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Search took 0.01 seconds. Search: Posts Made By: Mykentuckyhome
Forum: her2group 11-05-2008, 01:51 PM
Replies: 83
Views: 10,486
Posted By Mykentuckyhome
praying for lily

Michael I hope thru all these messages you know how much Lily meant to us. She has been a brave soul and still had a kind word for us that were going thru the same trials. Give her a special hug from...
Forum: Clinical Trials 06-20-2008, 06:52 AM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
Thanks

Steph thanks for that post cause we all can use the encouragement. Chrissy are you back on track yet with your study? I hope so as I know you were doing so well. I know that if another study came up...
Forum: Clinical Trials 06-19-2008, 07:36 PM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
If at first you dont succeed try, try again. I...

If at first you dont succeed try, try again. I was so bummed with my first scans on the dmi study cause after the results came back I was out into the world of the unknown again. My scans came back...
Forum: Clinical Trials 06-10-2008, 07:07 PM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
Smile hanging in there

Runtolive, thanks for asking. I have been on navelbine & hercepton since feb. and my scans are next week. I have been feeling great and never lost my hair. hooray! The combo has been easy except for...
Forum: Clinical Trials 04-25-2008, 01:47 PM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
Thanks for the info crisy, Ill private message...

Thanks for the info crisy, Ill private message her for some other questions I have.
Forum: her2group 04-25-2008, 01:43 PM
Replies: 14
Views: 1,485
Posted By Mykentuckyhome
Hi Joan , I too have had rfa in Jna of 06. The...

Hi Joan , I too have had rfa in Jna of 06. The proceedure went very smoothly, they even let me out of the hospital early cause I diidnt have any pain. It put me ned for 6 mos. If my spots were small...
Forum: Clinical Trials 04-23-2008, 03:18 PM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
Wishing I could post good news but I cant. Please...

Wishing I could post good news but I cant. Please anyone on the dmi study you all keep thinking positive thoughts. I guess it wasnt in the cards for me as my scans showed alot of progression, so just...
Forum: her2group 04-11-2008, 07:59 AM
Replies: 8
Views: 1,294
Posted By Mykentuckyhome
Dear lily, I was on ty&x may 07 till feb. 08 and...

Dear lily, I was on ty&x may 07 till feb. 08 and had the same problems. In June I ended up in the hospital for dehydration and not able to wear anything on my feet but slippers. My onc had to cut the...
Forum: Clinical Trials 04-04-2008, 06:07 AM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
no side effects this time

I got my second infusion yesterday and asked for benadryl to be left out of my premeds, as I slept for days on my first infusion. So far I have had no side effects this time. My scans are next week...
Forum: her2group 04-03-2008, 06:16 PM
Replies: 7
Views: 1,135
Posted By Mykentuckyhome
Hi Eric, My first infusion I had flu like...

Hi Eric, My first infusion I had flu like symptoms for 3 days, today was my second infusion and I asked them to cut the benyedril from my pre meds which they did and I have had absolutely no side...
Forum: Clinical Trials 03-25-2008, 08:46 AM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
doing well

After 3 days of flu like symptoms since my infusion on the 13th everything has been good to go. I had a checkup on the 20th and my blood tests came back normal. I have another blood work appt. on...
Forum: Clinical Trials 03-14-2008, 12:17 PM
Replies: 64
Views: 18,253
Posted By Mykentuckyhome
started trial

Yesterday was my first infusion. I left with heartburn and chills but after sleeping half the day today im up and moving. I chalk that up to how many tubes of blood they took, at least ten by the...
Forum: Clinical Trials 03-07-2008, 12:45 PM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
still on track

hi runtolive, So far im scheduled on the 13th. I am in phoenix right now on vaca-lovin the sun so this was the first time I've logged on for awhile.I was so sorry to read lilly's post. Everything...
Forum: her2group 02-27-2008, 06:04 PM
Replies: 19
Views: 2,054
Posted By Mykentuckyhome
Dear newcomer, Although your onc. should always...

Dear newcomer, Although your onc. should always be consulted on things like that, I would think tykerb is very important because as I understand it, Tykerb passes the brain barrier for brain mets. I...
Forum: her2group 02-25-2008, 01:56 PM
Replies: 16
Views: 1,600
Posted By Mykentuckyhome
So happy for you. Getting those pesky scans are...

So happy for you. Getting those pesky scans are so hard on the mind. Take a deep breath and celebrate!!!!!!!!!
Forum: Clinical Trials 02-25-2008, 01:49 PM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
Great Article

Thanks for posting that article, finding any positive data makes me feel that I made the right choice. I have to go back to louisville for more tests but im still set for my first transfusion 3-13. I...
Forum: Clinical Trials 02-22-2008, 09:17 AM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
Post hi chrissy, I tried to see if I could have blood...

hi chrissy, I tried to see if I could have blood work done in my hometown but I understand everything must be regulated and you will have to see the doc anyway, just alot of time. You have it worse...
Forum: Clinical Trials 02-21-2008, 06:09 PM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
Thanks to all replied. I have to go to louisville...

Thanks to all replied. I have to go to louisville which is 1 1/2 hours away.Nobody else is on the study and they only have 2 slots. Maybe there was a reason md anderson turned me down, cause texas is...
Forum: Clinical Trials 02-21-2008, 12:02 PM
Replies: 31
Views: 8,872
Posted By Mykentuckyhome
Talking Crossing My Fingers On Mcc- Dm1 Study

I am so stoked as I signed my study consent forms yesterday. I haven't got an a official word yet, as I have to have a muga and a chest xray, which I dont see any problems there. My first infusion is...
Forum: her2group 02-11-2008, 03:36 PM
Replies: 29
Views: 3,049
Posted By Mykentuckyhome
Hope To Join You

hi chrissy, I hope to join you soon on this trial. My scans were today and I talked to my onc. last week who will only let me go on this trial if I have progressed significantly. I have been on...
Forum: Clinical Trials 02-02-2008, 01:01 PM
Replies: 64
Views: 18,253
Posted By Mykentuckyhome
mcc- dm1

I am seriously thinking of going on this trial. I got all the papers from louisville and Im going to talk to my onc on tues. I know that barb , marsha and lily are on this study, so the questions are...
Forum: Clinical Trials 01-28-2008, 03:32 PM
Replies: 64
Views: 18,253
Posted By Mykentuckyhome
Thanks run to live, I appreciate the info and...

Thanks run to live, I appreciate the info and article and plan to talk about this with my onc. As part of the requirement it says no more than 3 different chemos. Does that mean 3 different chemo...
Forum: Clinical Trials 01-27-2008, 10:42 AM
Replies: 64
Views: 18,253
Posted By Mykentuckyhome
mcc- dmi trial

I am very much interested in this trial. Can anyone tell me about it? What are the requirements ? I had taken hercepton for over 2 yrs. till I had progression. Please anyone? Are these trials at...
Forum: Breast Cancer News 12-08-2007, 11:50 AM
Replies: 1
Views: 1,453
Posted By Mykentuckyhome
Why are some women using herceptin and tykerb? I...

Why are some women using herceptin and tykerb? I thought you could use it only in conjunction with xeloda? does anybody have an answer?
Forum: her2group 11-07-2007, 03:58 PM
Replies: 9
Views: 2,567
Posted By Mykentuckyhome
Doxil user

I have used doxil starting in 06 for 9 months. It stopped working in May of 07. We actually had requested it to my onc because you dont lose your hair , been there done that.I toerated the drug...
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