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Search: Posts Made By: bevilj
Forum: Clinical Trials 01-29-2013, 12:05 PM
Replies: 3
Views: 4,381
Posted By bevilj
starting T-DM1 - what to expect?


I'm scheduled to start on the T-DM1 trial next week and am wondering what I am in for. I have googled and read several articles but am really interested in hearing from people who have...
Forum: her2group 07-06-2012, 03:21 PM
Replies: 5
Views: 2,549
Posted By bevilj
Re: Swollen Pituitary Gland/Optic Nerve

Thanks all for your replies. I wanted to give you an update and let you know that prednizone seems to be helping so far. I haven't vomitted in 2 weeks now! And my headaches are seemingly better...
Forum: her2group 06-28-2012, 01:46 PM
Replies: 5
Views: 2,549
Posted By bevilj
Swollen Pituitary Gland/Optic Nerve

Hi All,

For the last several weeks I have been getting sick regularly (vomiting/headaches/double vision). I think I have spent more time in bed than out of bed. My tumor markers have been good...
Forum: her2group 05-21-2012, 01:12 PM
Replies: 37
Views: 12,639
Posted By bevilj
Re: Bilateral mastectomy support group

Hi Nancy,

I'm glad you posted to this string. For all the months I have been on this site, I hadn't read these stories until now. I have often wondered how many others are out there like me......
Forum: her2group 05-21-2012, 12:39 PM
Replies: 19
Views: 2,341
Posted By bevilj
Re: T-DM1 & Pertuzumab Update

May you have a long and wonderful dance with NED!

I donated tissue awhile back myself after reading "The Immortal Life of Henrietta Lacks". If you haven't read it yet, I highly recommend it. ...
Forum: Herceptin / Tykerb 05-18-2012, 10:19 AM
Replies: 22
Views: 8,592
Posted By bevilj
Re: Herceptin & Tykerb Together

Hi Amy,

I am in the US and on the Tykerb / Herceptin (and Zometa) combo - although not part of a trial. I am also prescribed Xeloda but currently do not take it. My insurance would not approve...
Forum: her2group 05-17-2012, 11:48 AM
Replies: 6
Views: 1,117
Posted By bevilj
Re: Managing Energy and Diet

Hi Alicia,

I think both diet and exercise are important during/after treatment. Having said that, I'm not the best example of what to do at all times.

I used to be very active but find that...
Forum: her2group 05-17-2012, 11:07 AM
Replies: 12
Views: 1,677
Posted By bevilj
Re: Some Good News

Amy -

I have been following you on the boards for awhile now and have read your postings with great interest over the months. How wonderful (and cathartic?) that you were asked to write the...
Forum: her2group 05-17-2012, 10:16 AM
Replies: 9
Views: 1,564
Posted By bevilj
Re: Not the best PET--Need to brainstorm options

Hi, Sorry to read that you have progression and are in need of a different treatment plan. I read the other entries about Tykerb and Xeloda and wanted to share some details about both as I have had...
Forum: her2group 05-17-2012, 09:55 AM
Replies: 29
Views: 2,024
Posted By bevilj
Re: One decade...

Congrats! Reading your treatment history gives me hope as a fellow stage IV patient. Here's to another 10~
Forum: her2group 05-17-2012, 09:50 AM
Replies: 20
Views: 2,500
Posted By bevilj
Re: Stopping Working

Sorry to read that you are not feeling well enough to continue working. And lucky you to have full pay for a year so that you don't have to worry about income.

I hear you loud and clear on...
Forum: Herceptin / Tykerb 04-20-2012, 09:22 AM
Replies: 10
Views: 5,812
Posted By bevilj
Re: how long does it take for zeloda and tykerb to kick in

Hi Yanyan,

I was on the Xeloda/Tykerb combo for about a week when I started to notice a reduction in my skin mets. After a few months now, there is nothing visible. My tumor markers have also...
Forum: Herceptin / Tykerb 04-10-2012, 09:32 AM
Replies: 5
Views: 3,003
Posted By bevilj
Re: eloda and tykerb optimum dosage

Hi Amanda,

Sorry you are experiencing side effects with the Xeloda/Tykerb combo. I had a horrible time when I first started as well.

I take 5 Tykerb pills every morning when I wake up...
Forum: her2group 03-06-2012, 10:52 AM
Replies: 18
Views: 2,425
Posted By bevilj
Re: Social Security benefits??


I was on medical leave from work for approx. 6 months during my first course of treatment (surgery, chemo) and went back to work part-time when I started radiation (I was 38 at the time). 2...
Forum: her2group 03-06-2012, 10:21 AM
Replies: 389
Views: 134,590
Posted By bevilj
Re: Calling all stage iv sisters

2.5 years and counting! Some 'inconvenient' moments along the journey for sure but still going strong~

Never, never, never give up!
Forum: her2group 03-01-2012, 09:02 AM
Replies: 13
Views: 2,395
Posted By bevilj
Re: Herceptin and chills/joint pain?

I've experienced joint pain/discomfort, constant chills, and a runny nose since I started taking Herceptin. Since I've been taking a slew of other meds along the way, I never associated it with...
Forum: Herceptin / Tykerb 02-29-2012, 03:53 PM
Replies: 13
Views: 5,167
Posted By bevilj
Re: Questions on how you feel on Lapatinib and Xeloda

Hi Krissi,

Sorry to read that you have to start a new treatment plan. I'm hoping this one works wonders for you. I don't want to scare you with my story but I do want you to know that you are not...
Forum: Herceptin / Tykerb 02-01-2012, 10:47 AM
Replies: 7
Views: 8,391
Posted By bevilj
Re: Tykerb and weight gain

I've only been on Tykerb for ~2 mos. now (also Xeloda, Herceptin and Zometa) and have not experienced weight gain. Just the opposite actually. Due to the side effects I keep losing weight. Over 6...
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