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Search: Posts Made By: embur102
Forum: her2group 09-28-2015, 04:20 PM
Replies: 49
Views: 21,789
Posted By embur102
Re: Ugh Brain Mets!

Funny, Bev, I am not known for quick responses! Quite the opposite...I am not on this forum regularly, and rarely respond. I just happened to be on the site today!

Yes, I know the sleeplessness...
Forum: her2group 09-28-2015, 01:38 PM
Replies: 49
Views: 21,789
Posted By embur102
Re: Ugh Brain Mets!

Hi Bev.

I had rebound swelling and necrosis from Gamma knife 6 months after the treatment. Was put back on a heavy dose of dex----how we all know the UGH that comes with dex!!--and watched and...
Forum: her2group 01-24-2015, 12:30 PM
Replies: 16
Views: 2,509
Posted By embur102
Re: How many of us are taking some kind of medication for depression?

Like suzan w, I have been on anti-depressants before diagnosis, and after. I had a period of time in my life were I was suicidal....I now find it ironic that being diagnosed with a terminal illness...
Forum: her2group 01-24-2015, 12:23 PM
Replies: 49
Views: 21,789
Posted By embur102
Re: Ugh Brain Mets!

Two down, one to go! You are making it thru, girl!! :)

I love the "cooking bacon at 2 am" and strawberry blonde! Have fun with this...it makes all yukky stuff easier. ( I almost miss the...
Forum: her2group 01-14-2015, 02:25 PM
Replies: 49
Views: 21,789
Posted By embur102
Re: Ugh Brain Mets!

Yea! One down!

Glad to hear it went well. You will notice some fatigue, even with the crazy-making Dex. ( my therapist said the steroid-mania is like the mania in Bipolar Disorder. You may do...
Forum: her2group 01-13-2015, 03:17 PM
Replies: 12
Views: 2,870
Posted By embur102
Re: Recommended: regular brain MRIs for all HER2+ patients

I had no symptoms of having brain mets before having a seizure, and had not had a MRI.

I don't know if finding it earlier would have made much difference, in treatment or outcome. It has to be a...
Forum: her2group 01-13-2015, 03:12 PM
Replies: 4
Views: 1,766
Posted By embur102
Re: positive feedback

Thank you, Saygoon.

I, too, draw strength from the positive, strong, amazing, supportive women ( and men) on this board. Along with the support, I have also learned so much, that doctors and...
Forum: her2group 01-13-2015, 03:06 PM
Replies: 26
Views: 3,278
Posted By embur102
Re: Cyberknife Success and Ceesun

WootWoot! Doing the Happy Dance for you, Cathy!!
Forum: her2group 01-13-2015, 03:05 PM
Replies: 49
Views: 21,789
Posted By embur102
Re: Ugh Brain Mets!

Hi Dizzy,

In June, 2014 I had a brain met that was discovered by seizure, also....no other symptoms, or metastasis at that time.
Did the dex and Keppra....holy cow, was I a Hot Mess!!

Hang...
Forum: her2group 01-13-2015, 02:48 PM
Replies: 19
Views: 2,528
Posted By embur102
Re: Hny & poe

Happy New Year, Peace to All.

May 2015 (the Year of the Sheep) bless everyone with Life, Love and Laughter!!
Forum: her2group 01-13-2015, 02:46 PM
Replies: 32
Views: 4,276
Posted By embur102
Re: 10 years - one decade - since brain mets diagnosis

Congratulations, Steph, and yes, thank you for sharing! It gives us all encouragement that cancer, and brain mets, can be managed, for a long time!

