I had chemo and radiation at this time. In July of 2001...
Forum: her2group 12-29-2009, 04:34 PM
Replies: 6
Views: 1,860
Posted By Marilyn
Re: Scan Frequency

Yes, I am definitely thinking a total workup and scans. I've never had a brain MRI but I think I might want one....can't believe I'm saying that because I am so claustrophobic. I've had an MRI and...
Forum: her2group 12-28-2009, 07:32 PM
Replies: 6
Views: 1,860
Posted By Marilyn
Re: Scan Frequency

With the thought of stopping Herceptin I am now seeking out all the information that I can. It's almost like when I was newly diagnosed. I can't get enough information and am having a hard time...
Forum: her2group 12-28-2009, 04:38 PM
Replies: 6
Views: 1,860
Posted By Marilyn
Scan Frequency

How often do those of you who have metastatic breast cancer have scans? I have bone mets and haven't had scans in 3 years. I have been disease free since 2002 so I'm assuming that is why my...
Forum: her2group 12-28-2009, 12:16 PM
Replies: 47
Views: 4,636
Posted By Marilyn
Re: My Idea for a Game Show

I had a thought....now what was it???
Forum: her2group 12-28-2009, 12:13 PM
Replies: 37
Views: 14,546
Posted By Marilyn
Re: Bilateral mastectomy support group

I had bilateral mastectomies when I was diagnosed in 2000. I did visit a plastic surgeon once but didn't end up having reconstruction. I didn't want to give up the time to surgery, healing etc. I...
Forum: her2group 12-12-2009, 09:05 PM
Replies: 11
Views: 2,302
Posted By Marilyn
Re: Discontinuing long term Herceptin

Steph, I am ER PR Negative. How nice that you have spoken to experts about discontinuing Herceptin after years of positive outcome. I look to this board often for answers and come away with so much...
Forum: her2group 12-08-2009, 05:59 PM
Replies: 11
Views: 2,302
Posted By Marilyn
Re: Discontinuing long term Herceptin

Thank you Chelee! I will discuss this further with the oncologist in 3 months so I have plenty of time to wait for replies. I'm with you....not sure I want to change things when they are going...
Forum: her2group 12-08-2009, 04:01 PM
Replies: 11
Views: 2,302
Posted By Marilyn
Discontinuing long term Herceptin

I saw my oncologist today and was thrown a bit of a loop when asked how I would feel about discontinuing Herceptin. I was diagnosed with Her-2 BC in Feb. of 2000 but did not qualify for the Herceptin...
Forum: her2group 08-06-2009, 03:27 PM
Replies: 20
Views: 3,207
Posted By Marilyn
Re: The cost of Herceptin

Adrianna I agree with you! Herceptin is priceless to me. Thank you all for your responses. I am covered by a very good health insurance plan but it does have a cap and that was my concern with the...
Forum: her2group 08-06-2009, 03:11 PM
Replies: 27
Views: 3,637
Posted By Marilyn
Re: lymphadema!

I used a tribute sleeve by Solaris for several years and it worked wonderfully. It was prescribed by my lymphedema therapist and she did the measurements. It is a made-measure-garment. I wore a...
Forum: her2group 07-13-2009, 06:39 AM
Replies: 20
Views: 3,207
Posted By Marilyn
Wow, I guess I am in the dark about the costs. ...

Wow, I guess I am in the dark about the costs. I just assumed it was the same price for everyone. I am at the same oncology clinic so I'm not sure. I have a treatment today so I am going to ask...
Forum: her2group 07-12-2009, 06:20 PM
Replies: 20
Views: 3,207
Posted By Marilyn
The cost of Herceptin

My Herceptin costs have recently increased from $4800.00 to $12,000.00. I get treatments every 3 weeks and have taken Herceptin since 2001. Does anyone have any idea why the price has increased so...
Forum: her2group 07-12-2009, 05:59 PM
Replies: 15
Views: 3,082
Posted By Marilyn
Thanks Sassy! I didn't even think to look at the...

Thanks Sassy! I didn't even think to look at the date just wondered about the price. Good idea to start a new thread.
Forum: her2group 07-11-2009, 09:58 PM
Replies: 15
Views: 3,082
Posted By Marilyn
Price Increase

I get treatments every 3 weeks and the price for Herceptin for me has more than doubled. I'm about the same price as you Sheila. What gives? Does anybody know why the price skyrocketed?
Forum: her2group 10-22-2008, 08:07 PM
Replies: 36
Views: 4,545
Posted By Marilyn
I am finding this very interesting. I was...

I am finding this very interesting. I was diagnosed in Feb. of 2000 and my surgeon is the one who told me of my Her2 status and that it was an agressive cancer but the good news was that there was a...
Forum: her2group 09-09-2007, 08:31 PM
Replies: 26
Views: 3,395
Posted By Marilyn
Becky, congratulations and I love your daughter's...

Becky, congratulations and I love your daughter's response! It's great that you are doing so well and I just want you to know that I always enjoy reading your posts.
Forum: her2group 04-13-2007, 01:03 PM
Replies: 6
Views: 1,261
Posted By Marilyn
Thank you everyone. I guess I'm just young at...

Thank you everyone. I guess I'm just young at heart and my body is not ready to be done with the ovaries working--I am. :-) At any rate it helps to hear that others have gone through this and I...
Forum: her2group 04-12-2007, 05:30 PM
Replies: 6
Views: 1,261
Posted By Marilyn
So far it's been for a couple of days and seems...

So far it's been for a couple of days and seems like a regular period. I am 51. I was kind of beginning to think that maybe I should see my ob/gyn about this as well. It's always good to hear someone...
Forum: her2group 04-12-2007, 03:41 PM
Replies: 6
Views: 1,261
Posted By Marilyn
Lupron

I have a question about Lupron. I was given the shots for about 2 years in order to shut down my ovaries. Normally I'm on top of things but I honestly don't know how long ago it's been since I...
Forum: Herceptin / Tykerb 10-17-2006, 08:25 PM
Replies: 182
Views: 27,514
Posted By Marilyn
I've been taking Herceptin since July of 2001. ...

I've been taking Herceptin since July of 2001. When I began Herceptin I was also taking Taxotere and Zometa. I took this combination each week for 6 months and continued the Herceptin and Zometa...
Forum: Herceptin / Tykerb 10-17-2006, 08:25 PM
Replies: 689
Views: 291,040
Posted By Marilyn
I've been taking Herceptin since July of 2001. ...

I've been taking Herceptin since July of 2001. When I began Herceptin I was also taking Taxotere and Zometa. I took this combination each week for 6 months and continued the Herceptin and Zometa...
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