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Search: Posts Made By: emmastarr
Forum: Herceptin / Tykerb 11-27-2012, 05:34 AM
Replies: 22
Views: 10,328
Posted By emmastarr
Re: Heart function decresed

Hi,
My EF droppped to below 50% and was put on an herceptin holiday- I was panic stricken at the time as I wanted to do everything possible to kick cancer's butt! So, I followed the advice of some...
Forum: her2group 09-14-2012, 01:10 PM
Replies: 11
Views: 1,138
Posted By emmastarr
Re: Scan results

That is great news, well done.
Forum: her2group 09-14-2012, 01:09 PM
Replies: 3
Views: 726
Posted By emmastarr
Re: Stopping tamox for surgery

When I had my bmx last year, my doctors told me to carry on taking the tamox. I only missed the day after the operation as I was a bit groggy, but that was all. I was concerned with not taking it...
Forum: her2group 09-14-2012, 01:06 PM
Replies: 10
Views: 1,338
Posted By emmastarr
Re: No more visits to Onc- is this right?

Thanks for all your replies, am still shocked that the Oncologist has cut me loose! I will speak to my breast care nurse when she gets back from annual leave to see what she thinks. If my current...
Forum: her2group 09-12-2012, 12:48 PM
Replies: 10
Views: 1,338
Posted By emmastarr
No more visits to Onc- is this right?

Hi ladies,
Well, I had a quick 5 minute appointment with my Onc today (he was very behind with his appointments!) and he told me that he doesn't need to see me anymore!! I am quite shocked about it...
Forum: her2group 06-26-2012, 02:05 PM
Replies: 4
Views: 1,702
Posted By emmastarr
Re: CT scan next week! :*(

Hi.
I finally got the CT scan results back today, and it has come back all clear. I am so relieved. The only thing that the scan picked up was an enlarged uterus, not sure what if anything they are...
Forum: her2group 06-13-2012, 02:52 PM
Replies: 4
Views: 1,702
Posted By emmastarr
CT scan next week! :*(

Hi all,
I have been breathless lately (not everyday, it comes and goes) so was sent for a chest xray which my oncologist said was fine when I saw him 2 weeks ago. My iron level is 12.4. Any ideas...
Forum: her2group 03-01-2012, 09:19 AM
Replies: 2
Views: 695
Posted By emmastarr
Reduced EF

Hi Ladies,
I am 3 months post my last herceptin. My last ECG, one month post herceptin was 65%, however I went for an ECG this morning and it has dropped to 56%, should I be worried? I know it is...
Forum: Herceptin / Tykerb 01-10-2012, 07:32 AM
Replies: 22
Views: 10,328
Posted By emmastarr
Re: Heart function decresed

Hi Jenny and NEDenise,
My EF dropped to below 50 after herceptin number 9 and was put on a herceptin holiday for 6 weeks. My Onc thought I had no chance of it improving to his minimum of 60, but it...
Forum: her2group 12-24-2011, 01:56 PM
Replies: 5
Views: 1,451
Posted By emmastarr
Re: Prophylactic Mastectomy?

Hi Funmom!
I felt exactly the same way, so I had a bilateral mastectomy and reconstruction with implants in July and am so pleased that I had it done. I just felt I needed to do it so that I felt in...
Forum: her2group 12-14-2011, 08:55 AM
Replies: 17
Views: 2,128
Posted By emmastarr
Re: Feeling low post treatment

Hello girls. Thank you very much for all your messages of advice- am trying very hard to get a grip but am finding things tough. I am seeing my breast care nurse tomorrow for a chat and hopefully she...
Forum: her2group 12-07-2011, 11:34 AM
Replies: 17
Views: 2,128
Posted By emmastarr
Feeling low post treatment

Hi ladies,
Finished herceptin about a month ago and have felt very low this past couple of weeks - I have no real appetite, feel teary, don't want to socialise etc which is very unlike me. My breast...
Forum: her2group 11-22-2011, 01:10 PM
Replies: 6
Views: 1,132
Posted By emmastarr
Re: What should I do?

