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Search took 0.01 seconds; generated 74 minute(s) ago. Search: Posts Made By: Vicky
Forum: her2group 06-25-2013, 08:09 AM
Replies: 35
Views: 4,768
Posted By Vicky
Re: 12 years

Pam~ I have thought of you often and so happy to see you here! Yayyy for 12 years- you continue to inspire and encourage! Thank you for dropping in today!
Forum: her2group 06-20-2013, 07:15 AM
Replies: 32
Views: 6,879
Posted By Vicky
Re: Brain MRI - Hmmmm

Denise- you are indeed a star and a treasure all tied up into one! I couldn't agree more with your wish to hold off on whole brain or surgery! ME TOO! So thankful to see someone who get exactly...
Forum: her2group 06-06-2013, 07:49 PM
Replies: 39
Views: 7,823
Posted By Vicky
Re: Jessica Passed Away Last Night

So profoundly sad to see this... she fought so long and so well and was a shining light of hope for so many of us... prayers to her family.
Forum: her2group 05-31-2013, 07:13 AM
Replies: 25
Views: 4,955
Posted By Vicky
Re: Doxil...q28 days -time is of the essence

Jessica- adding my heartfelt thoughts and prayers with the others. Hopeful- and lifting you- praying for strength, clarity and peace.
Forum: her2group 05-27-2013, 06:26 PM
Replies: 68
Views: 19,366
Posted By Vicky
Re: Hema

So saddened to see this news- joining in prayers with all the others and lifting yourself and Hema- praying that you feel surrounded by love and peace.
Forum: her2group 04-19-2013, 11:41 AM
Replies: 165
Views: 39,047
Posted By Vicky
Re: update I hate to give (with a little more positive spin)

Chrissy~ just wanted to add my prayers and voice to all the others. As I scroll through the list of all those leaving such encouraging and loving words- I am reminded of all the love and hope, wit...
Forum: her2group 01-16-2013, 08:44 AM
Replies: 11
Views: 3,139
Posted By Vicky
Re: Any suggestions for severe heartburn

Yes, I had a long history with heartburn even before I started treatment. I also have a prescription for Omeprazole, or you can get it over the counter at any pharmacy. But when I had radiation it...
Forum: her2group 01-11-2013, 09:28 AM
Replies: 3
Views: 940
Posted By Vicky
Re: How Long Do You Wait For Lab To Mix T-DM1 At Your Facility?

Hi Karen,

I typically waited an hour to an hour and 1/2. Since it was my first chemo/targeted therapy I didn't know any different until they came to apologize after I waited almost 2 hours once. ...
Forum: her2group 12-10-2012, 12:53 PM
Replies: 98
Views: 25,162
Posted By Vicky
Re: Sheila has earned her wings

I'm profoundly sorry for your loss~ my deepest condolences to you and your family. Sheila was a beautiful warrior spirit whose insight and wisdom gave me such hope when I was first diagnosed. ...
Forum: her2group 12-10-2012, 10:37 AM
Replies: 27
Views: 5,497
Posted By Vicky
Re: TDM1 is bust for me

I'm sorry to hear tdm1 did not work for you. It wiped out my liver mets and then kept me stable for 10 months. Progression was called when I developed lung mets. Because my insurance would not...
Forum: her2group 10-03-2012, 01:29 PM
Replies: 11
Views: 2,603
Posted By Vicky
Re: How do you live well?

Thank you Amanda for sharing so openly about how you are feeling. I too have struggled a bit as of late with feeling an urgency to live, while striving to live as fully as possible. I make spinach,...
Forum: her2group 09-26-2012, 07:28 AM
Replies: 35
Views: 4,977
Posted By Vicky
Re: Scanxiety - Brain MRI & Full Body PET tomorrow~

Jessica~ I was wondering how you were doing- glad to hear you were living life full. You so adeptly articulated what our day to day existence can be like! Thinking of you the next couple of days...
Forum: her2group 09-25-2012, 10:25 AM
Replies: 57
Views: 10,247
Posted By Vicky
Re: Brenda (Hutchibk) needs some love and prayers...

