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Forum: her2group

04-16-2008, 08:07 AM

Replies: 9

Treatment options? - Help

Views: 2,309

Posted By Daisypink

Hdac Inhibitor

Hi

I have been referred for a trial for an HDAC inhibitor, does anyone know anything about these or have experience of these??

Any help on this appreciated

Thanks

jakki
xxxx

Forum: her2group

03-24-2008, 01:11 AM

Replies: 9

Treatment options? - Help

Views: 2,309

Posted By Daisypink

Treatment options? - Help

Hi

Can anyone help or advise me? I have recently been diagnosed with a 3 cm liver met and bone mets to my sternum. I already have lung mets which are progressing too.

My Oncolgist is keeping...

Forum: her2group

10-09-2007, 01:16 AM

Replies: 19

can anyone help?

Views: 2,282

Posted By Daisypink

Hi there Just an update on me.. I saw my...

Hi there

Just an update on me.. I saw my oncologist yesterday..

I start Navelbine and herceptin next week. After that he says he will try a platinum based chemo and then move on to weekly...

Forum: Clinical Trials

10-08-2007, 01:45 AM

Replies: 7

Can anyone help?

Views: 3,792

Posted By Daisypink

Hi there Thank so much for the info you...

Hi there

Thank so much for the info you guys have all replied with.. i see my onoclogist today so i will go armed with a wealth of info.

yes, i'd love to know aboutthe clinic you are being...

Forum: her2group

10-07-2007, 01:46 PM

Replies: 19

can anyone help?

Views: 2,282

Posted By Daisypink

wow! Thanks to all you ladies out there who...

wow! Thanks to all you ladies out there who responded.. its pretty late over here in the Uk and i'm really tired but first thing tomorrow i am going to print all this very use ful info out and google...

Forum: Clinical Trials

10-05-2007, 01:08 AM

Replies: 7

Can anyone help?

Views: 3,792

Posted By Daisypink

Thank you Lily, kate and Julie for your...

Thank you Lily, kate and Julie for your replies...

I have posted on the main HER2 forum in the hope of many reponses..

thank you and take care

Love jakki
xxxx

Forum: her2group

10-05-2007, 01:05 AM

Replies: 19

can anyone help?

Views: 2,282

Posted By Daisypink

can anyone help?

<TABLE class=tborder id=post136078 cellSpacing=0 cellPadding=6 width="100%" align=center border=0><TBODY><TR vAlign=top><TD class=alt1 id=td_post_136078 style="BORDER-RIGHT: #cc0033 1px solid">Hi
...

Forum: Clinical Trials

10-03-2007, 01:00 PM

Replies: 7

Can anyone help?

Views: 3,792

Posted By Daisypink

Can anyone help?

Hi

I am 33 years old and i live in England. We seem to be so far behind over here with access to new drugs, i wanted to ask your help as i am feeling so desparate and scared..

I have lung...

Forum: Herceptin / Tykerb

09-20-2007, 02:54 AM

Replies: 24

Tykerb/Xeloda in England

Views: 5,059

Posted By Daisypink

Update on my treatment here in England... I...

Update on my treatment here in England...

I have had the results following my scans to see if the tykerb/xeloda is working for my lung mets.. its bad news.. it isnt..

The mets have grown and...

Forum: Herceptin / Tykerb

08-27-2007, 01:05 PM

Replies: 12

Tykerb rash

Views: 2,599

Posted By Daisypink

me too

Hi

I am so glad i spotted this thread as i was going post about this.. i'm on the LEAP trial over here in England (very lucky to get it), Xeloda/Tykerb 2 weeks on 1 week off - tykerb...

Forum: Herceptin / Tykerb

08-27-2007, 12:52 PM

Replies: 24

Tykerb/Xeloda in England

Views: 5,059

Posted By Daisypink

Update on me lil old me in England

hi there

i just thought i would give you an update on me over here in england..

Ive just completed cycle 3.. but have developed the rash!!!