You are a true inspiration, and warrior!
Forum: her2group 01-13-2015, 02:43 PM
Replies: 17
Views: 2,135
Posted By embur102
Re: NEDenise would have been 50 today

I second all that's been said: Happy Birthday, Denise!!
Forum: her2group 12-31-2014, 04:47 PM
Replies: 16
Views: 3,244
Posted By embur102
Re: Question on brain mets

Hi Bejuce,

I had "just one" brain met, no symptoms prior to seizure, and 9 months after finishing Herceptin and being declared NED. Was stage 2b at diagnosis, but the tumor of origin was very...
Forum: her2group 12-24-2014, 06:59 AM
Replies: 11
Views: 1,576
Posted By embur102
Re: Happy Her2+ Christmas!

Thank you, Pamelamary!

And another Happy Holidays to all!! And big THANK YOU for the love and support! This board has been an invaluable resource.

May 2015 bless you with JOY, love, laughter,...
Forum: Clinical Trials 12-24-2014, 06:30 AM
Replies: 2
Views: 11,650
Posted By embur102
Re: CLEOPATRA for HER2

I am currently on this treatment plan for liver mets. (the brain mets are being treated separately). Had two treatments so far. I find it very rough...the extreme fatigue is the worst...I am down...
Forum: her2group 11-29-2014, 07:25 AM
Replies: 25
Views: 4,481
Posted By embur102
Re: Is it okay to cuss on here?? Cuz this is a Bitch

Linn,

Cuss away! F*ck is my favorite word!!!!

Hugs to you, dear!
xoxoxoxoxoxoxoxoxoxox
Forum: her2group 11-29-2014, 07:16 AM
Replies: 6
Views: 2,044
Posted By embur102
Side effects-THP

Hi ladies!

I know there are numerous threads that address my questions but I am just too lazy to look for them right now. I appreciate your patience~

I started a new chemo regimen...
Forum: her2group 11-27-2014, 03:56 PM
Replies: 6
Views: 2,586
Posted By embur102
Re: What can I expect from brain rads?

I had Gamma Knife in June, to one 2 cm area. The procedure and side effects were very manageable. Initially, I had a positive response, with tumor shrinking 50 %. One month later, tumor had grown...
Forum: her2group 10-23-2014, 08:53 AM
Replies: 4
Views: 1,631
Posted By embur102
Mets-ers....does learning of progression ever get easier?

Since learning of liver mets two days ago, I have been a hot weepy mess. Just like I was at initial diagnosis, just like I was at brain mets diagnosis.

Does every step back feel just as bad as...
Forum: her2group 10-22-2014, 08:38 AM
Replies: 49
Views: 8,157
Posted By embur102
Re: Prayers for Kristin Schwick

Prayers for strength and healing
Forum: her2group 10-22-2014, 08:36 AM
Replies: 13
Views: 2,799
Posted By embur102
Re: Liver mets....advice?

This site and you ladies ( and gentlemen) are amazing! It is such a comforting feeling knowing that I can always come here for love and support. My gratitude overflows to each and every one of...
Forum: her2group 10-21-2014, 02:26 PM
Replies: 13
Views: 2,799
Posted By embur102
Liver mets....advice?

Hi ladies!

Just read the results of my CAT scan..."several new hypodense lesions in both lobes of liver, largest 13 mm....Impression: new intrahepatic metastatic lesions in both lobes of liver."
...
Forum: her2group 10-21-2014, 12:03 PM
Replies: 20
Views: 3,321
Posted By embur102
Re: End of my strength

Holding you in healing love and light, patty.
Forum: her2group 09-30-2014, 08:06 AM
Replies: 6
Views: 1,843
Posted By embur102
Accept Disability, or not?

Hello everyone,

Do any of you have experience with receiving disability? I was recently awarded disability under the Compassionate Care Allowance, (with Stage 4 brain mets they dont expect you to...
Forum: her2group 09-06-2014, 10:14 AM
Replies: 235
Views: 185,942
Posted By embur102
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Hello everyone!
I am late to this party,
Just found this thread today, 9-6-14.

I was initially diagnosed April, 2012...had R mastectomy May, 2012....A/C chemo July, 2012, followed by...
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