Thanks for your responses ladies. They are guessing that the issue with my periods is tamoxifen related as I saw a gynae in the summer and had a hysteroscopy done which showed everything to be...
Forum: her2group 11-20-2011, 01:43 AM
Replies: 6
Views: 1,132
Posted By emmastarr
What should I do?

Hello Ladies,
Had my 6 month visit with the Onc this week, it went Okish. She asked whether I had any side effects on Tamoxifen and I mentionned the very heavy periods that I'm having. She went to...
Forum: her2group 11-08-2011, 09:11 AM
Replies: 8
Views: 1,277
Posted By emmastarr
Re: Last herceptin tomorrow!

My infusion has just finished!! My nurse has just left. I would like to thank you all for your messages, you always make me feel better.
I agree, Becky, it will really hit me in 3 weeks time when I...
Forum: her2group 11-07-2011, 09:15 AM
Replies: 8
Views: 1,277
Posted By emmastarr
Last herceptin tomorrow!

Hello everyone!
I have my last Herceptin tomorrow and am absolutely petrified about not having it anymore. Did you all feel this way? I am relieved however to be at the end of active treatment,...
Forum: her2group 10-21-2011, 11:00 AM
Replies: 40
Views: 4,159
Posted By emmastarr
Re: Finding Little Comfort in the Statistics of Survival

I agree, those stats aren't very encouraging at all.
Forum: her2group 09-11-2011, 01:17 PM
Replies: 18
Views: 2,630
Posted By emmastarr
Re: Scheduled Onc visits at 2nd Year of NED

I am 18 months out from diagnosis, and have not seen my Onc since April. I have not received any letters from the hospital for a follow up appointment- should I be requesting more regular...
Forum: her2group 08-13-2011, 10:40 AM
Replies: 25
Views: 5,532
Posted By emmastarr
Re: Women under 40

Hi Girls!
I was diagnosed on Feb 4th 2010 at the age of 32. I have two young boys, Louis 5 and Noah 2. Have been lucky to have lots of help from my parents and friends. I found the chemo a struggle,...
Forum: her2group 07-22-2011, 08:38 AM
Replies: 37
Views: 12,639
Posted By emmastarr
Re: Bilateral mastectomy support group

By the way, I went for a straight forward reconstruction of silicone implants, didn't have enough skin/flesh to make two new boobs, apparently!
Forum: her2group 07-22-2011, 08:37 AM
Replies: 37
Views: 12,639
Posted By emmastarr
Re: Bilateral mastectomy support group

I had a mastectomy last year and had a prophylactic mastectomy and double reconstruction on Tuesday, am in a lot of pain currently, but even thought I'm very swollen at the moment the results are...
Forum: her2group 05-27-2011, 03:46 AM
Replies: 3
Views: 1,753
Posted By emmastarr
Re: supplements and herceptin

Thanks for that Brenda, I will carry on with them then! x
Forum: her2group 05-25-2011, 12:04 AM
Replies: 3
Views: 1,753
Posted By emmastarr
supplements and herceptin

Another question for the experts!! I have been taking Ubiquinol. Omega 3s and vitamin D the past month in an attempt to raise my EF, which they did. I had my re-loading of herceptin yesterday after a...
Forum: her2group 05-25-2011, 12:00 AM
Replies: 11
Views: 2,360
Posted By emmastarr
Re: Fatigue

Thank you for all your advice and support, you have all made me feel much better knowing that this fatigue thing does go away at some point. xx
Forum: her2group 05-16-2011, 08:07 AM
Replies: 11
Views: 2,360
Posted By emmastarr
Fatigue

Hi girls!
Just after some advice really. Am feeling very fatigued today, feel like I've hit the wall. Have been fatigued since chemo etc and it hasn't really improved that much since I've been on...
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