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Search took 0.02 seconds; generated 100 minute(s) ago. Search: Posts Made By: Heart Sutra
Forum: her2group 12-05-2006, 08:01 PM
Replies: 17
Views: 2,748
Posted By Heart Sutra
Wink All of you people are so amazing. I mentioned...

All of you people are so amazing. I mentioned this site a hundred times since I've found it. I cannot even begin to express my gratitude for having found you all. You have all been so wonderful to...
Forum: her2group 12-05-2006, 07:39 PM
Replies: 24
Views: 3,771
Posted By Heart Sutra
Steve and Sarah, On our way to the hospital...

Steve and Sarah,

On our way to the hospital today, Sue asked if I had heard any news about Sarah. I come home tonight to read your words of encouragement among the many others in response to...
Forum: her2group 12-04-2006, 07:47 PM
Replies: 17
Views: 2,748
Posted By Heart Sutra
'Twas the night before surgery (updated 12-6-06)

...and we're scared.

Not of surgery, but of the overall prognosis of HER2 positive survival rates.

We can find statistics that are very poor, and some that aren't so bad, but great...
Forum: her2group 12-04-2006, 07:15 AM
Replies: 12
Views: 2,216
Posted By Heart Sutra
Thanks for clearing up the MUGO question. ...

Thanks for clearing up the MUGO question.

and wow, do we agree about the lack of compassion the doctor showed by the statement about the longevity gene. Sounds like the god complex has that one...
Forum: her2group 12-03-2006, 08:33 PM
Replies: 24
Views: 3,771
Posted By Heart Sutra
Steve, Sorry to hear this! We hope...

Steve,

Sorry to hear this!

We hope Sarah makes a speedy recovery.

We'll be thinking of you.

---Kevin and Sue---
Forum: her2group 12-03-2006, 08:24 PM
Replies: 9
Views: 1,985
Posted By Heart Sutra
hi thank you for your post. It seems to us,...

hi

thank you for your post. It seems to us, even at this early stage of our journey, that anxiety is probably going to be at least an occassional visitor, so your post speaks directly to us.
...
Forum: her2group 12-03-2006, 08:11 PM
Replies: 12
Views: 2,216
Posted By Heart Sutra
hi, excuse our ignorance... What is a...

hi,

excuse our ignorance...
What is a MUGA?
thanks, sorry to hear additional stress added to your life. Hopefully it is short lived and works out well.

---Kevin and Sue---
Forum: her2group 12-03-2006, 10:23 AM
Replies: 4
Views: 1,705
Posted By Heart Sutra
Hi Val, If what you mean by "alternative" is...

Hi Val,
If what you mean by "alternative" is anything other than medically tested and proven by peer review... then..

Having trouble with getting links on this...
try this one...
Forum: her2group 12-02-2006, 03:57 PM
Replies: 24
Views: 3,771
Posted By Heart Sutra
Hi Steve, We don't have any answer for you,...

Hi Steve,

We don't have any answer for you, but we want to wish Sarah and you to feel better soon.


Kevin and Sue
Forum: her2group 11-30-2006, 07:05 PM
Replies: 10
Views: 1,778
Posted By Heart Sutra
Thank you for being here Sometimes it does...

Thank you for being here

Sometimes it does feel that way, we've been hit hard on all fronts too, lately it seems more than ever before.

This is when all the wonderful philosophy and intent in...
Forum: her2group 11-30-2006, 05:40 PM
Replies: 16
Views: 2,474
Posted By Heart Sutra
Thank you all so much. I wish I could thank each...

Thank you all so much. I wish I could thank each of you one at a time, but the list grew so fast! How fortunate are we to have that complaint? Please know that every word has been a help, every...
Forum: her2group 11-29-2006, 05:53 PM
Replies: 16
Views: 3,101
Posted By Heart Sutra
That is great news! Thank you for telling us...

That is great news!

Thank you for telling us about it, we certainly appreciate it.


-----Kevin and Sue-----
Forum: her2group 11-29-2006, 03:21 PM
Replies: 14
Views: 3,435
Posted By Heart Sutra
hello

Carol,
We don't know enough to give you any advice, I'm sure there are many here who can.
We wanted to wish you good things, and our thoughts are with you right now.
Forum: her2group 11-29-2006, 03:09 PM
Replies: 3
Views: 1,477
Posted By Heart Sutra
hi again

What I meant is that Sue donated a kidney 15 years ago. So, she's one short. and I wondered if that was going to change her treatment.

Thanks for the information, it all helps.
Forum: her2group 11-28-2006, 09:26 PM
Replies: 3
Views: 1,477
Posted By Heart Sutra
Kidney Donors and herceptin, chemo?

Thank you for being here.

Sue is a kidney donor. We are wondering if there are any others here and what their experiences with medication post-op was.

We need to research whether or not...
Forum: her2group 11-28-2006, 09:13 PM
Replies: 15
Views: 2,781
Posted By Heart Sutra
hi

All of this is so helpful. You all added so much insight into this for Sue and I, we feel very lucky to have you all.

There are so many good points...

Audrey, there is no such thing as being...
Forum: her2group 11-28-2006, 08:40 PM
Replies: 24
Views: 4,027
Posted By Heart Sutra
way out of league

I may be wrong, probably am...

Doesn't law require reconstruction for breast surgery? Is this only in New York?

I'm sorry you've had trouble with the plastic surgeon... might be an idea to...
Forum: her2group 11-28-2006, 05:39 PM
Replies: 24
Views: 4,027
Posted By Heart Sutra
Hi

Thank you for being here.

We are brand new here too. So we can be scared together.

The truth is exactly what so many people here have repeated over and over.
Knowledge is power. Make your...
Forum: her2group 11-27-2006, 04:11 PM
Replies: 16
Views: 2,474
Posted By Heart Sutra
Thank You

Thank you all for the welcome and your compassion.

Yes, sentinel node biopsy is also part of the plan, that is the news we await.

I'm glad Sue doesn't spend too much time on the internet...
Forum: her2group 11-27-2006, 04:00 PM
Replies: 15
Views: 2,781
Posted By Heart Sutra
Thank you all

Thank You all so much. It is so much stronger to hear personal experience than it is to read the dry, antiseptic advice from books on the subject. Though there are some good books too!

Your...
Forum: her2group 11-26-2006, 09:36 AM
Replies: 15
Views: 2,781
Posted By Heart Sutra
Question post-op mastectomy care

Thank you for being here.

Sue is scheduled for a modified simple mastectomy with sentinel node biopsie/dissection on December 5th. Obviously we don't know what they'll find in the nodes yet, so...
Forum: her2group 11-26-2006, 09:11 AM
Replies: 3
Views: 1,400
Posted By Heart Sutra
Yay!

Congrats on good news! I've read the 2 year mark as well, and that each year passed after that is a step away from risk of recurrance. I wonder about the statistics involved in that statement. ...
Forum: her2group 11-26-2006, 08:55 AM
Replies: 20
Views: 4,245
Posted By Heart Sutra
We were told...

Thank you for being here.

We were told that "now that you are in the 11th hour, you are expected to accept (name of popular deity here) and know that his way is the only way to regaining your...
Forum: her2group 11-25-2006, 08:59 PM
Replies: 16
Views: 2,474
Posted By Heart Sutra
Hello from a newbie

Thank you for being here.
I saw this site a couple of weeks ago when my beloved was diagnosed with Her2 3+ positive IDC, rated III/III. Tumor is about 2cm.
She is scheduled for a modified...
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