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Search: Posts Made By: Alice
Forum: her2group 04-06-2009, 11:31 PM
Replies: 35
Views: 3,069
Posted By Alice
Hi Greg, I can't add much to what has already...

Hi Greg,
I can't add much to what has already been said. I did do the most agressive aproach to my situation but I was stage 3 and that can make a difference. I had carbo with taxol and hercepitin....
Forum: her2group 03-26-2009, 11:07 AM
Replies: 2
Views: 1,333
Posted By Alice
Hi Lani, I was reading this late last night and...

Hi Lani,
I was reading this late last night and did not have much time to do additional research. I was mainly speaking to this particular article. I also won't have much time to investigate until...
Forum: her2group 03-25-2009, 10:53 PM
Replies: 2
Views: 1,333
Posted By Alice
er-pr-her2+++ feeling a little left out! this one's for you Lani!

I was just on the thread that linked to Burris on tdmi and was hard pressed to find anything regarding er-pr-. All of the research seems to be directed to er+pr+ patients (no offence intended) and I...
Forum: her2group 03-25-2009, 11:54 AM
Replies: 7
Views: 1,210
Posted By Alice
Thank you all for your support. I just got the...

Thank you all for your support. I just got the preliminary results today. No evidence of mets!!! Needless to say I am thrilled! I do have some degenerative problems in the neck and 2 small foci in...
Forum: her2group 03-22-2009, 12:46 AM
Replies: 7
Views: 1,210
Posted By Alice
Thank you for your replies. In the case of...

Thank you for your replies. In the case of Leukemia you are right that the WBC's are high. I talked to the onco nurse and she said that there have been a few cases that the WBC have stayed in that...
Forum: her2group 03-21-2009, 01:18 AM
Replies: 7
Views: 1,210
Posted By Alice
Brain MRI questions? scared!

Hi,
I have been out of the loop for awhile. I am glad to see some of the names I remember. I am going for a brain and spine MRI in a couple of days. I had a brain MRI last year and it was fine. I am...
Forum: her2group 01-28-2009, 11:32 PM
Replies: 19
Views: 1,469
Posted By Alice
I think Alaska Angel said it best. I have...

I think Alaska Angel said it best. I have wondered many times what each of the terms meant and have been given a variety of answers and that also goes for stage, grade and chance of recurrance also....
Forum: her2group 01-25-2009, 08:41 PM
Replies: 14
Views: 1,183
Posted By Alice
I had chemo which included Herceptin before...

I had chemo which included Herceptin before surgery. I had to stop all treatemnt before surgery and then after surgery I started Herceptin and Radiation. I continued Herceptin until it affected my...
Forum: her2group 01-25-2009, 08:26 PM
Replies: 8
Views: 1,688
Posted By Alice
I am interested in information on how DHA can...

I am interested in information on how DHA can help with cognative function. Is there much info out there? I have resisted taking DHA because I have always questioned the validity of the suplimental...
Forum: her2group 01-25-2009, 08:07 PM
Replies: 5
Views: 1,019
Posted By Alice
It is truly a scary time to have a bad illness,...

It is truly a scary time to have a bad illness, as if it were not scarry enough. I have always inquired as to the monitary structuring of the "non proffit groups" that I have supported throughout the...
Forum: Profiles In Courage 01-25-2009, 07:45 PM
Replies: 3
Views: 6,733
Posted By Alice
Smile 3 years out

I just read Michelle's post at 5 years out and I am encouraged to think I will be there before long. When I was in treatment I never thought I would get through it let alone be 3 years out. I can now...
Forum: her2group 12-24-2008, 04:16 AM
Replies: 6
Views: 1,286
Posted By Alice
My profile is similar to yours. I was stage 3...

My profile is similar to yours. I was stage 3 grade 3 locally advanced. My onc is of the mind that if there are no symptoms there are no scans unless I push for them. When I push for them she always...
Forum: her2group 12-03-2008, 12:23 AM
Replies: 10
Views: 1,964
Posted By Alice
Hi Lida, I have not been following the recent...