Ive just spotted a thread about this so i am...

Forum: Herceptin / Tykerb

08-07-2007, 06:00 AM

Replies: 24

Tykerb/Xeloda in England

Views: 5,059

Posted By Daisypink

Thanks for the info on the magic mouth wash.... ...

Thanks for the info on the magic mouth wash....

Ive just completed my 2nd cycle of xeloda/tykerb and i have had no mouth sores at all!! yippee!!! i hope i wont be needing to ask for this when i...

Forum: Herceptin / Tykerb

07-21-2007, 04:01 PM

Replies: 24

Tykerb/Xeloda in England

Views: 5,059

Posted By Daisypink

Hi there thanks for the replies... i had my...

Hi there

thanks for the replies... i had my second dose of xeloda/tykerb prescribed and they decided to try the full dose once more..

Does anyone know if the magic mouthwash is available on...

Forum: Herceptin / Tykerb

07-09-2007, 08:04 AM

Replies: 24

Tykerb/Xeloda in England

Views: 5,059

Posted By Daisypink

Update on me.... well.. my mouth has been...

Update on me....

well.. my mouth has been so sore all weekend, i decided to call the hospital this morning to ask them for something..

They had me in straight away to check my bloods which...

Forum: Herceptin / Tykerb

07-08-2007, 12:41 PM

Replies: 9

Tykerb Update

Views: 1,632

Posted By Daisypink

Esther i follow your posts all the time.....

Esther

i follow your posts all the time.. thats such fab news...

love jakki
xxx

Forum: Herceptin / Tykerb

07-08-2007, 12:37 PM

Replies: 24

Tykerb/Xeloda in England

Views: 5,059

Posted By Daisypink

Thanks Debbie I would be interested to know...

Thanks Debbie

I would be interested to know whats in this 'magic mouthwash'.. i could really do with some right now..

Hope you get on ok on tuesday and the doctor can help with the stomach...

Forum: Herceptin / Tykerb

07-08-2007, 02:51 AM

Replies: 24

Tykerb/Xeloda in England

Views: 5,059

Posted By Daisypink

Think i spoke too soon..... I seemed to be...

Think i spoke too soon.....

I seemed to be doing ok with the Tykerb/Xeloda until yesterday when i felt really under the weather was almost sick and had some diarrhhea. i also have had a headache...

Forum: Herceptin / Tykerb

07-06-2007, 12:25 AM

Replies: 24

Tykerb/Xeloda in England

Views: 5,059

Posted By Daisypink

Hi Brenda thanks for the reply.. in answer...

Hi Brenda

thanks for the reply.. in answer to your question about health care treatments over here.. well we have the NHS and i have been able to have all my treatment through this and funded by...

Forum: Herceptin / Tykerb

07-03-2007, 09:49 AM

Replies: 24

Tykerb/Xeloda in England

Views: 5,059

Posted By Daisypink

Hi Just an update on me over here in...

Hi

Just an update on me over here in England..

I started taking the Xeloda - 3300mg a day and Tykerb 1250mg a day.. this started last friday.. so far so good..

i have only experienced a...

Forum: Herceptin / Tykerb

06-21-2007, 12:50 PM

Replies: 24

Tykerb/Xeloda in England

Views: 5,059

Posted By Daisypink

Thanks

Hi odette and Michelle

many thanks for your replies... glad to hear you are tolerating the drugs well..

its so nice to be able to talk to others that are on this combination of drugs.. here...

Forum: Herceptin / Tykerb

06-19-2007, 02:22 PM

Replies: 24

Tykerb/Xeloda in England

Views: 5,059

Posted By Daisypink

Tykerb/Xeloda in England

Hi

I'm Jakki and i'm new to these boards. I live in England and i'm 33 years old.

I'm due to start a new trial over here for Tykerb/xeloda and wondered if any of you knowledgeable ladies will...

Showing results 1 to 21 of 21

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