Sending lots of prayers and healing thoughts and energy your way Brenda!
Forum: her2group 09-17-2012, 08:04 AM
Replies: 25
Views: 7,214
Posted By Vicky
Re: Is there benefit in surgery for stage iv's

I concur with what Lisa is saying- I also was stage iv with spinal mets, liver and lymph nodes upon diagnosis. I was told that there was conflicting research on the benefit/risk of removing the...
Forum: her2group 08-25-2012, 10:22 AM
Replies: 20
Views: 4,861
Posted By Vicky
Re: 9 year Cancerversary!!!

Congrats! 9 years- wow!!
Forum: her2group 08-20-2012, 08:02 PM
Replies: 11
Views: 6,071
Posted By Vicky
Re: Side Effect TDM-1

Coming off of tdm1 (pertuzumab or placebo was in the second arm of the study I was on) my oncologist decided on Halaven as I too had developed small lung mets. My current insurance does not cover...
Forum: her2group 08-20-2012, 07:50 AM
Replies: 59
Views: 26,410
Posted By Vicky
Re: Gammaknife, Tykerb...reality check

I so appreciate every time someone shares their journey! I learn so much and have an idea of what may or may not happen- thank you Denise for bravely going forward and taking us along on your...
Forum: her2group 07-24-2012, 10:34 AM
Replies: 81
Views: 21,893
Posted By Vicky
Re: Brain Mets &%$#$!! :(

Denise, I was so sorry to hear your news. I had Novalis stereotactic radio surgery to one met on my brain in March. I just had my post treatment scan on the 11th of July and the tumor is shrinking...
Forum: her2group 07-23-2012, 09:12 PM
Replies: 6
Views: 4,252
Posted By Vicky
Re: Eribulin/Halaven - tell me about it!

The fatigue set in after the steroids wore off starting about two days after infusion- each of the two weeks. I had infusions on Tuesday and then I could feel the steroids start to wear off on...
Forum: her2group 07-23-2012, 08:47 PM
Replies: 6
Views: 4,252
Posted By Vicky
Re: Eribulin/Halaven - tell me about it!

Hello,

Wow- 14 years is truly inspiring!

I found Halaven very tolerable and it shrunk my lung mets after a couple of treatments. My hair did thin quite a bit, but I didn't lose it all. I had...
Forum: her2group 07-23-2012, 01:28 PM
Replies: 18
Views: 4,056
Posted By Vicky
Re: 2nd surgery on ankle

Pam,

So sorry to hear- I scan your history and am in complete awe and admiration for how much you've been through. Praying that you feel God's presence with you and that the surgery will go well...
Forum: her2group 07-21-2012, 08:02 PM
Replies: 4
Views: 2,228
Posted By Vicky
Re: TDM-1. How quickly did it show it was working

Hi Nancy,

I've actually done both tdm1 and eribulin, or halaven. After three doses of tdm1 all of my liver lesions disappeared and both my breast tumor, mets in spine and lymph nodes all shrunk. ...
Forum: her2group 07-21-2012, 11:57 AM
Replies: 4
Views: 1,647
Posted By Vicky
Re: Sore Throat and Radiation

Hello- I had radiation to my spine for 10 days- they shoot down through the esophagus which was already giving me a hard time from chemo. So after trying Carafate and a GI cocktail and getting very...
Forum: her2group 07-07-2012, 08:15 PM
Replies: 14
Views: 3,728
Posted By Vicky
Re: Extreme fear of mri's

Hi Dixie,

I had no idea I was claustrophobic till I was in the tube! I now have sedation for my MRI's and get anywhere from 2-3 xanax about an hour before the test depending on how long it will...
Forum: her2group 06-30-2012, 09:31 AM
Replies: 43
Views: 8,116
Posted By Vicky
Re: THIS IS MY NOW time...!!!!!!!!!!

Andi, I absolutely feel the energy and light pouring out of your words. Its wonderful to both read, but also truly absorb the peace and sense of calm they bring me! Thank you for taking the time to...
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