Hi Lida,
I have not been following the recent posts and am not familliar with your treatment options. I did have a similar treatment of Herceptin/Taxol/ carboplatin. For me it was slightly easier...
Forum: her2group 11-11-2008, 09:48 PM
Replies: 3
Views: 846
Posted By Alice
Hi Sherry, Did you have the lung mets biopsied...

Hi Sherry,
Did you have the lung mets biopsied to make sure they were truly mets and not something else? I had multiple lung nodules show up on ct scans. I did not opt to have them biopsied at the...
Forum: her2group 11-08-2008, 03:36 AM
Replies: 13
Views: 900
Posted By Alice
Smile 50!!!

Hi everyone,
I just wanted to let everyone know that I made it to 50!!! When I started this journey I was sure I would'nt make it to 50yrs and now here I am! If you asked me when I was a teenager, I...
Forum: her2group 11-08-2008, 03:21 AM
Replies: 4
Views: 4,565
Posted By Alice
Thumbs up This is a BIG WOW! Very interesting article. It...

This is a BIG WOW! Very interesting article. It should give hope to us all.
Thank you, Alice
Forum: her2group 11-04-2008, 12:00 PM
Replies: 2
Views: 847
Posted By Alice
I had an MRI last year that showed similar areas....

I had an MRI last year that showed similar areas. The nurologist explained that it was all normal and anyone over 30 years old would have these areas and there was no need for treatment. Let us know...
Forum: her2group 10-10-2008, 12:51 PM
Replies: 3
Views: 1,006
Posted By Alice
I'm sure she is probably getting the steroids...

I'm sure she is probably getting the steroids thru IV at the time of Taxol. I always had them IV and didn't even know some people got them orally. I think it has most to do with the Dr. and...
Forum: her2group 10-01-2008, 03:16 AM
Replies: 12
Views: 2,323
Posted By Alice
Question Thank you for posting this. I know that my onc...

Thank you for posting this. I know that my onc and gyno were both not sure of the systemic effects. I would like to know if you have any information about whether or not a person with er/pr- should...
Forum: her2group 10-01-2008, 03:06 AM
Replies: 14
Views: 1,702
Posted By Alice
Hi, I don't know if I have too much info for...

Hi,
I don't know if I have too much info for you but I just want you to know that we have all felt what you are feeling now.
There is strong evidence that herceptin works well in her2+ casses. If...
Forum: Events and Social Calendar 09-27-2008, 01:03 PM
Replies: 2
Views: 6,987
Posted By Alice
Hi Christine, I tried to email on the link...

Hi Christine,
I tried to email on the link provided and it would not go through.
I would love to come to lunch in October. I work weekends so I need as much advance notice as possible.
I also want...
Forum: her2group 09-12-2008, 11:16 AM
Replies: 16
Views: 2,011
Posted By Alice
Hi, It certainly can be very confusing. I can't...

Hi,
It certainly can be very confusing. I can't speak to what to do in the case of stage 1 since I was stage 3 and chemo for me was imperative. All I can say is that herceptin has made a substansial...
Forum: her2group 09-07-2008, 01:39 PM
Replies: 3
Views: 1,034
Posted By Alice
Smile I would love to attend. I work weekends so I will...

I would love to attend. I work weekends so I will need as much notice as possible to get the day off. I wasn't able to go last year and I hope to not miss it this year.
Alice
Forum: her2group 09-03-2008, 03:39 AM
Replies: 47
Views: 6,275
Posted By Alice
Just bumping this back up. I think it canhelp a...

Just bumping this back up. I think it canhelp a lot of the newcommers.
Forum: her2group 09-03-2008, 03:12 AM
Replies: 20
Mom
Views: 2,044
Posted By Alice
Hi Rich, Your mom is so lucky to have you....

Hi Rich,
Your mom is so lucky to have you. There are so many sons that don't seem to be concerned by this disease. If your mom truly has tumors on her liver there are many on this site that have...
Showing results 1 to 25 of 279

 
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